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  1. #21
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    My neice had a problem with gluten which they identified by cutting out gluten around 1 due to explosive nappies, tummy cramping and her growth stopped. She had some testing which was inconclusive to determine if it was an allergy or coeliacs, they wanted to give her a chance to 'grow out of it' before invasive surgery to test properly. So until she was about 3 they just stuck to 100% gluten free - she was also sensitive to cross-contamination - until the specialist felt she was old enough to 'test' on gluten again. Thankfully she did grow out of it.

    I know the things my brother/SIL found hardest were the 'hidden' gluten products (eg. soy sauce, some brands of rice crackers), cross contamination (especially at daycare) and other people's attitude that 'a little but won't hurt' ... thanks, but they're not the ones who needed to deal with days of screaming after!

    You'll probably need to become a bit of a compulsive label checker and re-check labels every few months as ingredients do change. Watching my neice's experience I agree with PPs, go GF asap regardless of where you are with diagnosis espcially if you can already see the change.

  2. #22
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    What kind of specialist are you waiting to take him to?

    I am gluten intolerant, my daughter has a definite dairy intolerance, dropped weight centiles drastically after introducing solids from 50th % at 6 months to off the bottom of the chart 1 year later. She frequently has diahorrea. We had her blood tested for coeliac, came back negative. I became quite badly gluten intolerant while pregnant with her, unrelated they say, they dont even count me and my sister as having gluten intolerance as neither of us bothered to do testing, we know how sick it makes us. They say the only way to know is to have an endoscopy. They tell me not to put her on a GF diet because she struggles to gain weight and we shouldnt cut more foods out. The dietcian/allergist we saw says to give her little bits of dairy all the time because she will grow out of it. Seriously, she had diahorrea for 3 weeks after having an oreo. She only started to gain weight again after i cut it out completely. Her eczema and stomach did improve greatly after cutting out dairy, but she is still bothered by her stomach a lot, plus nappy rashes.

    Im just at a loss as to what to do, do I push for the endoscopy? it just seems so awful to put my tiny 2yo through that.

    Sorry about the massive venty hijack

  3. #23
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    ANYWAY, we eat lots of quinoa, my 4yo loves it, high in protein. Just cook it up and use it like rice or pasta.

    Most things you can just substitite, though lunchbox type foods are hard. Doing GF in a school age kid would be hard. A few weeks ago we were making really easy GF wraps, just GF flour and water.

    The woolworths macro range is great, their breadcrumbs are fantastic, i make GF chicken nuggets and DS loves them (chicken -> cornflour -> egg -> breadcrumbs fry/bake) and steamed veg. Most baked beans seem to be GF by ingredient (I can get away with trace amounts though).

    It is a lot easier to be GF once you start to move away from processed foods. Its surprising what has it in, mayonaise, sauces, lollies, chips, basically any kind of premade meal probably contains thickener 1442 is a sneaky one, oh and ham/pressed chicken

  4. #24
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    Quote Originally Posted by Pregnor View Post
    What kind of specialist are you waiting to take him to?

    I am gluten intolerant, my daughter has a definite dairy intolerance, dropped weight centiles drastically after introducing solids from 50th % at 6 months to off the bottom of the chart 1 year later. She frequently has diahorrea. We had her blood tested for coeliac, came back negative. I became quite badly gluten intolerant while pregnant with her, unrelated they say, they dont even count me and my sister as having gluten intolerance as neither of us bothered to do testing, we know how sick it makes us. They say the only way to know is to have an endoscopy. They tell me not to put her on a GF diet because she struggles to gain weight and we shouldnt cut more foods out. The dietcian/allergist we saw says to give her little bits of dairy all the time because she will grow out of it. Seriously, she had diahorrea for 3 weeks after having an oreo. She only started to gain weight again after i cut it out completely. Her eczema and stomach did improve greatly after cutting out dairy, but she is still bothered by her stomach a lot, plus nappy rashes.

    Im just at a loss as to what to do, do I push for the endoscopy? it just seems so awful to put my tiny 2yo through that.

    Sorry about the massive venty hijack
    Oh Pregnor, I'm so sorry your DD isn't well either. I understand them being reluctant for your DD to lose more foods if she is underweight, but until her gut gets a bit better she is almost definitely not absorbing what she is eating anyway!

    Have you heard of kefir? There is a theory that when the good bacteria gets out of balance in our gut, all sorts of intolerances and digestive problems will arise. When you said that her stools were bad for 3 weeks after an oreo that's what made me think she might be having trouble with this.

    Anyway, I LOVE kefir. I make it at home and we all have it regularly, and it has changed my life! And no, I am not exaggerating. Look into it and see if you think it might help your DD ( and you!). It is cheap and if it works she might not need to exclude anymore foods.

    It is made from dairy, but unless she has an actual allergy (not intolerance) to dairy it shouldn't matter. The fermentation changes the lactose and casien so 99% of people that are intolerant of those things do very well with it.

    Also, I have extra of the culture that you make it from and I'd be happy to post you some of it if you PM me your address.

    I hope you get to the bottom of it all one way or another xx

  5. #25
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    If anyone else wants kefir grains let me know, mine multiply like mad, and I'd be very happy to share.

  6. #26
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    I have actually heard of it and was thinking about trying it. I have also seen water kefir which had been bred in non dairy liquids. I'd love some if its not too much trouble

    Sent from my HTC One XL using BubHub

  7. #27
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    Not too much trouble at all, I'd love to share it with you. Just PM me your address and I'll post you some xx

  8. #28
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    For those who are having trouble with your kids eating GF bread, try toasting it and letting it cool for making sandwiches. My 6 year old coeliac niece, definitely prefers it this way and it tends to hold together better too...

  9. #29
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    We are waiting to see a gastroenterologist pregnor, we have previously seen one privately but unfortunately all the specialists we have seen privately over the last year has completely drained our savings and there is now nothing left so we have to wait for a public appointment. DS has previously had to undergo a barium swallow and endoscopy but they were not looking for gluten intolerance they were checking out the muscle around the top of his stomach as they thought it was immature and this was the reason he was constantly vomiting results came back inconclusive for both tests so they put him back on Losec which initially helped but then made things a lot worse.

    When we go back to the Paed next week I will ask about getting a referral to a dietician we have seen one previously but for lactose intolerance.

    I feel for you pregnor it's so hard seeing your baby in pain and not knowing what to do to help them and having people constantly giving you the wrong information.

    So far today I have made GF banana and blueberry pikelets which we all loved for breaky

    Lunch will be veggie sticks, corn thins with peanut butter and some yoghurt and dinner will be GF pizza as I found some pizza bases at woolies yesterday. Does anyone have a good recipe for GF pizza dough I normally make my own so would love to continue doing so

    We have decided to just cut gluten out for all of us so we don't have any slip ups with food, thankfully DS's daycare mum (family daycare) son is also GF so she totally understands the importance of him not having anything that could set him off and had heaps of recipes and meal ideas as their whole family is gluten free for her sons sake

  10. #30
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    I think there is a pizza base mix at woolies , gf can be very expensive to set up from scratch as you often need a few diff flours, xanthan gum, gf bicarb etc. What state are you in? I'm in wa, I buy a lot of my stuff online as postage is only $3 not sure about other states though. But the packets of flours at coles/woolies/healthfood stores is incredibly expensive

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