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  1. #451
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    Hi ladies,

    just a quick question - have you always had to stay over in the hospital when doing intrallipids in Sydney. I have my one year old at home so I would prefer to leave after the infusion is done but apparently there is some issue with the health fund and needing to stay overnight. Has anyone ever looked into this?

    ps I'm just over four weeks pregnant - yay!!!!! It was our third attempt this time round with our precious cgh tested embies and Dr M's treatment. Hopefully this is our goodie!!!

    thanks

  2. #452
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    Yay sweet lemonade! 🎉🙏✨so happy for you!!! Amy betas to share with us? From what I've been told you can leave after midnight. I wasn't done until almost 11pm and its a 3 hr drive home for me so I just stayed and left early the next morning, but if you are close by I don't see why not?

  3. #453
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    Congratulations sweet lemonade! I think it is possible to leaveHurstville on the night. Problem is it might be late if they are running late, I didn't get off drip till after midnight.
    Lissy: thanks for the updates, good to hear Bubb all well, you have amazing strength!
    Bella: massive congrats!
    Crofty: good to hear Bubb is well, sorry to hear you're out of sorts, hope you get through it.
    B123: good to hear all well;
    Sandy 1: good luck!
    Good luck to the others.
    Afm: got first blood test to check ovulation levels today. Just wondering what diet people are on, anyone avoiding coffee, sugar during tww or earlier?
    Flowers

  4. #454
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    Flowers, I am gluten free all the time and dont drink coffee, but I did try to cut back on sugar and eat healthier. I also stopped drinking from the beginning of the cycle and dh also drank less, especially around o time. I have no idea if it helped but I wanted my body in as good shape as possible to give us the best chance

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    flowers8  (08-07-2013)

  6. #455
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    Oh congrats sweet lemonade!!! Here's to another Dr M miracle! Hope this is a keeper and bloods keep rising

    Flowers, I stopped drinking coffee when I tried naturally through acu and Chinese herbs - about june last year. i switched to chai latte and put too much weight on, so when I started loosing weight with calorie counter and started my running and swimming regime (put on hold since transfer) I started to drink decaf coffee - with honey (no sugar) I still drank black tea, until I got my BFP and have since bought decaf black tea bags if I feel like a cup of tea. I also don't really drink too much coke and if I feel like a soft drink, I tend to drink a fruity one, ie: fanta, lemon lime and bitters or passiona, and also have been drinking some ginger beer to settle my stomache at night times. I also eat some chocolate - but don't over indulge as I know that your not really suppose to, but if I feel like eating something, I will!!!

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    flowers8  (08-07-2013)

  8. #456
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    Hi Everyone

    Thought it was about time I joined you ladies in here. Its kind of funny having this thread & the FB group... I keep popping back & forth to make sure I know the latest news!

    Kiwi- I cannot begin to imagine the world of pain you have been through and are still in . I sense from your posts that you have an amazing inner strength and you will bounce back from your tragic loss. I hope that you're holding up OK as you go through the grieving and healing stages.

    Lissy- what a strong fighter your little bear is! So many twists and turns in your pregnancy already, far more than anyone should have to endure especially on top of a crappy TTC journey. So pleasing to hear some calming news at long last! So how do you stay occupied on bed rest all day?

    Sweetlemonade- congrats! Your news is very encouraging for me as I'm doing my first transfer with CGH embie and Dr M's meds in about 6 weeks.

    Crofty- following you around in 3 threads now!!

    Flowers- I have done cycles where I've fully detoxed, and then others where I've ate & drank as normal. I also spent 21 months grain-free (which was gluten free AND all other grains). None of it ever changed the outcome for me. Now I have a more blase approach and won't deprive myself if I really want something. BUT I can do that in the knowledge that I've tried the super healthy regime first. If you haven't done that in the past, then you have nothing to lose by trying. Good luck with your BT results!

    Timetoshine & B123- your pregnancies are progressing to textbook perfection it seems. Very happy for you both!

    Scruffy- not sure if you would remember me from the CGH thread (I was Lindylou78). I am so thrilled that you finally got your BFP!!

