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  1. #791
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    Hi Ladies, I'm a patient of DR M and have just found out that my second trip to SA for donor eggs has resulted in a biochemical pregnancy. I am devastated and can't understand why this is happening to me. I'm feeling really sorry for myself today so thought I would vent to you ladies. I had another blood test this morning so they can confirm that I will miscarry and hopefully avoid a D&C. Will find out later today. As you can imagine I'm pretty confused. My FS is telling me I just have to get back over there and try again as it's a good sign I got pregnant, yet Dr M is telling me to wait as I need more tests and stronger drugs to prevent my body rejecting the pregnancy. It is so confusing when doctors have different views. I'm wondering if there is anyone out there who has had a similar history to me that could offer some advice. I have been through 15 years of IVF with 6 miscarriages, 2 ectopics, 2 stilborns, 2 sets of donors with only one biochemical pregnancy. We still have 6 frozen embryos in SA but we are now questioning our donors eggs. It's so hard to know if its your body or the embryos. Our donor has donated 4 x previously and all other recipients achieved a pregnancy the first time, but of course I don't know if those pregnancies resulted in a live birth. I believe the clinics should be telling us this information as if they all ended in biochemicals you would question the quality of her eggs. Anyway I'm ranting now. I'm just hoping there is someone out there who can offer me some hope. I'm questioning it all at the moment as I don't know what we should do next. So if you have had a biochemical and a history similar to mine and have gone on to have a baby, I'd love to hear from you. I really need some help.

    I am also having some questions about DR M's protocol. My FS is not a believer of his protocol as there is no scientific evidence to support it and my blood test results don't indicate I require this treatment. But I achieved this biochemical on my first cycle with DR M. I have also noticed in reading through posts that everyone seems to have a different protocol, which sometimes feels like he makes it up as he goes along. I have also found that DR M doesn't really substantiate his findings to qualify why you need the medication. I"m fairly well educated on this topic yet his explanations are very vague to me and don't stack up sometimes. I'm just wondering if anyone else has similar experiences or concerns. I also think the cash payments and the charge for phone consults and blood results is really unusual for a specialist. Feel free to PM me if you don't want to post anything here. We have decided to get a second opinion from Dr Sacks who was our FS, so I can go into the next cycle armed with all the information we need to make the right decision for us. Hopefully he can shed some light.

    I apologise for the long post but I'm hoping there is someone out there that has had similar experiences that can assist me with what to do next. Thanks for listening ladies.

  2. The Following User Says Thank You to Abundance1 For This Useful Post:

    MGC Bertie  (14-10-2013)

  3. #792
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    Abundance - Welcome to our thread. I am sorry to read that you have had such an awful journey to date. 15 years of IVF, I can imagine the toll this has taken on you and your DH. I have done 20 cycles I think now, had 2 ectopics, 2 miscarriages and many many BFN's. Fortunately I was lucky enough to have a little boy naturally after my first miscarriage but have not managed to achieve a full term pregnancy since. I have only done one cycle since consulting with Dr M and unfortunately it was a bit of a disaster and we ended up having nothing to transfer, so I haven't yet been able to test out the immune protocol he recommended. I can not speak highly enough of him though and whilst I understand that dealing with his clinic has caused frustrations for many woman on here, I do genuinely believe that he is the best in Australia and the only one who is willing to try and get to the bottom of what is going on, rather than using a one type fits all protocol. I consulted with Dr S prior to finding Dr M and I do not have anything good to say about that experience. Also, I know he is not a fan of Dr M's treatment so be prepared to get conflicting advice. Obviously you have to do what is right for you, however I think too many FS tell you to get back out there and try again after an unsuccessful pregnancy, however my personal opinion and something that took me a long time to realise is that if the treatment protocol is not right and your immune system isn't where it needs to be to support pregnancy, then it is just a huge waste of money, not to mention the emotional costs of doing cycle after cycle with little chance of success. Not sure if you have the book already 'is your body baby friendly'' but it is a reassuring book to read and you will see that Dr M's protocols are similar to Dr Beers. He too was criticised heavily for not being scientific enough, however there are many many woman who would not have their baby's today without this controversial treatment. My FS believes that what DR M is doing is not new, but simply pushing the boundaries for known treatments that are already used to sort the immune system out but using much higher doses. He is very interested in DR M's work and fortunately willing to work with him. We do have a facebook group that you are welcome to join, there are lots of success stories on there using DR M's treatment protocol. Many of the ladies got pregnant on their first attempt following his protocol, however some have taken a couple of times. Once again, I am so sorry for what you have had to endure and I hope that your next treatment protocol is the one that works. Great news about having some frosties on ice

