Last edited by lambjam; 04-04-2013 at 13:18.
Thank you all so much for your replies it has been a long hard road made especially hard by incorrect diagnosis and being told "he will outgrow it" so far today we have had no gluten and he has not complained of a "tummy hurt" yet although way to early to say if that's the cause at least he is having a better day and seems to quite enjoy the cereal and rice cakes he's had so far
DF and I will be getting tested once we have the results for DS I have always had random tummy and bowel upset and after speaking to my mum this morning she said as a child I would complain that sandwiches and pasta dishes would upset my stomach so possibly a link there.
I have found on the Coles website a whole list of gluten free recipes but as a previous poster said it is really just basic food which we eat a lot of and I will replace our pasta with the GF kind and rice.
DS seems fine with all dairy now except cows milk which causes him to break out in a rash and have explosive diarrhea but now I'm unsure if it was the milk of the other foods he was eating. Yoghurt, cheeses and creams he seems to be fine with.
The only downsides of not having an offical diagnosis that I can see are:
1. Gluten free diets seem to have a perceived fad element to them, and it is common for people not to take it seriously, and think 'a little bit won't hurt them'. Which may be true for some, but for someone with coeliac disease even a little bit does hurt because it triggers an autoimmune response and all that follows on from that can be very unpleasant.
2. If it is 'only' gluten intolerance then it is possible to heal and be able to resume eating gluten, whereas someone with coeliac disease will need to abstain for the rest of their life.
Subbing to come back later. My 2 year old has coeliac disease and we eat gluten free in our household.
Hi Ashley, Bowel intussusception can be a symptom of coeliac, I had it 4 times within an 18 month period. It was connected with undiagnosed coeliac, and since going gluten free over two years ago I haven't had it since.
Re gluten free, rice is your friend, also corn. You can get a lovely corn couscous from freedom foods that doesn't break the bank and it tastes like corn chips, so my kids love it.
And polenta is good too - and cheap. It is more expensive, but there are ways around it, like making almond meal and polenta cakes. I often make up batches of mini fritattas and freeze them and also GF savoury and sweet pikelets and freeze them too.
My kids love corn thins that you can buy as well.
Good luck with the testing, sounds very much like coeliac, I used to get mouth and nose ulcers all the time too.
Thank you Beebs, we have just been told today that the intersusception could have been caused by coeliac would have been nice to know that when it happened we have been very lucky in that it has not happened again, they originally thought it was caused by a gastro bug he had had and the ultrasound after it was fixed showed lots of very swollen lymph nodes in his bowel but nothing more has been said about it except that they thought it had triggered his reflux and that's why he was constantly vomiting
Op - there is hope that things will get better but you really need to be patient as it is a slow process.
We eat a lot of corn thins, rice crackers and dd has gluten free sweet biscuits (?sp organ brand). San remo gluten free pasta I have found to be the nicest and we all eat it.
We have basically gone completely gluten free as a household. I found it too difficult trying to separate foods and trying to keep dd away from food. We have the occasional gluten containing food but keep it well away from her - like breakfast cereal. One thing that is really important is to have separate spreads such as margarine and peanut butter as even crumbs in these things can be detrimental.
I would suggest you see a dietician - you can get subsidised visits if you see your GP and request a chronic disease management plan and Extended Primary Care visits to allied health. You get up to 5 visits to any allied health and it includes dietetics.
Hope this helps. Please let me know if you want any more information of just want to vent - it can be very time consuming and frustrating at times.
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