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  1. #11
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    Quote Originally Posted by Kattahos View Post
    Thank you for your post. I have gone and got a second opinion who told me to get tested straight away and not to wait. This was music to my ears and possibly what I wanted to hear due to me feeling relieved that I would be referred. I have seen a gynecologist and have been put in for a laparoscopy and hysteroscopy for Wednesday. I am trying to mentally prepare for this at the moment and feel perhaps ill need to take more than one day off work.

    Thank you for your advice, I am scared about the procedure but at the same time if it is endo, then it's the best outcome to have it done. If its not endo then I can put my mind at rest. It's nice having people comment as even though I am still not sure if I have it, it really plays on my mind and I guess you could say its impacting my health by not knowing. I also have other odd symptoms when I had an exam and an internal ultrasound in terms of pain and tenderness to the left which appeared ' redder than normal?' I don't have an infection and have been tested for everything under the sun so I can only imagine that shows there may be something that comes up. In other words, I will feel surprised if everything is 'normal' so to speak because my symptoms aren't normal.

    Once again, thank you everyone for commenting, it's really reassuring and I feel supported knowing that others and many more people will be in this same place that I am in. I really do hope for a good outcome. Not long now until I find out.
    What a relief to finally be having surgery to check for endo. All the best!! You will need more than one day off. Expect to be in a bit of pain and discomfort for a few days at least. Take it easy recovering

  2. #12
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    Hey guys,
    Just to let you know I had the surgery yesterday and I do have endometriosis. They cut out a few bits but that is all I know. 4 scars later and lots of pain I'm glad that I got it done before it got worse. Thank you everyone who shared their story as it truly made me choose to get the lap done. Not sure how long ill be off work but I feel it will be a slower recovery than anticipated! I can barely walk and thought I'd be fine for work tomorrow. Once again I appreciate people sharing this process and supporting me through this, you have all been amazing.

    Ill be monitoring my exercise and diet and have organised to see a naturopath. My husband and I may be making some choices around when to plan to have children, possibly sooner rather than later. It is so life changing but I feel this is a new step and journey in life and we all go through these types of challenges at some point in our lives.

    Feel free to keep writing comments,!

  3. #13
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    Hope you feel better soon.

    I had endo removed and went straight to IVF (due to my age, I was 36). I fell pregnant on our first go.

    I thought I would tell you about my friend also. She tried for about 6 years to fall pregnant with her second baby (she fell pregnant within 3 months with her first child). Finally she got onto a new specialist who insisted they do a laparoscopy before doing anything else, and he discovered she had endo. He removed the endo and told her to give it 3 months trying naturally before they went any further. She fell pregnant the very first month of trying after having the endo removed.

    If I were you guys, I'd consider trying asap now that the endo has been removed.

    All the best.

  4. #14
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    http://www.cureendometriosis.com/

    Hi there,
    Found this interesting website about endo.
    Also, I just ordered the endo diet recipe book. It's amazing how many things it affects. I'm sure I've been living with these symptoms for so long without realizing, so it'll be good to feel a little more control by watching what I eat.

    Would love to see any other interesting finds.
    xx

    http://http://www.cureendometriosis.com/

  5. #15
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    Thank you for your post. I have had a look and found it very interesting! I majored in nutrition at uni and I learnt about so many factors that lead to disease through diet, including preventative ways too. I have been interested in finding out foods to eat and avoid to increase health and reduce endometriosis symptoms whilst increasing fertility. Interestingly, one small step I have begun is taking fish oil, mainly due to the strong pain I'm getting from one of the cuts- I heard it could be scar tissue forming and omega 3's help with this. It's nice to read that this can assist in fertility too. I really appreciate it!

    My personal years of experience is if I eat highly processed food containing high fat content, my periods are incredibly painful, whereas eating more fruit and vegetables, just even adding them to what I normally eat, has reaped massive benefits to my pain. This isn't just during my period though, it is especially important in the last three weeks leading up to my period- so basically making the lifestyle change to add more fruit and vegies, and reducing saturated fat intake. Main things I've reduced are full fat dairy to reduced dairy fats, cutting fat off meat before cooking, cooking on non-stick pans with only a teaspoon of oil and choosing the low fat option for take aways. I encourage others to see if this has happened for you too. I knew this for many years but even tested it (not on purpose!) but I went on my honeymoon and just ate lots of chips and chocolate, which really impacted on my period pain, and then a couple of months later we went on a cruise- if anyone has been on one of those, you eat triple your daily intake and its all high in fat! I was in so much pain after this which eventually lead me to see the doctor because I knew this wasn't normal.

    Anyway, if anyone reads this, and feels up for the challenge, write a food diary, increase your fruit to at least three pieces a day, and increase vegies -especially greens, as much as you can in each meal. Eating take out? Get an extra salad and choose the reduced fat option, grilled is best. Try it for a couple of months and I am sure your symptoms will reduce. I believe there is credible papers that show this too. And a myotherapist told me that eastrogen in our body is changed when we eat high fat foods, and increases pain receptors. It's very interesting!

