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  1. #351
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    So sorry to hear of your news litefantastic :

    Kiwi - still thinking of you and DH and echo everything everyone has said and shared on here with you, we would never judge you or DH for any decisions you are forced to make - just know that we are here to support you in any way and capacity you need just as you have been there for so many of us during our hardest times - xoxo Crofty

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  3. #352
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    Kiwi, still thinking of you and family daily, and didn't feel it was right to share all this in past few days, but I hope you don't mind me sharing it now. You have been so generous with your support of us all and I think you wouldn't want me to not post it.

    Warning : mammoth post!!😜

    Just posting my update from Thursdays scan. I agree with hope, feel as if repeating myself but think it's important to keep BH updated for those not on FB.

    Also think it's important every now and then for one of us to write a post on BH explaining that we have a private reproductive immunology group set up on FB...for the main reason (I think, aside from the privacy thing that some may prefer) that as our protocols are so complex, and can be far more involved than regular IVF that it is often hard to follow where everyone is up to and ask specific questions, and then refer back and add info or research papers etc like we are doing on FB. So that is why we now have a FB page and anyone on the RI journey is welcome to join. Feel free to just cut and paste this post (or I will) every now and then (as sometimes people read along and don't post for awhile, hello me😛) or when you see new faces pop in. Just an idea so we include everyone.

    Anyway, for me, whether I update on BH or FB will be up to my mood and which I happen to check in on first! So I will probably just cut and paste relevant posts between both forums, so if you've read them already on either site just fast forward... especially as I tend to get wordy!! Lol

    So my update right now is :
    Thursday scan went great. 7 weeks 3 days (now 7+6)...bubs measuring 7.5mm and HB 120pm...rupture not healing much so although it hasn't gotten worse I'm on real strict bedrest and looks like 3 rather than 2 weeks off as he would have liked to see it close a bit by now. Everytime I move too much (had to do stairs when came home from parents last night) I get very achy and a little spotty. But it's all old blood, it's more that he can see the tear on the screen near where the baby's sack is. Wazza said last week if you were my mistress I'd be worried as you have a good chance, this week had said if you were my mistress I'd slit my throat! Haha!! And then he released me and said you won't be seeing me again!!😥 I am seeing high risk OB next thurs. he gave us a little congratulations bag with a tshirt for our baby that says 'I'm a wazza buddy'!! This man is just one in a million. We were a little nervous to be given the congrats bag so early, but wazza must feel confident we'll be ok. I can still continue to do weekly bloods at his clinic & intralipids monthly as long as I need them! What a man! As I'm not sure how difficult/expensive it will all be through new OB, or even if he is able to arrange it at all.

    Did bloods early on thurs (weeklys for dr m due Fridays) as we were there anyway - hcg - 58,845, prog - 371.7. The hcg worried me a little but apparently it can plateau a bit by 7 weeks, as long as still healthy rising, which it is. So glad we took the extra progesterone that wazza advised as I know nk cells can make it harder for us to absorb, as even on 4 x 400 (increased from 3) I dropped from 517 last Friday to 371.
    Wazza booked me in for another intralipid next day just to try to help the rupture heal, he says he doesn't know if it helps, but can't harm. Dr m will prob think it's overkill, but I'm letting wazza take lead on this right now. Hopefully it doesn't mess with the 'too little inflammation' thing now as implantation has already occurred? Doesn't matter anyway, we are trusting what wazza says and this man is doing everything to keep us pregnant right now.

    Also he said his son has decided to do another paediactric field so not training with him anymore. He said he might be dead by next year, but if he's still alive when we come back he will be there! Eventhough we would be extremely blessed and happy with one healthy bub, the only reason I was asking is cause we have egg quality issues so want to keep going as soon as possible while the going is good (I realise our urgency might change with a bub in the house though! And also don't want wazza to retire again before we come back!). He said no worries with c-section or natural we can come back at 6 months, earlier like 4 months if not breastfeeding. But not to rush and enjoy our baby....he said funniest thing, thinks I will go c-section, the boobs are for sport (fun) so don't stress about breastfeeding if I can't do it too long, the tummy is for delivery, and further below is for more fun! He said tell my OB that from him with a big belly laugh!! God this man is a corker!! Was a very happy day

  4. #353
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    Great news Lissylou on being released to your OB, keeping resting up and that bean little growing strong

    The aching joints have become a (neg) sign for me, they only occur during the TWW and it's never been good news. Used to think these aches were due to high ANAs, but according to Alan Beer's book it is also a symptom of high CD19+/CD5+ cells too. Dr M said the steroids would help keep these suppressed, so hopefully it's just my dosage needs to be increased, in addition to the IVIG and the LIT

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  6. #354
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    I have also read that these aching joints can be a sign of the NK cells flaring up during the tww. I guess that is why Dr M gives higher doses following EPU, perhaps in anticipation of that happening. I also get twinges during the tww but also get this when taking steroids but they appear to be a lot more frequent during the tww.

  7. #355
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    Kiwi - We are all thinking of you today. Sending you lots of love and strength to get through the tough decisions you and DH need to make today. Please don't ever worry about people judging you. Nobody could know what it is like to have to make the kind of decisions that you and your DH are faced with right now. You are an amazing person and already shown so much love and sacrifice for your little chilli. We are all here to support you through this in whatever way we can

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  9. #356
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    ^^ yes kiwi, as hope has said we are all thinking of you today and sending as much strength, love and support as we possibly can xxxxxxxxx

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  11. #357
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    Thanks all, woke again crying this morning and have been on and off all day everyday since We found out last Weds...keep trying to research to see if there's any success stories but nothing, it ccomes down to the severity off the kidney damage, joined a FB group childhood kidney support to find out from parents already going through what we may be faced with if we hold on to our lil Chilli. They have also been very supportive & real..I have found out if our bub does survive past birth and that's a big if then the road is very hard & long for all involved. most have said that you learn to deal with it & so does the child but their posts and pics of their lil ones with tubes hanging out their bellys & in hospital just looks horrible... a few have PM me and told me as much as they love their lil ones if given the choice they would have not put their child through it...me & DH have also talked about what if we don't get preg again (there's no guarantees) &. we have both agreed if we don't then that is not a reason to hold on to lol Chilli if tests come back still not good today as that would be very selfish on our part ..as there is no fluid in the sac my poor lil chilli can't move and thats prob why I haven't felt him....please continue to post your good news stories on here as this is still an exciting time for those who are UTD.
    I will let you all know how we go today but I have prepared for the worst as he other tests weren't good & the specialist wasn't hopeful either.

    Kiwi
    xoxo

  12. #358
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    ❤❤❤ to you Kiwi, DH and lil chilli today xoxoxo

  13. #359
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    Love to you and dh kiwi xxxx


    Me 32 / DH 36
    2013 March FET PGD, Bondi Protocol + Intralipid * BFP due Nov 2013 *

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  15. #360
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    Thinking of you today kiwi. All my love xoxo


 

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