Just to let you know I had the surgery yesterday and I do have endometriosis. They cut out a few bits but that is all I know. 4 scars later and lots of pain I'm glad that I got it done before it got worse. Thank you everyone who shared their story as it truly made me choose to get the lap done. Not sure how long ill be off work but I feel it will be a slower recovery than anticipated! I can barely walk and thought I'd be fine for work tomorrow. Once again I appreciate people sharing this process and supporting me through this, you have all been amazing.
Ill be monitoring my exercise and diet and have organised to see a naturopath. My husband and I may be making some choices around when to plan to have children, possibly sooner rather than later. It is so life changing but I feel this is a new step and journey in life and we all go through these types of challenges at some point in our lives.
Feel free to keep writing comments,!
Hope you feel better soon.
I had endo removed and went straight to IVF (due to my age, I was 36). I fell pregnant on our first go.
I thought I would tell you about my friend also. She tried for about 6 years to fall pregnant with her second baby (she fell pregnant within 3 months with her first child). Finally she got onto a new specialist who insisted they do a laparoscopy before doing anything else, and he discovered she had endo. He removed the endo and told her to give it 3 months trying naturally before they went any further. She fell pregnant the very first month of trying after having the endo removed.
If I were you guys, I'd consider trying asap now that the endo has been removed.
All the best.
Found this interesting website about endo.
Also, I just ordered the endo diet recipe book. It's amazing how many things it affects. I'm sure I've been living with these symptoms for so long without realizing, so it'll be good to feel a little more control by watching what I eat.
Would love to see any other interesting finds.
Thank you for your post. I have had a look and found it very interesting! I majored in nutrition at uni and I learnt about so many factors that lead to disease through diet, including preventative ways too. I have been interested in finding out foods to eat and avoid to increase health and reduce endometriosis symptoms whilst increasing fertility. Interestingly, one small step I have begun is taking fish oil, mainly due to the strong pain I'm getting from one of the cuts- I heard it could be scar tissue forming and omega 3's help with this. It's nice to read that this can assist in fertility too. I really appreciate it!
My personal years of experience is if I eat highly processed food containing high fat content, my periods are incredibly painful, whereas eating more fruit and vegetables, just even adding them to what I normally eat, has reaped massive benefits to my pain. This isn't just during my period though, it is especially important in the last three weeks leading up to my period- so basically making the lifestyle change to add more fruit and vegies, and reducing saturated fat intake. Main things I've reduced are full fat dairy to reduced dairy fats, cutting fat off meat before cooking, cooking on non-stick pans with only a teaspoon of oil and choosing the low fat option for take aways. I encourage others to see if this has happened for you too. I knew this for many years but even tested it (not on purpose!) but I went on my honeymoon and just ate lots of chips and chocolate, which really impacted on my period pain, and then a couple of months later we went on a cruise- if anyone has been on one of those, you eat triple your daily intake and its all high in fat! I was in so much pain after this which eventually lead me to see the doctor because I knew this wasn't normal.
Anyway, if anyone reads this, and feels up for the challenge, write a food diary, increase your fruit to at least three pieces a day, and increase vegies -especially greens, as much as you can in each meal. Eating take out? Get an extra salad and choose the reduced fat option, grilled is best. Try it for a couple of months and I am sure your symptoms will reduce. I believe there is credible papers that show this too. And a myotherapist told me that eastrogen in our body is changed when we eat high fat foods, and increases pain receptors. It's very interesting!
I would love to hear others thoughts on food, fertility and reducing symptoms. Also exercise has shown toddled ice symptoms too- but I'm not quite there yet, still recovering and can't even drive yet- let alone walk without pain. I will get there!
fast forward to this year... I breastfed my daughter until she was 14 months (which was in January). Just 3 months after i weaned my daughter, I began experiencing fibroid symptoms again. These are similar to endometriosis symptoms, and I knew something was up. Went to the local gyno (i live in the country, so not much choice) and he basically told me i was just complaining about heavy periods. He said pregnancy is a cure for endometriosis (don't get me started!) and to just come back in 6 months when i wasn't pregnant. He ordered an ultrasound anyway to check but after having it done and knowing they had found another fibroid, I went to an endo specialist in the city. She operated but the whole time had told me it was a small fibroid and surgery not necessary. However, when she operated, it had doubled in size, and there was a second, smaller fibroid hiding beneath it. She also found stage 4/5 endometriosis. (I thought 4 was worst, but apparently not?) So for me, I would say based on how quickly i fell pregnant the first time, and what has been found that was never visible on ultrasounds, surgery has worked for me. Pregnancy and breastfeeding can keep the endo at bay, but beware that when you stop, the hormones change again and everything may start to grow back.
What I am trialling now is the endometriosis diet as a natural approach to regulating my body. fwiw the first month i did it, the period pain completely disappeared and the between period spotting was significantly reduced. my period was medium and almost completely clot-free. A huge difference! I started this diet before the surgery, and did it for two months prior to surgery and i have been feeling great. I took a break from it for Christmas but am right back on it now ready for ttc in march.
i'm moreso just following the principles of the diet which is basically avoiding certain types of food and having a generally healthy diet. I have based my own diet on what i have discovered about endometriosis diet from my own internet research.
Basically the diet is this:
Things to avoid: gluten, pigs' meat and other fatty meats, soy, sugar
Things to only have small amounts: red meat (no more than 3 serves a week), dairy
Things to increase: fruit, vegetables
Also try to eat organic and non-processed foods wherever possible
*so, a typical day for me generally consists of:
gluten-free cereal for breakfast
fruit snacks and sometimes rice crackers for snacks but not every day
salad of some sort or a gluten free wrap for lunch
either a rice dish or just a meat and vegetables dish for dinner, sometimes the occasional gluten free pasta dish
it is based on the theory that certain foods clog up your system, so by eliminating these foods, you are freeing your body up to adequately dispose of excess endometrium and therefore reduce the build up of adhesions and scar tissue and therefore reduce symptoms.
The low amount of animal fat, apart from being healthy anyway, is based on research that shows that oestrogen feeds off of fat stores in the body. Endometriosis is basically an overreaction of the body to oestrogen, so by reducing the amount of fat going into the body, there is less space where oestrogen can be produced and stored.
Soy has phytoestrogenic properties, which basically means that it acts the same way as oestrogen in the body. By avoiding soy, you are avoiding any further reaction which mimics your reaction to oestrogen.
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