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  1. #21
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    Sorry, I saw your thread. But I'm not ttc so I didn't respond. Good luck on your ttc journey - and so glad to hear that you are feeling so much better.

    @Zomie_eyes

    it does run in families, and it can also be connected with other autoimmune diseaes, do you know if anyone in your family (even extended) has any other kinds of autoimmune diseases? Arthritis, diabetes 1 etc?

    My mum is also colieac, my granddad (who died in the 70's) is now suspected. ANd I have multiple autoimmune diseases, when you have one, you are more likely to have more - but I have noticed that those with coeliac tend to just have coeliac, whereas those with autoimmune arthritis tend to have more than one. This is just purely anecdotal of course

    Quote Originally Posted by Tippytoes View Post
    I started a thread today in the ttc forum about coeliac and ttc. So far no responses! Anyway, sorry to hear you are so unwell. I was diagnosed in September. After having bub I lost the baby weight and then kept losing it! I am now 46kg. Felt sick ALL the time. Living on Maxalon. Could hardly eat because nausea and constant abdo pain. Plus so tired. Taking PPIs because I and the dr thought it was stress related gastritis. This went on for a long time. Saw another dr who sent me for the biopsy which showed atrophy and they diagnosed it. The blood test came back negative. But that isn't necessarily diagnostic anyhow. I was initially in denial because I didn't want to change my diet and I didn't realise how even a breadcrumb can do damage. I was also accidentally poisoning myself (sauces). Decided to get serious about it because I wasn't getting better. Been totally gluten free for around 2 weeks. Has changed my life. I am well again. Resuming my old hobbies and love for life. Feeling blessed to find out it was only that really because I started thinking the worst.

    Apparently it takes a long time for the gut to heal. It has affected my cycle I can't conceive while it is like this.

    The biopsy is fine. Enjoy a nice little rest hope you get sorted soon and feel better.

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  3. #22
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    Last edited by BornToBe; 07-11-2013 at 13:56.

  4. #23
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    My mum has arthritis and fibromyalgia

    Isnt there also a link between autism and gluten stuff? Cause that would raise my chances


    Mumma to two beautiful boys on the spectrum and one special little girl.

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    Quote Originally Posted by Zombie_eyes View Post
    My mum has arthritis and fibromyalgia

    Isnt there also a link between autism and gluten stuff? Cause that would raise my chances


    Mumma to two beautiful boys on the spectrum and one special little girl.
    Ive read a few research papers. But studies now have squashed the idea. I do know a few professor's still studying this but the current recommendations are not for children or adults on the spectrum to be placed on a gluten free diet.

    Sent from my GT-I9505 using The Bub Hub mobile app

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  7. #25
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    My mum was diagnosed coeliac about 12 years ago.

    She had bowel issues for many years, misdiagnosis etc. It was a massive relief to be diagnosed as she was able to live a normal life once she cut gluten out of her diet completely.

    The only time it's a PITA for her is when it comes to eating out. Thankfully a lot of eateries are starting to list gluten free options on their menus. Sometimes mum takes her own GF bread out with her and asks places to make her a sandwich, and they usually oblige!

    I hope everything improves for you on the health front really soon

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    I think it looks like you're still being investigated, so perhaps try not to jump to conclusions on what the cause of the awful anaemia is. I assume the gastroenterologist will do a scope (camera into gastrointestinal tract) and biopsy. Most people (not all) with Coeliac disease would have blood tests suggestive of this - since you have such severe anaemia i am sure the Coeliac antibodies have been tested as part of the investigations, and if they were negative Coeliac disease would be unlikely (but the biopsies are needed to be sure).
    Best of luck and I hope you get an answer soon. Remember having Vitamin C containing foods along with an iron rich meal eg. Glass of OJ while you're eating red meat, will help increase iron absorption. HTH.

  9. #27
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    Yes i have had an appointment with the specialist, having a transfusion , then testing for coeliac and also a scope once ive had multiple monthly blood tests to see the rate in which my iron is declining. If the trst for coeliac comes back pos then they will do the biopsy. (I thought i covered that part)

    I have not speculated anything, my specialist has! Given my list of other symptoms

    I was posting this as if it is a possibility for me then i wanted to k ow how it would affect my life.


    Mumma to two beautiful boys on the spectrum and one special little girl.
    Last edited by Zombie_eyes; 07-11-2013 at 10:55.

  10. #28
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    Also, i do have vitamin c daily as well as iron, i had a transfusion in june but its not being absorbed, or i have a bleed somewhere. Those i were told were the options


    Mumma to two beautiful boys on the spectrum and one special little girl.

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    I've always shown up negative on the bloods for coeliac, and for all my other autoimmune diseases as well. When they are positive , they work well. But people still slip through the cracks.
    Last edited by beebs; 07-11-2013 at 17:45.

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    Hopefully you and the specialist will get to the bottom of this and find a solution.


 

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