I'm new to the forum and hoping to hear about others experiences with severe endometriosis.
I'm 39 and have been TTC for several years. I had a laparotomoy for a large (nearly 13 cm) cyst on my LHS ovary in late Feb this year. After the operation, the gyne advised I had severe endometriosis, and she bumped & drained a blood cyst on my RHS ovary during the op (not evident in pre-op scans). I also have a 3 cm submucosal fibroid.
I was referred to a gyne specialising in laparoscopic surgery for endo (Dr Wynn Williams), and another re:IVF (Dr Robert Miller). They have basically suggested having the fibroid & endo removed for best chances of conceiving (low, try naturally initially), and for pain management/longer term health.
I've been struggling to make a decision about whether to go ahead with a laparoscopy soon. I'm resolved to having the fibroid procedure & have been advised this could be done in the same op as endo. Help!
Apparently I have a lot of adhesions including RHS ovary stuck down, the pouch of douglas 'obliterated', & MRI shows nodule adhesion uterus to bowl, also RHS cyst 16 mm endometrioma. I probably have more adhesions from the laparotomy; unfortunately they had to make a big cut 17 cm.
Has anyone had severe endo & not gone ahead with the lap/been in a similar situation? What were the outcomes? Did you fall pregnant, issues/what happened down the track? Did you have the lap & glad you did?
My gyne says if I don't have the op the endo will 'just keep getting worse' & very little chance of conceiving. I'm worried about having more surgery & whether the benefits outweigh the risks at my age eg 'shaving the endo off my bowel', general likelihood of recurring (?more surgery) & potential impacts when you operate on an ovary (apparently 30 % chance of forming an adhesion that contributes to ongoing infertility). I guess on the flip side it works for some people & they can have a look at tubes etc while in there.
I am keen to conceive if possible & wondering about just having the fibroid done. The thought of another recovery period and more cuts from lap leaves me a bit cold, but perhaps its something I should do. I haven't even felt like trying to make a baby since the last op & just starting to feel well enough now.
Sorry for the long post & thanks for reading-I'd dearly like to hear from you, advice welcome! Many many thanks