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    Default Parents share your experiences raising a child with an undiagnosed medical condition

    You are invited to participate in a research study investigating the experiences of parents raising a child with an undiagnosed medical condition. This study aims to understand the unmet needs of parents with the goal of improving coping resources and support available to families in similar situations. Individuals who are 18 years or older and have at least one child with a medical condition that has remained undiagnosed for more than 2 years are invited to participate.

    Participation
    involves the completion of an anonymous online survey which should take approximately 30 minutes to complete. This study is being conducted by a Masters of Genetic Counselling student from Griffith University, Brisbane Australia, and will be conducted in accordance with the National Statement on Ethical Conduct in Human Research.

    Please pass this information on to anyone who might meet the criteria for study.The survey can be found at:

    https://prodsurvey.rcs.griffith.edu.au/undiagnosed



    If you have any questions please contact:

    Linda Humphrey
    Principle Supervisor
    Associate Lecture
    Griffith University
    Ph: +61 7 3735 7564
    Email: l.humphreys@griffith.edu.au

    Tatiane Yanes
    Principle student researcher
    Masters of Genetic Counselling
    Griffith University
    Email: tatiane.yanes@griffithuni.edu.au

  2. #2
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    Hi Everyone,

    Just a quick note to say thank you to everyone who has participated in our study so far! The research project will be finishing up soon so if you would like to participate please click on the link below:

    https://prodsurvey.rcs.griffith.edu.au/undiagnosed

    Tatiane


 

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