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  1. #51
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    @Bergeron I'm not experienced with movicol but given my experience with other constipation treatments there is always a treatment dose and a maintenance dose, so I would drop it back but not stop it at all. Good luck, you have done an amazing job to help her. DD1 only got to 9 days without poo. I can't imagine how painful it was for your daughter.

  2. #52
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    EvaandOllie,
    That's insane they said she had an infection but only recommended pain killers!
    our dr choices are limited where we live.
    I suppose one good thing about the dr we do see is he is honest.
    He has said many times he isn't really sure what to do anymore but to try and work with us.

    We do see a paed at the local hospital who is very easy going, no real urgency and just give us laxatives or tells us to cut out cheese (dd doesn't eat cheese lol)
    I still go to him, but I don't know why.
    He is through public so I don't really get a huge choice on who I see. He is better than the woman we seen who told us we were making a mountain out of a mole hill.

    The pharmacist is most likely the most informative we see.
    I've tried other drs in the area but it's just useless.

    In her first year we lived near the city.
    We had the ongoing issues with rashes, swelling etc and NO ONE we seen would do an allergy test.
    We seen so many drs, one said children under 2 can't have an allergy test done :what: I finally was referred to an allergy specialist, 3 month wait through private, and in that time she had the anaphylaxis shock, only then drs decided to investigate...

    In someways I've just lost faith in the system.
    I've been telling dh we should really get private health, especially living rural, I think after this we will be sitting down and looking at plans.

  3. #53
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    Beancounter, thank you!
    Huge relieve for today and great to know we have a fall back as a last resort.
    I'm going to keep up with it all to try and avoid it.
    I suppose it's just a trail and error game with the movicole and dosage?
    I've stopped giving it in the morning and just at night now.
    We have started the toilet habit after meals too.
    No poos on toilet yet but slowly she is sitting for longer and longer.

  4. #54
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    Sonja, I didn't see your post until I had finished putting dd to bed.

    I have been giving her a full sachet daily (was on the verge of giving two) but tonight I just gave her 40mls of the full sachet mixed in 120mls of water.
    Not sure if I've given to little or to much but time will tell.
    I'm keeping note of what I've given and how much and what results so I can show the dietitian and the clinic when we go.
    Hopefully I'll be able to see before we get in what has/hasn't been working in terms of dose.

  5. #55
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  6. #56
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    Quote Originally Posted by Bergeron View Post
    He is through public so I don't really get a huge choice on who I see. .
    FYI
    - you have the right to a second opinion
    You would be funded under medicare to seek a second opinion. If there is another paed in your area who works publicly, you should be able to see him or her.

  7. #57
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    You're better off giving too much than too little in the initial stages. The issue with the constipation cycle is that once you become impacted it stretches the bowel, and such stretching means she won't feel the urge to go until its that big poo again and so the cycle continues. The idea behind the medication is to break that cycle allowing the bowel to return to normal size and sensation to return, which could take months. You also don't want to stop medication too soon or back to square one you go.

    Movicol works by drawing water into the bowel, so you want to make sure she is drinking enough water during the day to help it be affective.

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    MilkingMaid  (08-10-2013)

  9. #58
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    Update.

    We had 3 poos yesterday with no screaming or pain.
    One of them she did herself in the toilet and just came and told me.
    They are quite runny, but at least it's movement!
    Nothing today but she is happy, I'm still keeping up with the movicole and her water intake (average 1.3 to 1.5 litres a day)

    Just called the clinic.... It shut down last year apparently they don't have any of those services in our area.
    Making some calls now to ones in the nearest city.
    It will be a bit of a drive but one I'm willing to make.

  10. #59
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    MilkingMaid is offline Winner 2009 - Mod Award - most supportive member
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    Sounds great, keeping on top of it is the key.

    What a bugger the clinic closed! Fingers crossed the nearest one isn't too far away.

    When I took my son, there was the initial consultation, and everything else has been discussion over the phone, so perhaps it won't be too bad if you have to travel initially.

  11. #60
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    Quote Originally Posted by MilkingMaid View Post
    Sounds great, keeping on top of it is the key.

    What a bugger the clinic closed! Fingers crossed the nearest one isn't too far away.

    When I took my son, there was the initial consultation, and everything else has been discussion over the phone, so perhaps it won't be too bad if you have to travel initially.
    Thank you.

    Big issues with trying to get into a clinic closer to home... I seen one of the children's hospitals run a program that sounds great for DD, but I'm not in catchment... They said I could aim for a referral from my GP as I live rural..
    But that's as far as they seemed to want to help me.
    Another clinic I called just kept asking me to leave messages and I never received call backs...
    There are some more but the drive out is getting longer and longer so I'll keep that in mind but I I want to try one last thing before making the trip.

    whilst doing all that looking around I found a dr who is only a 3hr drive and she has a great interest in children's health.
    She works at a women's and children's practice and costs a small fortune but
    reviews on her about child constipation and bowel issues have all been excellent.
    I called and was told her next appointment wasn't until 3 weeks away.
    I *might* have put on the stressed out mum performance but we got in for an appointment tomorrow!
    Hopefully she is as good as what I've read and fingers crossed we can get pointed in the right direction that's hopefully closer to home.
    If not than I'm happy to make the longer trip, but it can't hurt to try someone so close.


 

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