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  1. #21
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    Quote Originally Posted by Ffrenchknickers View Post
    And yeah. Panic attacks are horrid
    That they are.

  2. #22
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    Have you thought about journaling to get some if your grief and sadness out?

    There is no right or wrong way to do it. No fancy paper or pens needed. Just some paper and a pen and a comfy spot.

    I have started to journal write and I have been amazed at some of the things I am discovering about myself. I allocate 10 minutes to write. Sometimes I start with a single word, sometimes a thought or feeling.

    I do not show anyone my writings but I do discuss them with my husband or psychologist if something big comes from it. I am finding it very healing. I don't have a special book, in fact it's generally scraps of paper that I use.

    I'm sorry your experience was not pleasant or what you hoped for. Your grief and feelings of loss are genuine and I'm shocked that the psychologists you have seen have not validated your feelings. I'd be angry, upset and overwhelmed too.

    Good luck. I hope you find something helpful to help ease your emotions.

    I've heard of Miracle Babies (for premies) is that an option for support for you where you are?

  3. #23
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    Yeah might start journaling but also need something to help me out in the meantime. Even if it's to help me sleep at night.
    I've heard of miracle babies but they can only help so much.

  4. #24
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    Quote Originally Posted by siennasyummymummy View Post
    My DD was born November 2011 at 29 weeks as well. Oh my goodness.
    i can definitely relate to what you're saying.
    Oh wow. Is she ok now Hun?

  5. #25
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    Yeah it's defo not easy.

  6. #26
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    Update-

    Had to go to the hospital that I delivered DD in nearly 2 yrs ago- the same one I also had my ectopic pg experience with ...

    I completely lost it. Panic attacks the lot.

    My DD needs special ankle foot orthotics (afos) and the paediatrician wanted to diagnose her with al these scary conditions and labels.

    I'm really struggling and need someone to ball my eyes out too - isn't it funny that the ppl who say they'll always be there- never are? I just want someone to tell me it'll all be ok n give me a hug.

  7. #27
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    I've just read through your thread and had to post. I'm in a similar situation. .. though not identical so the journey is different.
    My dd is 10 months. We were told at or 20 week scan she had a complicated heart defect. The possibility of another chromosomal or genetic disorder was high. She came into this world at 39 weeks. .. spent her first part of life in NICU.. she's had 2 open heart surgeries and time in PICU and hospital. She's also got a very rare genetic disorder.
    I had a miscarriage and ectopic pregnancy before having her. And DH and I aren't having more. .. also too risky.
    She's very full on. .. we see tons of specialists too.. daily meds... plus lots of allied health services.
    I tried a psych too plus counseling with my DH... plus social worker at hospital etc. And I'm tired! She doesn't sleep. But I love her to bits. But I don't have time to seek out help for myself and I also feel that 'they' just don't get.
    This journey with extra needs kiddies can be isolating and exhausting. I can understand some of your journey. Big big hugs. Wish I could do more than that. Feel free to chat or pm me if you like.

    Sent from my GT-I9505 using The Bub Hub mobile app

  8. #28
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    Hugs @Tamtam it's not a good position to be in at all. I feel so bad at the moment ... Just woke up DD just to hug her bad mumma moment here

  9. #29
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    Quote Originally Posted by LysnDan View Post
    Hugs @Tamtam it's not a good position to be in at all. I feel so bad at the moment ... Just woke up DD just to hug her bad mumma moment here
    Enjoy the snuggle. I hope you get some rest. Can you take since time or for yourself at all. Maybe just listen to some music? Just breathe? I also have experienced panic attacks. They are so debilitating. Is DH there? Can you wake him for some hugs????

    Sent from my GT-I9505 using The Bub Hub mobile app

  10. #30
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    Hubby is a FIFO worker he's hardly ever home


 

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