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  1. #11
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    So we started ranitidine yesterday and I don't know how quickly it generally works but we had a much better night last night. Maybe just co incidence? She was still uncomfortable taking her bottle this morning and grizzly after. Doctor has also suggested Neocate Formula to see if it is cows milk protein causing the reflux, not sure if this is overkill though? From what I can tell on dr. Google it is often used after other options have been exhausted. Does anyone have experience with Neocate?
    edited to make sense - Neocate formula
    Last edited by MillieMollyMandy; 06-09-2013 at 09:05.

  2. #12
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    So glad you saw the GP yesterday. It can take up to two weeks for it to start kick in. Also as your little one grows you will need to return to your GP and increase the dose as its prescribed per kg.
    In regards to Neocate. It is prescribed to
    Babies that have numerous allergies and/or cow milk protein allergy. In my experience it can be the last resort after trying many other options. Generally little ones that do have cow milk protein intolerance tend to have green frothy poos but it's not definately always the case. (I am a paeds nurse).
    When I saw the paediatrician for my DD he said its best to try one thing at a time. Rather than changing everything and then seeing an improvement and not really knowing what caused it. He suggested the HA formula as he said its a little more gentle compared to gold variety and definately helped with us. DD was weaned off losec and has been on full cows milk since just past 12 months with no problem.
    If your not convinced with your GP prescribing Neocate may be best to get a second opinion from a paediatrician??
    Hopefully you will see some improvement real soon

  3. The Following User Says Thank You to Mkim For This Useful Post:

    MillieMollyMandy  (06-09-2013)

  4. #13
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    Quote Originally Posted by Mkim View Post
    So glad you saw the GP yesterday. It can take up to two weeks for it to start kick in. Also as your little one grows you will need to return to your GP and increase the dose as its prescribed per kg.
    In regards to Neocate. It is prescribed to
    Babies that have numerous allergies and/or cow milk protein allergy. In my experience it can be the last resort after trying many other options. Generally little ones that do have cow milk protein intolerance tend to have green frothy poos but it's not definately always the case. (I am a paeds nurse).
    When I saw the paediatrician for my DD he said its best to try one thing at a time. Rather than changing everything and then seeing an improvement and not really knowing what caused it. He suggested the HA formula as he said its a little more gentle compared to gold variety and definately helped with us. DD was weaned off losec and has been on full cows milk since just past 12 months with no problem.
    If your not convinced with your GP prescribing Neocate may be best to get a second opinion from a paediatrician??
    Hopefully you will see some improvement real soon
    Thanks MKim for the advice, that was my feeling too to try one thing at a time, although of course on the other hand I am impatient and just want it all fixed! Will do the ranitidine for a couple of weeks then look at a change in formula. We give her s26 Gold Comfort which is meant to be gentle on tummy, so will stick with that then discuss the with the GP trying the HA varieties. My feeling is that the Neocate isn't necessary as yet, she does have dark green poos but not frothy, I was told the dark green is from the extra iron in the gold formula? Will keep an eye on her weight/ranitidine dosage too. Thanks again, I really appreciate everyone taking the time to reply and offer advice

  5. #14
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    Pleasure. Yep definately green poos can be due to the higher iron content fingers crossed you get results soon. It's really tough and you are doing an awesome job

  6. #15
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    I'm in a similar situation. My LO is 9 weeks old. She has had silent reflux since she was 3-4 weeks old. My paed put us on Losec suspension and neocate.

    My experience with Neocate so far - it smells awful and I think it took my bub some time to get used to the taste. She seems to not care about the taste anymore. I don't know if my LO has an allergy and if neocate is worth it for her. Like you mentioned, it's probably better to try one thing at once to know what is working. Neocate is a bit of an effort as well, you have to get a special authority script to get the governement discount, otherwise it is something like $350 for 8 tins (each tin is about half a normal formula tin). In hindsight I would try the medication for reflux first, then try the formula change, but I was just following my paed instructions.

    LOSEC experience. It took 2 weeks to work, which is apparently normal. So it was 2 weeks of hell waiting to see if it worked. It kicked in and things got somewhat better, but the past week, we seem to have gone back to square one and I'm dealing with it all again. Going to try and see the paed soon and try and get a change in dosage or try Zantac also.

    Don't give up. I'm sure once you get the right medication or formula or whatever works for your bub, they will be happy again. I'm telling myself this also! Good luck!

  7. #16
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    My DS has severe reflux (think projectile vomiting across the room and 5-10 outfit changes a day). We saw a pedestrian at 10 weeks (after seeing 3 different useless GPs). DS is now on nexium and its brilliant. It doesn't stop the vomiting but stops the burning. In addition to that he has infant gaviscon as well and we we told to start solids early at 4 months. He is 3.5months and we have just started some farex once a day and it seems to help keep his night feeds down. We have good days and bad days but the bad days are still a hundred times better than what it was before the medication. We bought a baby carrier as he hates the pram. His swing has been awesome for when I need my hands free. We dont have a strict routine but try to follow a pattern of feed,play,sleep so that he has time to digest his feed before we lay him down.

    Sent from my GT-I9505 using The Bub Hub mobile app

  8. #17
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    I agree, try one thing at a time.

    My DD was put onto soy formula and that did the trick. It is still $20 a tin if you buy karicare and tastes far better than neonate.

    they say that a large percentage of babies intolerant to cows milk protein are also intolerant to soy, but if its a true cows milk protein intolerance, then HA type formulas won't work and will still cause a reaction

  9. #18
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    Back again! Thanks to everyone for your advice. We have been using Zantac for the last month and was going well but in the last couple of weeks her symptoms have reappeared so back to the GP and we now have Losec. Just a couple of questions - what dosage is reasonable? DD is about 7kg. I only ask because last time the GP put us on the wrong dose of Zantac to begin with. Also - any tips for getting her to swallow it in tablet form? I know you can mix with water, is the best way to use a syringe? I want to make sure she gets the maximum effect from the Losec. And last one! Do your give it at the same time as a feed or before? Thanks! I did ask the GP about all of this but she wasn't too sure...

  10. #19
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    I believe (but please double check) that the dose is 0.7mg per kg. I know some babies that have quite severe reflux can have it twice a day. It can be worthwhile having a chat to a pharmacist they will have the exact dose ranges for little ones. I know in those first few months my dd had big growth spurts and we did have to increase the dose often.
    I used the liquid with my little one, but I know you can mix it with water.
    Maybe before a feed might be easier, syringe it in and then a bottle. It doesn't taste very nice I can imagine.
    Hope things are improving

  11. #20
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    Thanks MKim. The GP prescribed 10mg once a day, which according to the RCH website is the correct dose, but may need to be increased when she hits 10kg.
    We have it in the tablet form, the GP recommended dissolving it in fruit juice so we tried this the first day and it was a disaster!!! She cried so much, way more than for her vaccinations which she had done earlier in the day, it was awful.
    So we tried it dissolved in gripe water the next day and it went down much better. She has swallowed all of it the past two days. Unfortunately we can't give it at the same time as her bottle as the pharmacist advised it is most effective on an empty stomach.
    Hard to say if there is much improvement yet, but from what I understand she needs to be on it for at least a week until we can tell. Am really hopeful it will work!
    Thanks again for the advice, it is so nice to be able to come on here and get support.


 

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