    Lite- I only recently realised we were already acquainted in the CGH thread too! Your new protocol sure is a whopper! Everything crossed that it is the winning combination for you. Are you still doing CGH?

    Festivalgirl- are you still around? I just wanted to say your earlier posts in the #1 version of this thread were so informative, and we have the same FS .

    Bella- hope all is going well at home with your gorgeous DD!

    Hi to
    Hope, StillHope, Yellowbird and the ladies I've missed

    AFM- I needed some encouragement from my fellow Syd IVFers
    Nat & Bella to go see Dr M as I was ready to give up after 6 failed transfers. I couldn't ignore the advice of 2 UTD ladies (now graduates!)... so here we are. The last 2 cycles I was on Bondi protocol from my FS, but clearly I need more than that. My main issue is VERY high anti-thyroid antibodies and I have a secondary issue that Dr M picked up via the local bloodwork (some 'imbalance' is all I know). Dr M seems to think he can help us so we did a fresh round of ICSI/PGD and have 5 frosties altogether, 3 confirmed normal and 2 'unknown'. I just started my immune protocol last Friday and all going well should be having transfer in the 3rd week of August.

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  10. #457
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    Simpson (LindyLou) I know exactly who you are!!

    Welcome and glad to see you are back on the bandwagon, I'm sure that uterus is not barren ;-)

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  12. #458
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    Hi flowers, I heard gluten free and sugar free should help, but I didn't try sugar free yet, as I think I couldn't cope. I eat dark chocolate if I need something sweet. I had 8 transvers before and healthy food no coffee no tea, plenty of disgusting Chinese teas and acupuncture didn't help. Now I'm off coffee and tea again to try to be in my best health (if that is still possible) but I guess if you try all this good things it will be a good way of healthy living.

    Hi Simpson, welcome back and good luck with your transfere. Great numbers on your frozen babies. Hopefully you just need one

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  14. #459
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    Hi Flowers
    I didn't cut out sugar but don't have a crazy amount anyway. I don't drink too much caffeine so kept it as is, a cup of tea in the morning (haven't stopped that now I'm pregnant as I did with DS and I missed it so so so much so decided preg #2 I would savour it), and if I really want a coffee in the afternoon I will have it(about 2 x week) I I did that from O and continuing.
    What I did do was eat fresh pineapple core (note core only) from day or two before transfer for about a week, kept my feet warm (apparently warm feet = warm uterus), no ice cream or anything cold to eat and no baths and tried to relax.
    Turns out the one that worked (mind u was my first on immune meds) I had the most stressful TTW ever, DH badly hurt his knee night before transfer (morning of transfer i was off sorting DS for kindy, getting endone and crutches and helping DH in/out of car to come to transfer) and he couldn't do anything but lie on couch so I did everything for him and DS and only now 1.5weeks after his op is he mostly back up and running (I'm now nearly 8 weeks). I was convinced it wouldn't work but here I am. I think all u can do is what works for u. X
    Love to everyone else xx

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    flowers8  (08-07-2013)

  16. #460
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    Going back over a few questions posted/welcomes due in last week or 2 since surgery, mammoth lissy post, gawd this has taken me days to compose 😬😜 :

    Kiwi - still thinking of you & your family and pray for your healing. We will all be here when you are ready to try again and support you all the way. xx

