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    Default Info on Crohn's disease?

    Hey guys. So the dr is now thinking I have Crohn's disease. I have google bits and pieces but does anyone have experience with this?? I'm very confused. I'm not sure about long term health and is it diet controlled? Tthanks

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    My SIL has Crohn's. She has had some pretty drastic surgeries but has been going along pretty well now for about 10 yrs. I know she pretty much eats what she wants but has trouble with things like corn and nuts. Sorry not much help.

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    Have you had scopes done yet? There is a number of illnesses that are similar to chrones ( like IB) although not as bad. Yes it is mainly diet controlled but to rule out other illnesses it is best to keep a food and symptom diary then you can work out what foods you cannot eat . Surprisingly for me one was meat pies , makes me so sick I am incapacitated within 40 mins of eating one and chilli or anything hot will affect my insides for weeks with the damage it does when my body reacts to it.

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    Thanks. I'm having a colonoscopy done in two weeks. I've has X-rays and ultrasounds. The first dr said it was gall bladder pain but this dr looked at my bloods over the last few months and with the symptoms is leaning towards Crohn's. so no diagnosis yet. I have been thinking possibly coeliac disease too but I'm not a dr!! Thanks for the food diary idea! X

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    Quote Originally Posted by candyapple82 View Post
    Thanks. I'm having a colonoscopy done in two weeks. I've has X-rays and ultrasounds. The first dr said it was gall bladder pain but this dr looked at my bloods over the last few months and with the symptoms is leaning towards Crohn's. so no diagnosis yet. I have been thinking possibly coeliac disease too but I'm not a dr!! Thanks for the food diary idea! X
    Another cause of symptoms is stress, I also stopped drinking anything with caffeine in it over 10 years ago and it has helped heaps. Although I have suffered from this since I was a child and it has still taken me decades to work out what is wrong even after numerous specialist appointments and scopes etc.

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    Thanks. I'm under no more stress then normal I'm hoping to get some answers soon.

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    LifeInShadesOfGrey is offline Just a little bit silly :)
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    I am very similar to you, I've had terrible issues. The doctor asked me to go dairy and wheat free. I have to have a colonoscopy too but haven't booked it in yet. I've had bad stomach issues for about 8 years now, it's not fun. But diet does affect it, I know if I avoid chilly, food cooked in oil and even some fried, breads, ice cream, spicier food like spaghetti etc I have no problems. But when I eat those foods I am sick as in about 10-40 minutes.

    I hope you can get some answers and relief soon

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    My mum has ulcerative colitis, which is in the same "family" as crohns. You can control both with medications and diet, though if it is severe, often surgery is an easier option. I also have a 15 year old cousin with Crohns.

    Mum was diagnosed years ago, when the only options were steroids and hugely restricted diet, or permanent colostomy, ie, wearing a bag for poop. Now her meds are different and her diet is a tad more relaxed, however as pp said, she does not eat spicy foods, acidic foods (citrus), and high fibre foods.

    My cousin had a crohns diagnosis at 12. He had a temporary colostomy, and a part of his intestine permanently removed. Now he is controlling it with drugs and a restricted diet, which sucks when you are a teen!

    Mum has had it for 27 yeard, and treatment has changed in that time. She had some long term health problems which older treatments caused. The high doses of steroids and highly restricted diet are identified as factors in her non-alcoholic fatty liver disease, her under and then over active thyroid, her frequent pneumonia. However treatment now is really good, far less side effects and less long term issues. Mum is actually looking and feeling better than she has for most of my life, thanks to newer meds.

    There is a colitis and crohns organisation, check them out, they are a great support basis.

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    Thanks heaps! Crohn's and colitis have both been on the table. But I didn't even know how to spell colitis! Lol. Fingers crossed its not anything I have to worry about but it's great to hear stories about people's personal experiences. I'm hoping to get answers soon

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    Feel free to pm if you get a diagnosis, mum's specialist is considered the best in Sydney, happy to pass anything on.

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