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  1. #611
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    Default Going to be crazy by Nov 12

    Hello I am new but I have been reading here for a couple of weeks. 41 in Dec, no kids, have had 2 ectopics, one in each tube, one tube remaining. After my last ectopic in 1999 I had pushed it under the carpet and thought I have plenty of time and have been working hard and met my husband in the meantime.

    Then, my husband and I almost started IVF 6 years ago just after we got married... The FS said he wanted my remaining tube removed first. The cost of this took the wind right out of our sails before we even started or had to wait a year to go via public. We tried ourselves then, good thing was 1st cycle I fell pregnant, bad thing was I miscarried at like 5 weeks. I have had 2 prior miscarriages, when I was very young, around 18. I was in such a state after the miscarriage because I was actually expecting an ectopic. Now I know that the FS was assuming I have a hydrosalpinx.

    In Dec last year i turned 40 and almost immediately had some kind of breakdown...by Feb this year quit my job to work from home..deep down I knew what it was, I was trying to come to terms with my age and being childless and being childless forever, my husband just does not have the same need as me. Took me until last Wed to have the guts to just come out and say it to my husband and ask him if we could try again. Still money is an issue but now the Springwood clinic is an option for me. Now I can't get in for my first appointment until Nov 12 so I am jumping out of my skin, madly trying to lose weight, went on monday to have my own AMH test via my GP. Feel like my eggs are fading away while I am waiting. I called Springwood and spoke to a nurse to ask what else can I do...and well now I feel stupid as I have had an implanon implant since my miscarriage 6 years ago and shes like...how long have you been trying and I said I haven't been...I just don't want anything to jeopardise my first cycle starting...mentioned my bad tube and she brushed off that I might not need it removed and said start trying naturally...my mother is saying "as your mother I am telling you to calm down and wait" as I have a tendency to crash and burn.

    At any rate of course I have ignored mum as usual heh. The nurse said...you do know you have less than 5% chance of success (I dont know where that comes from I have seen so many percentages around)...it seems that because I have never had a live birth I have less chance now which I don't know why that is either. Got my period on Wed last week, implanon removed on Friday, I read that you ovulate almost straight away sometimes would that mean that I can ovulate towards the end of my period?

    Anyway I am in agony waiting to start I need to work, but I cannot concentrate on anything else...in fact, I have not had a good nights sleep since we decided to go ahead with it.....how many meetings to you have before you can start? I am on the pessimistic side, I have had 4 positives in the past and when I dare to get excited its taken away every single time.

    Sorry its long, I am going to burst. I just don't know how to go on with my life in the meantime and even more now that we have made the decision to start I am realising that I might have left it too late. Thankyou for listening

  2. #612
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    Welcome Mrsmac, - You are sure to find lots of sympathetic ears here. We all know how you feel about running out of time.

    I know November seems so far away, but in the mean time you could get your GP to do blood tests for you throughout a normal cycle (i.e, day 2, mid cycle, day 21). That will give your FS a tiny bit of recent information to go by, to help him/her along with their assessment of you. And at the very least it will help you feel like you are doing something to help.
    There are also supplements that you can start now too. E.g, folic acid 5mg, vitamin E, CoQ10, berocca, fish oil.

    Good luck, and I hope you don't burst.

    Fingerscrossed, - Wow, what a big change. Congrats on being PUPO. I hope this wild card proves to be the one

    MrsP...

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    Fingerscrossd11  (18-09-2013)

  4. #613
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    Dear mrsmac,
    welcome to fantastic support here:-) you found already one of very helpful sites, which will help you to get through this all. Just think, we are all in the same boat, and we can understand exactly what you are saying.
    In the meantime you might want to read the book "is your body baby friendly" from Allan beer. Best book ever and very helpful.
    Waiting time is our biggest enemy (mine it is,as I want everything now) :-) so waiting for results can be daunting. I just keep myself very busy, so time can fly:-)
    i wish you good luck and hopefully you'll find the answers you are looking for.