    Sandy - I inject clexane in morn, but doesn't matter as long as around same time each day. I started clexane on Day 4 of cycle. I don't know why anyone would say from bfp? Isn't the blood thinning supposed to help with implantation too?? I could be wrong. I take a shed load of other supps for mthfr, but I have most severe form and consulted doc in USA for them. Mainly high dose b vits (1000mcg sublingual b12, lots coq10 ubiquinol version, high dose fish oil and many others) but all this is specific for me, so hopefully you are covered with your megafol & multi vits. I also need to take 5mg activated folic (5-mthf) which is way more $ as my body is missing the enzyme to break down normal folic. But again I have most severe form, and all forms have different indications and most girls on here get enough 'push through' on megafol ikywim...like enough should get absorbed of 5mg cause women only really need 800mcg normally. Hope that makes sense. When do you start again?? All the best with your little frostie 🙏✨🙏
    And sandy yes to the hospital, but I have been there with my nana in ICU and they were brilliant, not sure if it was just a one off bad night (and was after midnight). More importantly if you are being managed by Ong then you are fine as that's his hosp. They offered me that night for him to come and treat me but due to fact he had not approved my huge protocol I felt it safer to get to my fs's hosp. And aspirin/clexane was fine as I vomited for 14 hrs straight before surgery! So last doses were sat morn, surgery 2pm Sunday, I guess they just factored it in.

    Flowers - what B123 said about intralipid, supposed to be 7-10 days for IVF I think. Although I had it on day 4 and day of EPU, then as soon as got bfp. So I guess it can vary. Day 4 was 15 days before transfer and EPU was 5 days before transfer. Just read you're back on!!! All the best!!!🙏✨🙏
    Diet wise -
    I eat gluten free (mainly started a year ago for fertility, but just feel better for it also).Reduced to one proper espresso a day, didn't quit red wine (glass or 2 a few times a week, my usual, but pinot noir apparently best for antioxidants), a few squares of dark choc each night. Infact my fs didn't even want me quitting any of it in tww or even now preg (the wine though just a glass with dinner if I want it)! He believes it all helps you keep relaxed, not stress about such things and a glass of wine with a meal if you want helps relax the uterus. Infact when heavy bleeding I've been told to have a shot of brandy or scotch before bed (that was only night of heavy bleeding & cramping, not every night lol)! I haven't been able to stomach alcohol for weeks (the smell revolts me!), but FS just says don't force it down of course, but no need to abstain within reason. He is unconventional/old school, but says studies back it up, esp when cramping in preg small amounts help - and 1st FS to get us preg and nursed us through many scares so I trust his judgement. A tea or 2 if I want on top of my morn coffee later in day (nothing decaf as the chemicals in decaf are way worse than caffeine, unless you buy the proper distilled Swiss water technique stuff, but that's just my opinion from naturopath's I've consulted, each to their own😊). I don't eat much sugar (being on steroids we are much greater risk for gestational diabetes already), only use natural sweetener in tea only - stevia (natvia brand in a green cannister). Also lovely sugar free hot choc at night by same natvia brand with stevia as sweetener in a dark brown cannister. I only use full fat dairy products too (best for fertility), and A2 milk only as it has less irritants in it. I usually eat pretty much grain free too (like a paleo + dairy thing as I enjoy it and helps keep weight & bloating down on massive steroid dosage, cycle after cycle - nothing will save you from the old 'moon face' though! Lol), lots of protein, veges, fruit etc but since preg I just eat what I can keep down! Cheezels, icy poles, choc wedges, toast, hot chips, whatever!... When i get past my ms (hopefully soon!) i will try to re-focus on more healthful foods again. I used to walk most days about 6km and yoga a couple times a week, but done diddly squat since transfer!! As soon as cramping started I stay put, then all the hosp scares and ordered bed rest. I don't care, my body is on the back burner for this bub (and has been for years through all the cycles, so just try to do my best without too much pressure). My body hasn't blown out too much but I have the full round 'moon face' from the steroids that's for sure!! And the lovely facial hair 😝...All for a good cause! I cut out caffeine/alcohol/everything enjoyable for years off and on and did chinese herbs/acupuncture in efforts to fall preg naturally and with IVF and it didn't make a damn difference, so I loosened up a lot this year. But like Simpson said, if you haven't tried it for yourself it can't hurt, it might agree with you, just don't bother sending yourself crazy with it!...I clearly needed heavy duty immune treatment, so I honestly don't think any of that stuff helps a lot when you have more serious medical issues at hand...but again that's just me, and we all have to work out our own comfort zones😊 I'm a pretty healthy person generally and that's good enough for me. Oh, I did do fantastic green smoothies in my vitamix in months leading up to bfp for 1st time (fruit, spinach, kale, raw organic egg, flaxseed)...but at parents on bed rest so no vitamix here...plus not sure if I could tolerate taste right now. And same as yellowbird, yes to the warm feet, pineapple core, kiwi fruit (both in my morn smoothie) all in tww...wife's tales, who knows if they helped?! All the best! 🙏

