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  1. #11
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    Just a quick question tam tam. The last 3 days DD has been having these really stinky gas and lots of gas pain in the evening which nothing seems to help.

    Doctor has her on suppositories every 2 days and it has always been really soft (but really stinky) so it's not hard pooh but her bowels still haven't worked on their own yet.

    Did you find an increase in stinky and painful gas was normal with the protein leaving the body or is this implying I should start the neocate? I'm just finding it hard to believe that if it is a cmpi that the allerpro would be making it worse than the other formulas that have more cows milk.

    Honestly everything I do just makes her worse. I tried coloxyl and it just have her tummy pains and did not bring about a BM. Laxative and all kinds of juices were the same. Now she seems worse on this formula.

  2. #12
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    Did she pass meconium normally?? When do you think the symptoms started?
    I know that poos can be different on specialized formulas because it's more agreeable and easier for the body to digest.
    My dd does not go number 2s generally without help. She's on coloxyl twice daily. has been for a long time. One issue with suppositories is that the blockage can be further up the system so the suppository might clear what's low down but not high up. Laxatives like lactose can cause a lot of pain. It certainly did for my dd... they dump through the system causing stomach cramping. Do you give coloxyl no matter what?? You have to consistently give it each day so it works.
    Do you think the constipation is not cmpi??? Have they done a stool test?
    My dd had really stinky gas. Lots of tummy time helped with the gas and also gentle tummy massage (massage just below the belly button towards the right side in a clockwise direction) another thing I used to do was wrap a warm towel around her tummy (I'd put in the dryer to get warm) to help ease the discomfort. But yeah. ..her gas could clear a room. :/
    Maybe keep a diary for a few days of all the symptoms, how long they last for etc... them get back to the paed. My paed always told me that 2 weeks was enough time to see things settle down.

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  3. #13
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    Oh. . and I'm not a dr but the drs my dd had in hospital (for unrelated issues) were reluctant to use laxatives or suppositories. . they are tough on the system. Coloxyl is generally much gentler but has to be given regularly (regardless of bowel movements) to get therapeutic results. Given with a bottle (you can even just add it to the milk) should be much gentler.

    I know that's not what your dr has suggested but just thought I'd pass on the info I received. Which came from her paed, her pharmacist while she was PICU, her dietician and even her cardiologist weighed in. So pretty good sources!!

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  4. #14
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    She passed muconium fine. When she was born she had terrible tummy pains and pead suggested lactose free formula. The constipation started then and it's been down hill since then. Pain just gets worse and I don't know if its constipation or the original issue or both. Everything I try to fix the constipation makes her worse.

    We tried coloxyl over a couple of days to her bottle. She cried in pain straight after the bottle that had it in it same as prune juice (only 10mls to a 150ml bottle) lactulose she cried when doing the bowel movement. I didn't know what else to do and she really doesn't seen to mind the suppositories. I think that's why doc has suggested use them every 2 days to kick start her bowel. She has cleared all the hard stuff but still won't move it on her own.

    Pulse now she seems to get a bad gas pain every evening. Last night I was up with her from 8pm to 2pm in pain. I can deal with the stinky fluffs but they started with this pain so I don't know whether I assume the formula isn't working and try the neocate or keep trying??

    Sorry know you are not a doctor just don't know anyone else with this experience. I feel like she is never going to get better. Oh and doctor never did a stool sample just told me to try the formulas and see of they work. Allerpro first and if no better neocate.

    I see him in a week to let him know how it went.

  5. #15
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    It's okay. I don't mind sharing my experience. My dd is 10 months and doing much better. But she does have a syndrome and one part of that can be gastroenterology issues. One of them is low muscle tone causing sluggish bowel movements.
    I find it interesting he didn't offer a stool test. .. I think you should ask for one. Poor thing sounds like she's really uncomfortable. Which is awful for both of you. You must be very upset. ..I know how awful it is. Are you doing okay?

    Neocate seems an interesting choice. .. most of this time drs suggest soy first (though most kiddies who are cmpi also intolerant of soy. . my dd definitely was!) Then try pepti junior. ... or elecare. Because neocate is the most broken down formula so it's kind of last resort.
    Can you very a referral to a paed? Or is that who you are seeing? Maybe it's worth trying to see a Gastroenterologist? We did and the first thing he ordered was another stool test!!
    Gosh is so hard. And not to stress you but you do want it solved obviously (!!) Because we started to get feeding issues because she associated pain with the feeding. ... which we resolved and she's doing great.
    It does sound like the allerpro isn't working that well. You could try soy formula?? You can buy that. And you can also buy tins of pepti junior in the chemist. It's expensive without the scripg, but my paed told me to go ask for a tin as he was prescribing it and just try it.
    I'm not suggesting it but just letting you know your options.

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  6. #16
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    How is everything going???

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  7. #17
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    Hit hanks fe thinking of me. Things are going terrible at the moment. I don't think the formula worked - 11 days in and she still screams for hours each day with no relief (mainly in the afternoon/evening) last night I took her I to Sydney children's hospital because I tried the neocate and she screamed as I gave it to her, calmed then looked at me in shock 5 minutes later and screamed in agony and vomited a fair bit. Then got a rash on her mouth where the vomit was. Guessing hat formula does not agree with her.

    Her breath keeps going rattlely and she is permanently blocked in the sinus. Everyday she seems to throw up more,scream more and sleep less.

    I feel so terrible she is in so much pain. I think the allerpro is digesting too quickly or something which is causing the build up of gas/pain. Thats what the doctor at SCH suggested.

    At the moment a suppository is the only thing that is giving her any release and I have been doing it everyday cause I don't know what else to do for her.

    Oh and with the runniest of stools she is still not passing them on her own.

    I am seeing the paediatrician again and I hope he will let me change formulas and maybe see a specialist go constipation/stomach issues.

    Gah I am holding onto hope that as she ages her tummy and bowel will mature and this will slowly eat better on its own.

    How are things going on your end?

  8. #18
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    Oh that's just awful. You must be beside yourself. I would definitely be pushing for a referral to a gastroenterologist. And I would really push for an urgent appointment. Up here in Brisbane. .. It took three months for my first appointment with a GI doc.. and he was crap. Didn't even read her chart properly. I canceled the next appointment which is tomorrow actually. But symptoms seem to have dissipated quite a lot now at ten months.
    Gosh I wish I had some more ideas for you. But I don't. I hope the paed can help.
    Hugs. You must be very stressed. I hope you are finding some time to de stress too.

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  9. #19
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    Another mum here with a 3-month old who was diagnosed with cow's milk allergy when bub was only 6 weeks old. She had bloody diarrhoea for days and we took her to the children's hospital. After infection was ruled out they thought it was most likely cow's milk allergy. We used Pepti Junior since then, eliminated almost all dairy products from my diet while BFing (am still mix feeding) I've also been feeding her Bioceuticals BabyBiotics and am relieved that her diarrhoea stopped completely that night itself and she has been more settled since. I used to work in the pharmacy before DD was born and sometimes recommend Iberogast for reflux and wind but it contains alcohol due to its extraction process (although it claims to be quickly metabolised and doesn't affect the consumer).

    I hope your DD is feeling better now, there's nothing worse than seeing our bubs crying in pain. Keep us updated.

  10. #20
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    Thanks tam tam you have been a great help and support. I am very glad to hear things are getting better for your bubba. I asked the doctor why we weren't able to test and he said due to the constipation it will almost certainly be a negative even if she does have it. At the moment we have doubled the reflux medication and I have I persevere with neocate. See what happens.

    Faith love thanks for the advice. What exactly is that drug you suggested? I hope your bubba is getting better?


 

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