  4. The Following 2 Users Say Thank You to Hope06 For This Useful Post:

    Abundance1  (14-10-2013),sootymay  (14-10-2013)

  5. #793
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    Sootymay - sorry I do not know enough about Humira to be able to give you any advise. What are you using it for? Is it to lower NK cells? Is this your first cycle with DR M? I wouldn't be worried about the intralipids. Not exactly sure how it works considering what it is made of (soy and eggs) however my understanding is that intralipids flood your body with good antibodies. My FS has told me they use intralipids for patients in intensive care as a regular course of action. Obviously if you are using high dose steroids you will have a compromised immune system so you just need to be super careful not to catch anything. In saying that I have a 7 year old who tends to bring everything home from school and haven't had any major complications to date. Maybe you could look at Google Scholar or pubmed to try and find some journal articles about the risks vs benefits of combining steroids with humira. Good luck

  6. #794
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    Abundance - OMG I am so sorry to hear that. I'll PM you soon. Hang in there. _______________ Hope06 - thank you. Dr M was umming and aaahing about the Humira and when I asked why, he said it is very expensive (I've found out in Melbourne $1700-$2,000 - non rebateable) and if we had more time before I leave on the 5th, he could have tested me again, with the steroids etc on board, to see if they had suppressed the NK Cells enough, without having to use it. I ended up saying, lets just run with it, in the scheme of things the money is just more money to throw at it, and at the credit card! I have been doing a tonne of Google searches, but ran out of time yesterday, so I guess back to mulling this over and chatting to a few ladies privately that are considering it too. I left a message for Dr M to call me, so hopefully tomorrow he will call, and I can ask a few more questions. If there weren't those risks I read about, I wouldn't be questioning it as much as I am now.

  7. The Following User Says Thank You to sootymay For This Useful Post:

    Greta76  (19-10-2013)

  8. #795
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    Hello ladies,

    I am very excited to announce the safe arrival of Oliver on 8th October by emergency C Section.

    He is perfect in every way. We have just got home today and I still well up at our little miracle man who I truly believe would not be here without Dr M.

    I hope that all of you get to experience this amazing feeling in the not to distant future.

    Scruffy xxx

  9. The Following 7 Users Say Thank You to Scruffy For This Useful Post:

    cappy  (15-10-2013),Greta76  (19-10-2013),Leomum  (14-10-2013),SimpsonDesert  (14-10-2013),sootymay  (14-10-2013),StillHope  (14-10-2013),timetoshine  (14-10-2013)

  10. #796
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    Scruffy...congratulations on the birth of Oliver! Enjoy every moment and rest when u can. Don't forget to accept help when u need it. U will wonder where the hours go just staring at him! Take care xxx you give the rest of us hope xxx

  11. #797
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    Congratulations on your little man. Can I ask what CGH is on your signature? Also were you seeing Dr M when you had the biochemical? Did he then do further testing and change your drug protocol?

    ladies how Do you add our signature?

    Hope06 I have orders Dr Beers book so looking forward reading it. Thank you for sharing. I suppose I'm hoping Dr S can review my test results and advise his opinion as to whether I need Dr M's treatment. My FS is quite adamant I didn't need it. So confused.

  12. #798
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    Scruffy!!!!! Wow I'm soooooo happy for you and DH!!!!! And thanks for sharing as it really should give us still hope:-)

    keep us posted :-)

  13. The Following User Says Thank You to StillHope For This Useful Post:

    Scruffy  (02-11-2013)

  14. #799
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    Abundance..hugs and thoughts are with you xxxx

  15. #800
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    Abundance, I'm really sorry about your years of devastation!!! There are no words to make the past better.
    you are an amassing and strong woman!!!!

    I also red your story and I hear you. I am with dr M as well, I'm not pregnant "yet" :-) as I'm not as far yet, but with the book you are going to read and all the success stories here I believe we are in best hands with dr. M.
    there are some FS out there who will support dr.m. There is one in Melbourne. Dr.nick L.
    I personal don't believe in just trying again and again and hoping for good luck! We all have been there and that's why we are still here! Now I think we found the right tool and that is dr. M :-)
    i put all my hope and trust in him and I'll keep you posted how I'm going as we will have one circle before Christmas.
    Last edited by StillHope; 14-10-2013 at 20:22.

  16. The Following 2 Users Say Thank You to StillHope For This Useful Post:

    Abundance1  (14-10-2013),sootymay  (14-10-2013)


 

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