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  1. #11
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    Pilbara big hugs I had everything crossed this would be your cycle. I'm so so sorry.

    I didn't mean any offence either but I felt the same way as Pilbara when I first read it. I think the idea of a guide is coming from a positive place but the only people that truly understand IVF are those that have been through it. It's a very sensitive subject, extremely tough process and varies widely from person to person.

    If I was wanting a guide I would want it to include the physical/logistics. IVF isn't a set process as the causes of infertility are so varied. I would want information on the varies procedures etc It's not somethig that you can just google a lot of the time. I am only pregnant now because of information I obtained from a thread on BH. The techniques are very specific or sometimes it's very new technology. We want a baby so we want to know what we can try to make that happen number 1.
    The emotional side really needs to be written by an experienced IVFer or in conjunction. It's very easy to say the wrong thing or ask the wrong question without even realising it. It's hard for an IVFer to read something written by someone that doesn't know the pain.
    I hope I haven't been offensive it's just such an enormous and sensitive topic.

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    Pilbara  (25-03-2013)

  3. #12
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    Can i ask, what kind of publication are you thinking of for this guide, will it just be an online guide on the BH Website?

  4. #13
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    Great idea but I think it's like trying to tell my husband over the phone how to fly a 747

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    Pilbara  (25-03-2013),Starf1sh  (25-03-2013),SummerShine  (25-03-2013),Wise Enough  (25-03-2013)

  6. #14
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    Oh Lilypily - I almost blew a valve laughing when I read that comment.

  7. #15
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    I would perhaps start with a review of the stickys, some are outdated.

  8. #16
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    Quote Originally Posted by BHCommunity View Post
    Can anyone start us off? What made you start thinking about IVF?
    I think this is a great idea. BH is the first place I came looking for information. I don't think anyone starts thinking about ivf, we all just assume it will be easy like it is for everyone else right?

    From my own experience, I wanted to know what to expect at appointments and what tests would be done. I think summershine has given a pretty good outline, although I would like to add Clomiphene to the list as this was our first line treatment. Understanding the results was a whole other language to be learned. Nothing compares to the information you get from other hubbers, they hold a wealth of knowledge.

    Other than tests etc, cost is a huge factor that most people come looking for information on, Medicare rebates etc.

    I do think something like a guide would be very difficult to write. It is so varied depending on your reasons for ART. It could be from something as basic as previous tubal ligation to someone with endo, PCOS, blocked tubes, low amh and with a partner with sub optimal sperm.

    One thing I like to remind myself on the emotional side of it is yes, it's not fair but these are the cards I've been dealt and I'm not in control (no matter how much this OCD chick like to think she is).

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    BH-community  (26-03-2013)

  10. #17
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    I think its a good idea but there a lot of guides and info out there already, clinics have good info too, etc.

    as for the emotional side i think it would be hard to write a 'guide' per se even from an experienced ivf'er..as everyones experience is quite different and that depends on so many different factors, ie reason or ivf, how long ttc, individual coping styles, relationship status, help seeking.....whether they have told family and friends or not, if your working or not...the list goes on....you also have other differences such as coping with multiple ivf failures compared to it working first attempt . Most of the guides ive read about the emotional side just generalise ' common' emotions ( shock, sadness, guilt, anger etc ) but tbh none of this info helped me to cope with my ' personal ' experiences. BUT what would have helped more was things like how to spot a dud FS and when to change clinics, reading more individual "stories" of various ppl who had done ivf ( eg young , old, single, married , male factor, long term ivf er's, miscarriage / pg loss in ivf , those who were successful and those who werent, ppl with ohss and low responder stories etc)....


    Yep good luck its complicated.

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  12. #18
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    Quote Originally Posted by SummerShine View Post
    Sorry I probably said more than what you were asking. Infertility is a terrible thing to go through. It affects every part of your life and it's so taboo.
    No that's perfect. Thank you.

