+ Reply to Thread
Page 2 of 2 FirstFirst 12
Results 11 to 19 of 19
  1. #11
    Join Date
    Apr 2011
    Location
    Perth
    Posts
    2,449
    Thanks
    607
    Thanked
    581
    Reviews
    5
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 posts
    And pls don't blame yourself! You are doing your absolute best to get you and bub through this new world of tests etc.

    Feel free to PM me if you need to. I understand how stressful it can be.

  2. #12
    Join Date
    Apr 2008
    Posts
    1,998
    Thanks
    58
    Thanked
    237
    Reviews
    0
    Achievements:Topaz Star - 500 posts
    Are you linked into any other services, physio or speech (speech paths can help with feeding issues), if so then then they can probably give you some good advice - maybe more so than a paed or GP. My Dd1 has a syndrome and I have found that our physio in particular has been very supportive and has more hands on experience than the drs.

    Best wishes & hope you get some answers soon. Don't beat yourself up with whatifs etc.

  3. #13
    Join Date
    Dec 2011
    Posts
    848
    Thanks
    29
    Thanked
    79
    Reviews
    0
    Achievements:Topaz Star - 500 posts
    She on waiting list for speech, occupational, development pead, she has seen the physio twice now but that was before her pead diagnosed her & they were not really good got a appointment again next Friday so now she has been diagnosed we will see how the physio are with her now.

    Just waiting around every day playing with her it's heartbreaking & very tiring. I can't wait until everything starts happening so we can relax a bit more because we will know what to do & how to treat her.

  4. #14
    Join Date
    Jul 2011
    Posts
    986
    Thanks
    17
    Thanked
    230
    Reviews
    0
    Achievements:Topaz Star - 500 posts
    What is she like developmentally now? Perhaps if we know where she is at, others might be able to help if their little ones have been given exercises etc.??

  5. #15
    Join Date
    Dec 2011
    Posts
    848
    Thanks
    29
    Thanked
    79
    Reviews
    0
    Achievements:Topaz Star - 500 posts
    Crawling , pulls herself up on furniture & walks along it couple steps but I have not seen her do it for couple days now. Only babbling no talking no words, can not point to something. Hope that's what you mean by development

  6. #16
    Join Date
    Dec 2011
    Posts
    848
    Thanks
    29
    Thanked
    79
    Reviews
    0
    Achievements:Topaz Star - 500 posts
    Quote Originally Posted by Cool Cookies View Post
    Crawling , pulls herself up on furniture & walks along it couple steps but I have not seen her do it for couple days now. Only babbling no talking no words, can not point to something. Hope that's what you mean by development
    I have also noticed that she has a short attention span & gets frustrated very easy & quickly

  7. #17
    Join Date
    Sep 2011
    Posts
    7,160
    Thanks
    1,701
    Thanked
    3,395
    Reviews
    4
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 postsAmethyst Star - 5,000 posts
    Quote Originally Posted by Cool Cookies View Post
    Crawling , pulls herself up on furniture & walks along it couple steps but I have not seen her do it for couple days now. Only babbling no talking no words, can not point to something. Hope that's what you mean by development
    It sounds pretty great at 14 months. ..especially with the other issues going on.
    I know lots of kids who had FTT and hypotonia as part of their diagnosis (through my support group) who have no n limitations on their life. They may have walked out crawled slightly later..or had issues with swallowing or constipation (due to low muscle tone) but are older and doing really well.

    Do not beat yourself up. .. you are doing everything you can!! Getting help and support can be exhausting and frustrating. .. and very isolating. It's like a constant fight to get people to listen. You are doing all that you can and you are loving your daughter and advocating for her. It's hard work but things will come together.

    Sent from my GT-I9505 using The Bub Hub mobile app

  8. #18
    Join Date
    Jul 2011
    Posts
    986
    Thanks
    17
    Thanked
    230
    Reviews
    0
    Achievements:Topaz Star - 500 posts
    I agree with Tamtam and your DD sounds very similar to mine developmentally (who doesn't have hypertonia or failure to thrive). She's 17 months and can walk but chooses to crawl mainly. She bum shuffled from 12 to 16 months and then walked/bum shuffled for a week and now crawls.

  9. #19
    Join Date
    Jul 2011
    Posts
    986
    Thanks
    17
    Thanked
    230
    Reviews
    0
    Achievements:Topaz Star - 500 posts
    Oh and I wouldn't worry about the talking. She sounds on par with most bubs


 

Similar Threads

  1. Hypotonia In a Baby
    By Cool Cookies in forum General Child Health Issues
    Replies: 0
    Last Post: 06-08-2013, 21:51
  2. Hypotonia
    By Pusky in forum Serious Health Issues
    Replies: 2
    Last Post: 26-12-2012, 13:20

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
free weekly newsletters | sign up now!
who are these people who write great posts? meet our hubbub authors!
Learn how you can contribute to the hubbub!

reviews
learn how you can become a reviewer!

competitions

forum - chatting now
christmas gift guidesee all Red Stocking
Springfree Trampoline
Give the Ultimate Christmas Gift Springfree Trampoline
The World's Safest Trampoline™ is now also the world's first Smart Trampoline™. Sensors on the mat detect your every move and your jumps control fun, educational and active games on tablet. Secure the Ultimate Christmas Gift today!
sales & new stuffsee all
True Fairies
True Fairies is the first interactive website where children can engage and speak with a real fairy through the unique webcam fairy portal. Each session is tailored to the child, and is filled with enchantment and magic.
Visit website to find out more!
featured supporter
Billington Street
For stationery as unique as you are! ♥ Handmade, custom designed stationery for all of life's celebrations
gotcha
X

Pregnant for the first-time?

Not sure where to start? We can help!

Our Insider Programs for pregnancy first-timers will lead you step-by-step through the 14 Pregnancy Must Dos!