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  1. #1
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    Default Strawberry Haemangioma advice

    I need some advice from anyone who's baby had a haemangioma while in their infancy. My baby has a smallish one and i've never had it looked at by a professional but my maternal child care nurse told me what it was during a recent visit. She said it was nothing to worry about but it is getting larger and slightly more raised and i'm wondering if i should get a professional to take a look at it. Is it possible that it's something else other than a haemangioma which should be diagnosed by a paed? If so, can anyone recommend a good one in Melbourne? Many thanks.

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    babycake is offline Bubhub Award Winner - 2011- Funniest Thread Award
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    Hi there,
    my daughter born with one each on her face and back. When she was 3 weeks old the one on her face started growing on her face and almost doubled in a few days. I would see a paed to put your mind at ease, if you think it is something else, what do you think it could be?
    eta. Quite often nothing will be done unless the child is in pain or it prevents feeding etc.
    Last edited by babycake; 08-04-2013 at 11:42.

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    Babymakin101  (08-04-2013)

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    DS has one near his private bits. It did get bigger and raise. He's now 2 and it started to fade away a few days ago. I'm seeing his normal skin tone come through now.

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    Babymakin101  (08-04-2013)

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    My DS 1 has 2 in his liver. The Pead said that there is medication available that will shrink the haemangioma but it's generally just used if its causing problems

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    Babymakin101  (08-04-2013)

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    How old is your baby?
    DD had two at birth, one large on the top of her foot and a small pea size one on her head. They both grew and became raised till she was 8 months then they started flattening and the one on her foot has faded a lot. We were told to wait and see because they usually go away on their own by the time they're 6 yr old.

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    Babymakin101  (08-04-2013)

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    My dd is 11 wks old, she has one on the crease of her groin. It's about the size of a 10 cent piece and has become a little bit more raised in the last few weeks. She also has a small one on her left shoulder, it's the size of a pinky nail. I worry the the groin one hurts her because its right where her keg bends. The hospital paed just told me not to worry about them but its hard not to!

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    Babymakin101  (08-04-2013)

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    Hi there,

    DD (now 10mo) has 4 strawberries in total- she had them from birth. Some have stayed the same size, some have grown.

    The main one she has on her flank, just above the band of her nappy. It wasn't too bad at first, but by the time she was 5mo it had enlarged, with the main growth being it was growing outwards from her body. I'd say 1.5 x a 50c piece in width, and about 1.5cm-2cm in depth.

    2 weeks later I noticed a small brown spot in the centre, like a tiny scab. I also noticed when I undressed her there were brownish spots on her clothes, as if it had wept, although I could never see it actually weeping. This got worse over the next 2-3 days... basically it was ulcerating (approx the size of a 20c piece). Gross and v.worrying!

    Long story short we ended up in the emergency room of 2 hospitals + seeing 2 GPs + a skin specialist before finally being able to get into the Vascular Birthmark Clinic at Randwick Children's Hospital in Sydney. They were SO helpful, and it was a relief to actually have an action plan, rather than the 'wait & see' response we kept getting!

    No one else we saw seemed to want to do anything, which was tricky as she was obviously in distress- crying/screaming and we couldn't put anything on it, as it would catch and weep and just get worse, so we had to cut holes in all her clothes, which is fine whilst we were using hand-me-downs in the short-term, but I thought 'there's no way I'm doing this for the next 2-4 years!'

    Randwick Children's Hospital sorted it out with dressings, contact no.s, what to do, etc... such a relief!

    So my advice would be, even if bubs' marks are small/fine at the mo, go to your GP and get a referral to a similar Hospital Clinic, and get the receptionist at the Dr's to fax it thru for you (cutting out more dramas) and when they contact you email the Hospital photos of it, etc. Better than being a clueless and super-distraught mum like I was!

    Good luck! xo

    P.S. All is fine with her marks now, and they all look like they're shrinking, phew

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    Babymakin101  (08-04-2013)

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    Babymakin101,

    My eldest DD had what the GP and health Nurse thought was a strawberry Haemangioma on her face I was happy with that, however it started to get raised and appeared to have 'grown' in size and oneday she woke up with huge amounts of blood everywhere because the 'haemangioma' had accidentally been knocked in her sleep and because it appeared to be 'vascular' she had to go to Hospital to have the bleeding controlled as the blood wouldn't stop pouring out of her face.

    I was then referred to a specialist who correctly diagnosed it as not being a strawberry haemangioma but instead a 'Pyogenic Granuloma' and a month later she had it removed in Hospital. Apparently these Ganulomas are also known as 'Eruptive Haemangioma' as well.

    My other daughters each have a stawberry hamangioma but all remain flat and have had no issues and are ok, but OP if at any time you are concerned, I wouldn't hesitate to see your GP to get a referral to a specialist in case it's not a heamangioma like what we were originally told our eldest daughter had.

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    Babymakin101  (08-04-2013)

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    I had a strawberry on my eyelid as a baby, it was gone by the time I was 2 or 3. I looked after a twin that had one on his eyelid as well and I know they kept an eye on it because apparently, depending on where they're placed they can eventually effect vision. His has begun to get smaller as well. I think in general they end up not being a worry but depending on place, size, if its getting bigger rather than smaller, etc. - they are meant to be monitored to ensure they don't effect vision.

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    Babymakin101  (08-04-2013)

  18. #10
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    Babycake - I'm not sure that it is in fact a haemangioma because when i google pictures of what they look like my baby's doesn't look like the pictures which are quite solid red lumps, his is more of a skin coloured lump with some 'red bits'.

    Ciaomamma - My baby is currently 3 months and it's only just started to raise quite high off his skin.


 

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