I'm so glad I posted in here.
It's not a nice thing to feel alone when all of this is going on and ranting to you lovely ladies is a life saver.
At this point no tests are being done apart from stool and bloods.
They are doing the cal producton every 2 weeks.
This shows the level of bowel irritation.
We had to stop the dairy free diet after 4 days. Ds2 wasn't eating or drinking the neocate. He was off everything but boob.
It was so hard as we had started to wean.
But now he is on 2x 200ml bottles of fortini a day and eating lunch on a regular basis. All other meals are hit and miss though.
I wish I knew what was the cause so I could fix it.
He is still not talking. Not even babble. Still no word from the ST either. They said 2 weeks. I'm going to have to start chasing that up now.
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