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  1. #1
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    Default Anyone with adenomyosis? Please, needing advice!

    Hi everyone, I'm new here and was just hoping to chat to anyone who has adenomyosis. I have recently been diagnosed and am trying to figure out whether to do down regulation with Synarel or Zoladex before doing FET's with my last remaining embryos (no more stim cycles for me). I have consulted with a few different dr's and they have given me different opinions - most saying it makes no difference, but one saying it could, but he doesn't normally treat it. I have read conflicting research and am in a bit of a bind. So am hoping that someone might be able to share with me their experience. I would appreciate anything at all actually. Having had endometriosis, fibroids, ovarian fibrothecoma, CIN I lesion, to find out I now have adenomyosis is kind of flattening my hopes and I'm feeling a bit (well, a lot) frozen in my decision making.... Just being able to chat to someone else who has it and is doing IVF would help a lot! Thanks !

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    Hi Sze - I have "age related" adenomyosis....apparently it 'can' be one more thing to add to the list when we get older!!! (Im 48 and started my IVF journey at 44). I also have slight endometriosis. I have had 3 x fresh cycles, 1 x FET, 2 x FETs with donor eggs and have just come back from a fresh cycle with a different donor in South Africa. Over the years, I have had 3 fertility specialists and none said that my adenomyosis would impact on implantation....they were all happy to go along with transfer. Today, I received news that Im finally pregnant with HCG of 140....first time in my life that I have received those 2 lines!!! Whilst it is still very early days, I just wanted to say that implantation was possible with my case of adenomyosis. Good luck with your decision making. PM me if you would like any specifics...happy to be of any assistance.

  3. #3
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    Hi sze, Just saw this thread and wanted to say that I have adenomyosis (and a few other problems including Ashermans Syndrome, fibroids, high NK cells and a luteal phase defect). I still conceived my DS2 off a frozen cycle and carried him to term so it is possible

  4. #4
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    Hi, this is an old post but I've just been diagnosed with Adenomyosis, I'm 30, no kids, not TTC yet.


 

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