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  1. #291
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    I had all my work done through Andrew Ngu he's around the corner from MIVF). The man is a legend in Australia - 0% rate of miscarriage.

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    Alittle - , wish I could offer some more words to comfort you. It must be so hard to cop this news after everything you've been through. As the girls said there is still more chance everything is ok than not. Is it possible you could have the same blood test Sonja had? it got sent somewhere o/s and suppose to be more accurate?
    We were playing in a park the other day and a downs boy came up to me and hugged me, he was so sweet.

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    Alittleray  (26-04-2013)

  4. #293
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    I was going to mention that blood test. My only reason for not doing so is it takes nearly 3 weeks for the results and that's murder in terms of waiting. Alittle if you want more information it's called Igene screening. It's hard to find information on it but if you ask your ob he should know all about it.

  5. #294
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    Sonja, it was Andrew Ngu we saw today. He has always done our scans. He's lovely and apparently is an Ob himself. He was under the pump today and was very positive after the scan, but when I spoke to him on the phone an hour later re the combined results, he was not very positive and didn't really say anything to reassure me re the bloods results. My risk at 1:10 is that of a 49/50 year old, so really bad for my age. All he kept saying was he was really sorry. . I actually knew about that blood test and asked my Ob about doing it at our 10 week scan and he said there was no need at thispoint and it to avoid it as it costs about $2000. I'm kicking myself now as I really did want to do it, but he put us off it. Thanks for mentioning it though. Did Andrew do a CVS or Amnio with you - was curious if he does them, but sounds like he does from what you're saying.

    BK, thanks for mentioning Charles. Do you know his surname by chance? I was not aware of the FISH test until today - at least yòu can get the Downs result within a couple of days.

    I have a friend who is a doctor and she mentioned something which I hadn't thought of; she said that IVF patients can sometimes have inaccurate blood results due to allof the hormones through IVF drugs. I do know my levels were extremely high and perhaps that has something to do with it, who knows. Can only hang on to that little glimmer of hope. She seemed to think CVS miscarriage risk is 1:100 as opposed to 1:500 with Amnio. Now I'm not sure whether to do amnio or cvs. Arrgghh

  6. #295
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    I've never had an amnio or a cvs so I can't comment on that side. But my ob in Melbourne (guy skinner) told me stats are only relevant if you know the person who is performing the procedure. In other words because Andrew's risk rate is 0% but someone else is say 1% the stats would say the risk is 0.5% whereas Andrew is still actually 0. Does that make sense.

    I believe he still does the procedures himself. Speak to your ob about his miscarriage rate (my facts are getting old now).

    The bloods are notoriously all over the place. It's sounding better for you. I have a good feeling xx

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    Alittleray  (26-04-2013)

  8. #296
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    [QUOTE=Alittleray;7211071]Sonja, it was Andrew Ngu we saw today. He has always done our scans. He's lovely and apparently is an Ob himself. He was under the pump today and was very positive after the scan, but when I spoke to him on the phone an hour later re the combined results, he was not very positive and didn't really say anything to reassure me re the bloods results. My risk at 1:10 is that of a 49/50 year old, so really bad for my age. All he kept saying was he was really sorry. . I actually knew about that blood test and asked my Ob about doing it at our 10 week scan and he said there was no need at thispoint and it to avoid it as it costs about $2000. I'm kicking myself now as I really did want to do it, but he put us off it. Thanks for mentioning it though. Did Andrew do a CVS or Amnio with you - was curious if he does them, but sounds like he does from what you're saying.

    BK, thanks for mentioning Charles. Do you know his surname by chance? I was not aware of the FISH test until today - at least yòu can get the Downs result within a couple of days.

    I have a friend who is a doctor and she mentioned something which I hadn't thought of; she said that IVF patients can sometimes have inaccurate blood results due to allof the hormones through IVF drugs. I do know my levels were extremely high and perhaps that has something to do with it, who knows. Can only hang on to that little glimmer of hope. She seemed to think CVS miscarriage risk is 1:100 as opposed to 1:500 with Amnio. Now I'm not sure whether to do amnio or cvs. Arrgghh[/QUOTE

    Hi Alittleray.

    Are you based in Sydney? My FS has told me that at RPA and the Ulstrasound Clinic in Kent Street Sydney (same building as Genea) they can do do a blood test (its pretty new so most people don't know about it) to test for Downs which matches the result of the CVS (it doesn't test for every single thing CVS can test for but since you are only high on Downs this is what you need to test for so you would be covered by this test). This is a HUGE step forward for testing and means you dont have to intrude into the uterus to get the reassuring answers you need.