    Onelove - finally wishing you a big welcome!! My brilliant specialist in Brisbane is Warren de Ambrosis, but he is an IVF doc. I know there are a few ladies here lucky enough to not need IVF to actually fall preg, but like you the very very hard road of many miscarriages. They all seem to do well with consulting Dr Matthias in Sydney to manage the immune side. I reckon that would be a great place to start. I couldn't find a reproductive immunologist in Brisbane so I use wazza & dr m together and talk to dr m by phone consult. He will send you all the blood tests required by email/post. If you need to do intralipids in Brisbane you might need to shop around, ask gp/hospitals/the miscarriage clinic? Seems not many are open to idea unfortunately so you might find it hard going. But may as well try everywhere, also you might not need to stay overnight, I've never had to, infusion actually only takes 3-4hrs. Lucky me it costs nothing as included in ivf & healthfund hosp excess already paid for year ($500). Dr M just does it differently than my doc, and some have to fly to see him for it. Unfortunately I would think wazza and other fertility specialists only administer it for their own patients. Don't know about dr m website, but just call and gwenyth will send you out info on him. Phone consults are not claimable through Medicare unfortunately, but if you factor in flights to see him then it's still saving $ I guess. Best wishes🙏

    Stilllove - finally a big welcome to you too!! Sorry I have been MIA with all the stuff happening and not feeling too flash, really hope you find the answers you need here. This group has a lot if miracles going on and I hope it's catching for you!! It's amazing the difference the right immune protocol can make when you need it. Funny you mention I could write a book because I am! 10,000 words written so far but have not managed to add anything in past month due to hospitalizations etc but the story grows and I can refer back to my FB & BH posts. I started it when our beautiful little 6 month old kitten Rocky died a few days before our last EPU...which turned out to be our 1st ever pregnancy (1st time on mega immune protocol too). I really feel Rocky had a hand in all this and he opened our heart to love again after we had been hardened by years of failed cycles. He will always be our 1st baby and we like to say has given us training wheels for parenthood. About the age thing i just want you to know that I was told my eggs were those of someone in their 40's (at 34) with low amh of about 4.1, given the whole donor egg talk after 11 cycles since 2009, not a single bfp. We were advised to take saizen growth hormone this cycle for 1st time as none made it to blast last couple of cycles and used menopur as the stim (highest dose), also synarel nasel spray. So if you are not ready to give up on your own eggs don't give up! It can happen and only takes 1 good egg, and this was our 1st time on the huge immune protocol, miracles do happen!! Best to you✨

    Sweetlemonade - congrats!!! Another bfp with the mighty Dr M protocol!!! Well done and I hope things run smoothly for you in the coming weeks. OB told me i will get 'pregnancy fit' sometime from 12-16 weeks, boy am I looking forward to that!!👍

    Litefantastic - so where are you up to now in cycle? You must be in full swing!!✨🙏🎉 I so hope this us your time and wish you every bit of luck, blessings, positive thoughts - whatever works for you!! Keep us updated!✨

    Hope - we have been talking on FB, but couldn't not mention you😜...you have been a rock for me, my wazza buddy, and I appreciate it so much. I pray the next step in your journey brings everything your heart desires when you are ready to move ahead after weighing your options. xx