  5. #614
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    ThreeGoes... I've had Grave's Disease for about 7 years now - originally I had bad heart pulpitations, shaking hands and lost 11kgs in 11 months without trying, but since having the radioactive idodine treatment and now meds, I have no symptoms, except putting all that weight back on and more!! I have a great endocrinologist, but they only specialise in the Grave's Disease, not the Eye Disease component.

    The Grave's Eye Disease is dreadful - I have good days and bad days. It's like having sand in my eyes the whole time and often I drive to work with my eyes shut!! Normally people drive with their eyes open and just blink quickly. I do it the other way - eyes closed, and just blink open! I've told all the specialists about this, but they say mine isn't bad enough to operate on nor have steroids for!! On a few occasions, I ring another lady from work who comes and gets me. Driving is particularly bad, as is looking up, e.g. if I'm sitting and someone walks over to talk to me, then I get up so I'm looking across. I also have uncontrollable conjunctivitis as part of the Eye Disease component - doesn't matter how often I wipe my eyes, it just comes back. But thankfully, that part has been better in the past 6 months. I see Professor McCluskey at the Sydney Eye Hospital who is the man to see and very lovely, but unfortunately the Eye Disease runs an 8 year cycle, so it's a case of just waiting it out. I've had it now 2 and a half years, so he says it shouldn't get worse now, so that's good news. He loves showing me off to his residents whenever I go there. I'm booked in to go next week, but I think it's going to clash with EPU and/or ET so will have to postpone.

    Stillhope... I've just ordered Allan Beer's book, so looking forward to reading that in my holidays :-))

    MrsMac... in one post you've summed up how we all pretty much feel and have gone through. You've come to the right place here, and will find lots of good advice and support. It does sound like you'll need a good amount of BTs to check everything. I've been on the IVF rollercoaster for 20 months now - have lost count of how many BTs I've had - just this past week I've had another 14 vials of blood taken, across three separate days. Considering you've been close before, that's a positive sign. As for when you can start, that really depends on your FS. Some women start straight away, as soon as BTs come in and a plan can be made. Good luck.

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    StillHope  (17-09-2013)

  7. #615
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    Oh my goodness MGCBertie, you poor thing. The eyes are a terrible thing & it sounds like you know that more than anyone. I guess it's reassuring to know that it shouldn't get any worse?? good luck with EPU & transfer next week.. Fingers & toes crossed for you.

    Mrsmac, thank you for joining us & I wish you all the best on your journey

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    MGC Bertie  (17-09-2013)

  9. #616
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    Fingerscrossed....good luck to you too...

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    Fingerscrossd11  (18-09-2013)

  11. #617
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    Tinybaby-you still have a reasonable amh, mine was 5.2 at 40 and 3 months. So that sounds good to me.
    Bertie- good luck on your blood test and scan tomorrow. And thank you for the roll call.
    Kenta-how is your 2ww going?
    Ann-what a high beta! Yes 30 sounds much better. I know Monash saids it has to be over 30. Have you spoken to your fs yet?
    Springrain-thank you for the link . I will take a look at it tonight.
    Myheart-good luck with this fet cycle. I still think you should consider one cycle with Lynn if this frozen one doesn't work. I'm sure she would like the challenge and she would probably do things differently to how they have been done in the past for you. And you may even get some frozen ones.
    Threegoes-good luck on your new protocol. You have that really full on protocol this time don't you? Make sure you set your alarm!
    Fingerscrossed-welcome back.
    Mrsmac- your in the right place here. Everyone has had difficulties. As the others have said get all your tests done. I think Stillhopes suggestion in reading the Alan Beers book is excellent. You said you have had previous miscarriages, do you know why? Do your research now so that your not on the backfoot when you go see your fs.
    hello to Mrs P,Mrs Erin, Stillhope and everyone else.
    afm- feeling queasy. Weaned off prednisolone which really knocked me out and so overall not feeling great. Went to see my gp today to get obstetr. referral and it was nice to see him on a happier note. After cycle 7 failed he was the one who really gave me hope to keep going.

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    Kenta  (17-09-2013),MGC Bertie  (17-09-2013)

  13. #618
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    thanks panda. Your journey gives us hope.

