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  1. #1
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    Default Ménière's disease.

    I was diagnosed about 3 years ago.
    It came very very sporadically and sometimes I would be fine for months at a time.
    I actually found it hard to believe the diagnosis as it was so intermittent.
    But it has been getting progressively worse. I've had symptoms nearly every day for a month.
    Is there anyone else who can shed some light on how they deal with this? I'm starting to find it quite debilitating.

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    Technically, no, I don't. But, I have often thought I may have it.

    I struggle with vertigo and intermittent hearing loss frequently. It seems to be worse when I haven't had much to eat that day, but I'm not sure if that is in my head?

    How did you go about getting diagnosed?

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    It was all symptomatic explanation. I never had the hearing test performed which is another reason why I wasn't convinced.
    However my doctor said it was extremely common in women in their thirties after a baby.
    I think I might go back and explore it further.

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    My mum suffers from this as well as vertigo. She has lost almost all of her hearing in her left ear and is on quite a high dose of serc for her vertigo.
    There is an operation that can be done to fix it though i dont think it will fix it completely and its not without dangers
    http://en.wikipedia.org/wiki/M%C3%A9...isease#Surgery

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    Hi farout... I've been diagnosed with a general vestibular disorder. Originally was told it was Menieres because the symptoms were quite similar. I've got vertigo, balance issues, hearing loss in right ear etc etc! What do you find most difficult to cope with? If I'm tired/stressed/dehydrated I seem to get worse so I try to stay on top of that. I get v frustrated with not being able to do everything I used to so I try to be kind to myself & try to accept it. I saw a rehab specialist who gave me exercises to improve balance/dizziness & they helped up to a point. I haven't found any medications that have helped & have tried quite a few natural therapies but no improvement with that either. Hope someone with Menieres will post with some helpful advice for you Take Care.

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    Quote Originally Posted by schmetterling18 View Post
    It seems to be worse when I haven't had much to eat that day, but I'm not sure if that is in my head?
    ?
    I have had people tell me that cutting back on salt, sugar, caffeine, alcohol and smoking minimise the impact of there Menieres. It won't cure it but can make it less intrusive.

    So eating a regular healthy diet makes sense.

    It's also important to address the hearing loss aspect because balancing the hearing (such as with a hearing aid) can also minimise the affect of vertigo in some people.

    It's an awful disease and would be terrible to try and live with.

    Hope this info helps

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    Oh I can relate to dizziness

    I have been diagnosed, finally, with vestibular migraine. Have been taking sandomigran for about 4 months and have noticed a massive reduction in symptoms over the last 6 weeks. I would ask for more testing. I ended up at a specialist and had rigorous balance/ hearing tests etc. My specialist said menieres is very rare without hearing loss. All the best, I know how awful it feels.

  9. #8
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    I suspect I have this but drs say no as my vertigo only lasts moments rather than minutes /hours

    I know I feel my symptoms are better with clean eating (no sugar/caffiene/additives)

    Also when I did the FAILSAFE diet with my son, the ringing in my ears completely stopped, i know its from salicylates.

    Oh and I get much less vertigo (and migraines) since cutting out all artificial sweeteners

    Big boy '08
    Little girl '11
    Fetus-face due Feb '14

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    My gp often does acupuncture and manipulation of the neck when I have vertigo and it helps a bit. I use maxalon and stemitel to ease the nausea when it gets bad. There is also some excersizes you can learn from a physio that can help the fluid balance problem. You sit on a bed or lounge and drop to one side then the other and it can sometimes correct it.
    I find my symptoms are worse when I have a cold or sneeze a lot , one sneeze can set off my vertigo sometimes then it goes on for days and I end up with a ringing ear , nausea and unable to stand.
    I don't drink any caffeine drinks ,haven't for years and I do smoke but it seems to be colds that set me off as I don't suffer from it when I am well.


 

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