    Quote Originally Posted by Pilbara View Post
    No offence meant, but I don't think that you can write a 'real guide to IVF' if you haven't experienced it...
    I agree with Summershine, at the very least, you need a co-writer...
    No offense taken. I don't think I explained myself clearly in the first place - I wouldn't dream of writing something as complex and sensitive as a guide to IVF by myself - my co-writers = you guys. Or more aptly, I would act as a mouthpiece for the wealth of information that the forum members have. Apologies that I didn't make that quite clear originally.

    Quote Originally Posted by SummerShine View Post
    If I was wanting a guide I would want it to include the physical/logistics. IVF isn't a set process as the causes of infertility are so varied. I would want information on the varies procedures etc It's not somethig that you can just google a lot of the time. I am only pregnant now because of information I obtained from a thread on BH. The techniques are very specific or sometimes it's very new technology. We want a baby so we want to know what we can try to make that happen number 1.
    The emotional side really needs to be written by an experienced IVFer or in conjunction. It's very easy to say the wrong thing or ask the wrong question without even realising it. It's hard for an IVFer to read something written by someone that doesn't know the pain.
    I hope I haven't been offensive it's just such an enormous and sensitive topic.
    No, not offensive at all. We'd definitely include both logistics/physical stuff as well as emotional stuff - all from information bubhubbers provide. Instead of being another information pamphlet from the doctor's, it'd have the info you want but from the perspective of women who have experienced it, and have the emotional side interspersed through it.

    Quote Originally Posted by Clementine Grace View Post
    Can i ask, what kind of publication are you thinking of for this guide, will it just be an online guide on the BH Website?
    It'd be published on BH, not sure on exactly how but all just on the website - possibly a set of articles or something of the like.

    Nothing's set in stone with this idea - if you (collectively) think it'd work better some other way, or not at all, no problem. And just to emphasise - everything that goes into the guide would come from bubhubbers who know what it's like and have experienced it. We just wanted to try to do something for newcomers to IVF so that they can access the info they need and stories to make sure they know they're not alone - all in a localised place, rather than scattered through the forum. Again, if you think it'd work another way, let me know. All ideas and opinions welcome.

  13. #19
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    I actually think it's a good idea, I would have loved something like it when I started out.

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  15. #20
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    Quote Originally Posted by BHCommunity View Post
    Can anyone start us off? What made you start thinking about IVF?
    Longish story, so I'll try to put it in brief bullet point type paragraphs.

    First time I was TTC: Came off the pill, and had no period for 6mths. Saw GP, who said to give it a few more months. Did that, then went back and got referral to FS. Saw FS after 1yr TTC. FS did blood tests, said I wasn't ovulating, and gave me Clomid. It worked first go, and I conceived my daughter.

    2nd time TTC: Assumed I would need Clomid again. Came off the pill, no period. Saw GP after 6mths and got referral straight away to FS. Did 5 cycles of Clomid, but no luck. FS dubious about whether my body was ovulating properly, and also my age (33 at that point).

    FS recommended I move to FSH injections. Did 2 rounds of those, and managed ovulation but not very well. FS recommended we do FSH + IUI. Did 3 or 4 rounds of that (I forget now), and no success. FS recommended IVF, due to my age and the fact it had better chance of success.

    When TTC #1 we had both been dubious about whether we would ever do IVF (if needed). The 2nd time around, we were comfortable doing it. The FSH injections bridged that gap, and the IVF process was similar to that of the FSH - plus a bit more. So it wasn't such a giant leap from no fertility treatment to IVF.

    I had some concerns re the creation of excess embryos, and I went to pre-IVF counselling to deal with that before starting. DH had no concerns there.

    We wanted the better odds that IVF gave us (over the previous treatment cycles we'd done), as we were burnt out by fertility treatment before we'd even started.

    First round of IVF was cancelled due to poor response. 2nd round worked, but I miscarried at 8.5 weeks. 3rd round didn't work. 4th round did, and I'm now coming up for 27 weeks pregnant.

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