Hi all- first time poster to any kind of forum.
We've just fuond out that our baby has a serious heart defect (AVSD) that will need to be operated on early in it's life. We've so far dodged the additional complicatations of chromosomal abmormalities and more complicated single chamber heart issues.
We're from Canberra and will need to travel to Sydney for the birth (2 weeks before my due date and wait around). And I was wondering if anyone could share their stories of heart defects, delivering in Westmead hospital and getting through the birth and looking after the baby in the first few weeks after having gone through open heart surgery.
I'm not sure how the birth will go, I'm not sure how breastfeeding will go, I'm not sure how long the recovery from the surgery for the baby will be and I don't know where we will live while this is all going on. So would love to hear how it's worked out for others.