    Crofty!! Sorry I have not written much to you!! I know you too have been going through cramping and bleeding, it's so scary isn't it. Glad to hear you have made it back to work safely (although a break is nice...prolonged bed rest can make you batty!) Has the ectopic embie resolved itself or causing you any further pain? So sorry you had to lose that little one, but that little one could be the very reason your other bub has survived, I've heard of one twin helping the other thrive somehow at implantation. I'm not sure if the NT scan is the downs screening, but any invasive test posing any risks we will not be doing. The downs one I think just measures the skin fold at back of neck, which is not invasive. If we come back at higher risk than normal it will not change our mind about doing further testing if it has a miscarriage risk (the test with the needle I think?). I'm a bit clueless as to what the different tests are called (NT etc) with all the last few weeks dramas, but sure to read up on it now I'm feeling a little better. And yes I am exhausted all the time!! No issues with sleep now lol...And no sore boobies either, but terrible pimples/acne all over chest and the full face fuzz (lucky I am blond! Cause I ain't waxing!) which must be all the steroids. You know how the body builders on steroids get all those disgusting pimples?! That's me - Yuck!! All over/under chest...so gross! And never had any there in my life😝. And the gas - OMG!!! have told hubby it's his baby producing all of it lol...gawd do I stinkaroo atm😂. For constipation (which comes and goes, esp if I need a zofran wafer for ms as I need to keep all these bloody pills down) I drink gallons of pear juice, and if real bad and not gone for a couple days i have a sachet or 2 of movicol at least 2 hrs away from any meds. Hope things continue to settle for you🙏

    Scruffy - how are you feeling? How many weeks now? Was just checking back over your last posts to see if I missed anything, we don't want to know gender either - one of life's great last surprises! (I get it will be a great surprise at any stage, but we're hoping none of the scans give it away and have asked doc to keep screen turned when there is a chance of seeing incase we see something!)

    Romy - did you end up getting to the bottom of those surface marker results? Any further intralipds needed? On any drugs still or all weaned? You are almost a 'normal' pregnant woman now 😜...except do you need to stay on clexane to close to birth? Pretty sure I have to and Bella had to. Congrats on finding out you're having a little boy!!!🎉😘✨

    Yellowbird - how are you feeling? I think I remember from FB that you heard one HB? And boy what a time for hubby to injure himself!! Just shows this bub was going to make it through anything with you so busy!

    Hummingbird - are you still around or going for any further testing?😊

    Bella - are you home yet? Hope you are enjoying that beautiful girl of yours and recovering well!!🎉✨😘

    B123 - How are you feeling? Well I hope!! Congrats again for your little miracle and thanks for your kind words. To be honest yesterday is the 1st day this has felt real with all the dramas of past weeks feeling like rug would be pulled from under us at any time, so if you are preg and not much symptoms try to enjoy as you will probably feel yuck soon enough! My nausea/pimples/facial hair didn't kick in for a couple weeks 😜

    Lillac - saw a post from you and then saw roll call and you are due in August! You have supported and congratulated me a few times (thankyou!) but I can't seem to find much about your journey on the thread? Were you a non-dr m patient but needed immune treatment just by FS? How are you feeling with only a few weeks to go?!✨

    Simpson - just saw your post! Trying to catch up like me hey lol...now I get why the FB page can be easier to keep track, but know it's important for us to keep BH updated too😊
    So you're back in, and with all the right immune stuff!! This is your time girl, woop woop!! I keep occupied with disgusting reality tv, lots of sucking on crushed ice, eating every few hours to keep ms at bay, trying to keep up with FB & BH, so I actually feel pretty damn busy lol! Have been super tired since surgery though, so naps too help pass time. I've been approved to go back to work at 12 weeks (15th July), thankfully I only work 3 days/week. So next week I need to get this body moving more to make sure I can handle work...been nowhere but bed/couch/hospital/scans for weeks now, so will try to get back into life a bit next week. It's also a full time routine scheduling 45 medication pills, 28 supplements, clexane and then trying to figure out how to fit movicol laxative 2 hrs apart from pills without chucking! Lol😂...but will be weaning a few drugs in a couple weeks thank god, but it sure keeps me busy!!

    Well that's me updated I hope I didn't miss anyone!! 😘😘
    So hopefully now I can go back to posting like a normal person and just keep up with smaller posts addressing current issues (yeah right 😜)...promise to try!
    Last edited by lissyloulou; 05-07-2013 at 01:11.

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