    I would love to hear others thoughts on food, fertility and reducing symptoms. Also exercise has shown toddled ice symptoms too- but I'm not quite there yet, still recovering and can't even drive yet- let alone walk without pain. I will get there!

  6. #16
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    Quote Originally Posted by maybee baybee View Post
    I can relate. Once you know it could be suspected endo you read about it and say hang on this is me not realising what the symptoms are.
    The pain for me was so unbearable each month. I have had 2 lap surgeries. One in June '11 and one in July '12. After my lap in '11 I was put on a pill (we weren't TTC at this stage) to stop me getting a period and therefore not experiencing pain. I came off the pill in Nov '11 as we wanted to start TTC. My cycles were long, heavy and by about March/April extremely painful again. I suspected the endo had returned. I was booked in for a further lap and was told it had come back and was worse this time around! My gyno kept saying the only way to really fix endo was to get pregnant. It was frustrating because this is what we were trying to achieve. After my lap I still had a few cycles where it was painful and saw a fs. He prescribed me clomid and after our first cycle on it we fell pregnant. I'm now expecting my first baby in June. I don't think I would go back on the pill again, but will assess this when the time comes. I would seek a second opinion if you're unsure, it's your body and you know it better than anyone. Good luck!
    sounds similar to me. I have two problems as i have also had fibroids along with the endometriosis. I had really heavy and painful periods right from the get-go at age ten, and it wasn't until i was in my twenties and ttc that a doctor went for further investigation. Throughout 2010 I had first a lap for a fibroid seen on ultrasound, but when they looked inside it had grown so they didn't remove it but instead found endo and removed that. I was put on zolodex for 3 months to try and shrink it, then went back in for the myomectomy to remove it. Another lap 3 months later to remove the scar tissue. I fell pregnant with my daughter 4 months after that.

    fast forward to this year... I breastfed my daughter until she was 14 months (which was in January). Just 3 months after i weaned my daughter, I began experiencing fibroid symptoms again. These are similar to endometriosis symptoms, and I knew something was up. Went to the local gyno (i live in the country, so not much choice) and he basically told me i was just complaining about heavy periods. He said pregnancy is a cure for endometriosis (don't get me started!) and to just come back in 6 months when i wasn't pregnant. He ordered an ultrasound anyway to check but after having it done and knowing they had found another fibroid, I went to an endo specialist in the city. She operated but the whole time had told me it was a small fibroid and surgery not necessary. However, when she operated, it had doubled in size, and there was a second, smaller fibroid hiding beneath it. She also found stage 4/5 endometriosis. (I thought 4 was worst, but apparently not?) So for me, I would say based on how quickly i fell pregnant the first time, and what has been found that was never visible on ultrasounds, surgery has worked for me. Pregnancy and breastfeeding can keep the endo at bay, but beware that when you stop, the hormones change again and everything may start to grow back.

    What I am trialling now is the endometriosis diet as a natural approach to regulating my body. fwiw the first month i did it, the period pain completely disappeared and the between period spotting was significantly reduced. my period was medium and almost completely clot-free. A huge difference! I started this diet before the surgery, and did it for two months prior to surgery and i have been feeling great. I took a break from it for Christmas but am right back on it now ready for ttc in march.

  7. #17
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    Quote Originally Posted by maranoa View Post
    Hi Jussi,

    What is a typical day on the diet?

    Sorry to hear about your troubles . It's so frustrating when you know something is wrong but others either don't believe or downplay it.
    Hi Maranoa,

    i'm moreso just following the principles of the diet which is basically avoiding certain types of food and having a generally healthy diet. I have based my own diet on what i have discovered about endometriosis diet from my own internet research.

    Basically the diet is this:

    Things to avoid: gluten, pigs' meat and other fatty meats, soy, sugar

    Things to only have small amounts: red meat (no more than 3 serves a week), dairy

    Things to increase: fruit, vegetables

    Also try to eat organic and non-processed foods wherever possible


    *so, a typical day for me generally consists of:

    gluten-free cereal for breakfast

    fruit snacks and sometimes rice crackers for snacks but not every day

    salad of some sort or a gluten free wrap for lunch

    either a rice dish or just a meat and vegetables dish for dinner, sometimes the occasional gluten free pasta dish

  8. #18
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    it is based on the theory that certain foods clog up your system, so by eliminating these foods, you are freeing your body up to adequately dispose of excess endometrium and therefore reduce the build up of adhesions and scar tissue and therefore reduce symptoms.

    The low amount of animal fat, apart from being healthy anyway, is based on research that shows that oestrogen feeds off of fat stores in the body. Endometriosis is basically an overreaction of the body to oestrogen, so by reducing the amount of fat going into the body, there is less space where oestrogen can be produced and stored.

    Soy has phytoestrogenic properties, which basically means that it acts the same way as oestrogen in the body. By avoiding soy, you are avoiding any further reaction which mimics your reaction to oestrogen.


 

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