    Interesting webinar springy - no benefit of aspirin, endometrial scratch and glue according to him.

    scan tomorrow to see if epu this friday.

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    Team panda  (18-09-2013)

  15. #619
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    Thankyou for all of the replies I already feel heaps better and I actually slept like a log last night!! I think maybe just coming to terms with it and now need to settle into the time frame and plodding along. I am finding it even difficult to wait for my AMH results.

    My sister aged 21, living with mum still and has a bf of 1 year also living with mum, not working, sis working part time nursing, decided they would like to have a baby, to mums horror, she thought she had talked them out of it but next thing sis announces she is 10 weeks. While we/I am happy for her we are all a little bit disappointed, because the young man aged about 23 already has 2 girls under 5 that live with their mother and he would not be able to support them if it came to the crunch. Anyway it is rubbing a bit of salt in my wounds, but the point of mentioning her was she said she was recommended to take Elevit vitamins, I have been pricing them and they look very expensive it would be sufficient to take a multi with a bit of extra iron etc?...its fine when you neglect to pay your mother board so you can buy these vitamins but I actually have 2 mortgages that my mother won't pay for me!

    As for what has caused my issues, and I assume including my miscarriages not just ectopics is PID, discovered at age 18. I have not been able to get hold of my records from last ectopic in 1999 yet but they are being sent to GP I was in a daze back then so whatever was told to me...cant remember. The FS from 6 years ago told me he reckoned my remaining tube was bad, I assumed this meant it was just blocked.... why they have to dumb it down..I have since found out like a week ago he assumed I had a hydrosalpynx but never got as far as a scan which is a lot different to me. Now I am very mixed about what to do about it. FS 6 years ago said get it removed first, nurse from Springwood 1 week ago said dont panic about it it might not be there anymore and plenty of women have no probs with them????? Reading on the net seems like it is best to have it removed. I am not sure how to go about these things before my first appointment though and will be really deflated if they tell me after waiting 2 months that I do need to have it removed still...a lot has changed in 6 years though

    Also blood tests to ask for? I spoke to a receptionist at Springwood yest about hubby having his sperm tests beforehand they advised against it because they said when you come in they might want to do them again with their scientists..I said can't you just give me a list of standard tests to ask for and she said no...so then I said..what about the AMH test which I had Mon..first out of pocket not covered by medicare, she said...same for AMH they might want it done in their lab...I dont get it...they might ask me to have the test again? She was not a doctor or nurse that said this but I really cannot afford to pay for things twice..

    I haven't had a GP for years that I really liked, I found one in the last 18 months that I liked but have not dealt with him for anything other than common ailments...when I went to see him on Fri, I felt really disappointed with him, I did get my referral and also the order for AMH but he wouldnt answer any of my other questions until another time..even my questions re taking fluoxetine...he said wouldnt advise it and that was all I could drag out of him in his doorway and I am sure I did not have even a 15 min appointment.. Disappointing, I was hoping that he would be excited like me and be proactive in advising me on things I could do beforehand tests wise but I have nothing else...I perhaps should ask for a scan, referral from GP? I am also conscious of keeping costs down...everything needs to be a GP referral right? That really annoys me actually

  16. #620
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    Mrs Mac,


    It certainly sounds like you ve had a bit of a journey. I really hope you can get things sorted and they can help you move forward with IVF. I have always taken the Blackmores preconception and pregnancy tabs. They are not nearly as expensive as Elevit. I know lots of other girls here have taken them too. They might not be quite as good but they certainly have a lot of what you need.

    The waiting is so hard but I think you are probably best to wait until you see the FS. I am always amazed at how quickly tests can happen once you get started. That way the FS can order exactly what they need. I had alot of bloods bulk billed too which certainly helped. Doctors can access previous pathology results on line. When I changed FS my new one was able to access my previous AMH etc so I wouldn't think it would have to be redone. Good luck with everything. I hope the next 2 months fly buy for you!.

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    mrsmac123  (18-09-2013)


 

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