    I personally had a very tragic CVS result - CVS can be performed through the cervix or the stomach. Mine was performed through the cervix, the sample they took was next to a blood vessal and it couldnt stop bleeding so I ended up with still born baby at 20 weeks due to contractions as a result of the blood pooling from the CVS and then clotting in my uterus. Their procedure caused an infection on my placenta. The whole experience was so traumatic. I had no anaethetic, was very distressed screaming and was in bed for months. The biggest tragedy was my baby was completely healthy, the Nuchal blood result 1:10 was a false positive and he did not have anything wrong with him at all. If only I had known more about this at the time I would have done this very very differently. But no-one seems to know about the options or they don't explain them in detail. So hard to share this terrible story but I share it to help you take a different path to still find out what you need to find out but while keeping your beautiful baby safe.

    My friend on the other hand (I found out later) had a CVS through the stomach. She had anaesthetic, could talk all the way through the procedure (so it was very bearable!) and was fine though uncomfortable and her pregancy was safe post CVS. She found it much more invasive than the Amnio she had done formerly in her previous pregancy (which was also safe), but still completely differnt to my experience. I would be happy to get her Doctor's name if you would like it. She was very happy with him. If you do go down the CVS route I would do it this way (though the stomach with anaesthetic) and get the Doctors personal stats so you know they have good outcomes from their procedures. I honestly believe the outcome is directly related to the way the specific doctor performs the CVS.

    I have since discovered amnios can be done as early as 15 weeks depending on your personal condition (it is something to do with your amniotic sac against the uterus - there has to be no space between them in order to do Amnio).

    With both CVS and Amnio you can ask for a FISH test (this means you get the result within 48 hours!!!) ASk for this as they don't offer it up.

    As mentioned above, now there is the new special Blood Test Available (sorry don't know the name but I can find it out if you like) this is what I will do when I am next blessed with a pregnancy.

    I so hope this has been helpful. I know you need to be reassured when you are pregnant not stressed and frightened. There are ways to find out the results you need while keeping your baby safe and sound.

    I am thinking of you and if you want me to find out the answers to the above items I mentioned (my friend's doctor or the name of the blood test which produces equivalent results to CVS for Downs) let me know and I will contact them ASAP.

    Stay strong and think positive. There is a 90% chance your baby is fine!!!!

    Hugs!

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    Alittleray  (27-04-2013)

  10. #297
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    Here is the link to Sydney Ultrasound for Women re the Blood Test. It's 99% accurate.....http://www.sufw.com.au/AboutSUFW/WhatsNew.aspx. An AMAZING development!

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  12. #298
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    Alittle you need to remember re miscarriage rates that they are directly associated with a particular doctor so Ngu for example if he still hasnt had any mc has a 0% risk.

    The doctor I saw was Dr Charles Siles at Melbourne Womens Imaging, he does them vaginally, not through the stomach. Really it just feels like a pap smear. It is also vitally important you rest afterwards. So get hubby to take a few days off work to look after A. The girls at MWI were great with me. I rang them about 20 times the next day waiting for my results and they were very understanding. They also got me in for my CVS within 48 hours of my results so I didnt have to wait.

    If I were you I woul ring up Ngu and Stiles and get there current MC rate and make a decision based on that.

    The main thing that put me off the Amnio was that it was quite late in the process, so if I did have to terminate then I may have to deliver the baby. That to me was completely unthinkable.

    Text me if you need anything, or you want any more info

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    Alittleray  (27-04-2013)

  14. #299
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    Alittle - I'm so sorry you are going through this scare. The odds are WITH you so just imagine a beautiful healthy bub, and do the least invasive/risky tests necessary. It's so frightening when the medical profession deliver potentially bad news. Impossible to anticipate it, and when it happens, you just don't know how to manage it as the odds are clearly in your favour but no one can confirm everything is ok at the time. Take the time you need to get the best professional advice/tests done. Ngu sounds ideal. I'll be asking the universe to ensure all is right with your little bub, and wishing you a very happy ending

    JFB - E sounds like she is having the same sort of sleep as Stella. Stella had a lovely night's sleep 2 nights ago, and last night was back to her broken, frequent wake up sleep. I definitely think she is teething, and 'The Wonder Weeks' also say she is entering her sixth leap, so whatever the reason, she's pretty unsettled. Good luck with E settling down.

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    Alittleray  (27-04-2013),Fleur L  (27-04-2013)

  16. #300
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    Fleur, thank you so much for all of your helpful information. So very kind of you to drop in and post all of that. I am in Melbourne, so am going to try and get in for CVS first thing Monday with Andrew Ngu. So sorry you had such a horrible experience.

    BK, thanks so much. I had the exact same thoughts re having to wait for Amnio. Having to deliver the baby due to being left too late would just be unbearable. I am just so angry that DH is still wanting me to wait and do another blood test, or anything but the CVS and wait to see what Ob says. I waited as the Ob suggested for NUchal scan and BT results rather than doing what I wanted and having the more definitive blood test, I am not stuffing around with more blood tests when the IVF drugs could be totally skewing things. I don't care what the Ob says anymore, I just want to get a clear answer, small risk associated or not. I've been through enough. Sorry, that's me venting as I'm angry with my DH. It's tough on all of us I know. Just wish I didn't have to fight him in this and he would just agree.


 

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