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  1. #1
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    Default Treatment options, natural or the pill for endometriosis

    Hi there,

    I have recently been to the doctors for possible endometriosis. I have multiple symptoms but the doc refused to get a laparoscopy done as she stated this was too invasive and would only do this if I was having difficulty conceiving. Fair point I say! As I am not planning to have children until 1-2 years the doctor placed me on the pill to help with the pain. I have personally been against the pill and I am finding it difficult being on it as I would like to be pregnant in 1-2 years. I am feeling really stuck and unsure what to do from now. Are there any natural ways that could help? I find exercising and eating healthy really reduces symptoms, but is the pill good to be on? Will it increase fertility by keeping endo at bay or reduce it as it interferes with natural hormones. Is there another way to be tested for endometriosis that isn't as invasive as a laparoscopy? I've had an ultrasound/internal and a colonoscopy. I feel helpless at the moment and unsure about where to go from here.

  2. #2
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    Vitex I had endo for years, curled up in ball in so much pain when AF came. 4.5 years of infertility. One cycle of vitex and I got pg. Endo causes a pretty severe estrogen dominance. Vitex makes your body produce more progesterone to even things out. There have been lots of clinical trials done on it that prove it works so it's not just witch dr stuff lol.

    I visited a naturopath and some of the other herbs prescribed were zinc, EPO (for PMS), Vit E to help calm and heal the cysts/legions. fish oils.

  3. #3
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    Default Treatment options, natural or the pill for endometriosis

    I've had 3 laparoscopies and the good thing about them is they can see how wide spread it is. They can also laser the endo while they're there. Most of mine spread to my bowel so only way to get rid if that is cutting but it's too risky so never had it done. The pill does help once you find one that works as breakthrough bleeding can be common. I used to skip 2 periods and then have 1 by advice from my gyno.

    If you don't particularly want to take the pill, I found naprogesic and a hot water bottle got me through when I was TTC.

    I've been living with Endo for 14 years now. I also have PCOS. I have a Mirena in now after having DD as I was advised this was the best for women with Endo.

    All the best

  4. #4
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    Thanks for your suggestions and ideas. I hadn't thought of seeing a naturopath which sounds like a good start. Ill also use nurofen usually but possibly something stronger like naprogesic will help.

    Thanks for broadening my options around this, I felt stuck but realise that there are multiple ways to go about treatments!

  5. #5
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    Just a word of caution based on my story... I had severe endo for YEARS before it was properly diagnosed. Doctors kept saying it was just bad period pain so I was taking heavy painkillers. Finally I was diagnosed but the dr said the same thing - don't have a laparoscopy until you want to get pregnant because it's very invasive and it often grows back.
    So for 5 more years it went untreated. I was on the pill for a few years and I hated it. I gained weight and had bad migraines. I then went off the pill and spent a small fortune on natropathy, acupuncture, chiropractic, and Chinese medicine. Nothing worked and the pain was unbearable and I was taking days off work every month.
    Finally I found an endo specialist and asked my GP for a referral. He convinced me to have a lap and I had stage iv (I think) endo - the worst grade. It was everywhere. During those years that I was avoiding surgery and trying alternative therapies, the endo was just growing unchecked and causing damage to my organs.
    So... everyone is different and alternative therapies can help with pain management, but I now think that if you have a disease and it's a serious medical issue, sometimes the medical/surgical route is actually best. Alternative remedies will not stop the tissue growing. If I had just had the lap when I was 19 the endo would not end up doing as much damage as it has.
    I would seek opinions from a few different endo specialists. Make sure they are a specialist.

  6. #6
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    Thank you for your post. I really really appreciate hearing your story. The doctors opinion really wasn't sitting right with me and felt like I wanted to know for sure. I have had friends say I should get a second opinion. I went to a different doctor and they said to get tested straight away. As I have had all other tests which could cause these symptoms and specific pain and they have come back fine, I feel within myself that I really do have this disease. I asked my mum if she had it and she said she wasn't sure however she had a hysterectomy in her mid 30's. I have been given a referral and feel a lot more at peace knowing that I can either find out whether I have it or not. It's also hard because close friends and my husband feel like I am googling to make the symptoms fit with the diagnosis. I feel very invalidated and I knew about these symptoms without realizing it was connected to endometriosis. I decided the 10/10 excruciating pain that was not normal period pain (what a walk in the park that feels like) is not normal, and that's what led me to get all the other tests done and look into it when the doctor suspected endometriosis. Thats when i realised other symptoms i didnt even realise were symptoms- i have. It's a very tough time for me and its really nice having other people who I know can understand exactly how I'm feeling about this possible disease. Thank you for your support, it means so much to me.

  7. #7
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    I can relate. Once you know it could be suspected endo you read about it and say hang on this is me not realising what the symptoms are.
    The pain for me was so unbearable each month. I have had 2 lap surgeries. One in June '11 and one in July '12. After my lap in '11 I was put on a pill (we weren't TTC at this stage) to stop me getting a period and therefore not experiencing pain. I came off the pill in Nov '11 as we wanted to start TTC. My cycles were long, heavy and by about March/April extremely painful again. I suspected the endo had returned. I was booked in for a further lap and was told it had come back and was worse this time around! My gyno kept saying the only way to really fix endo was to get pregnant. It was frustrating because this is what we were trying to achieve. After my lap I still had a few cycles where it was painful and saw a fs. He prescribed me clomid and after our first cycle on it we fell pregnant. I'm now expecting my first baby in June. I don't think I would go back on the pill again, but will assess this when the time comes. I would seek a second opinion if you're unsure, it's your body and you know it better than anyone. Good luck!

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    Hi there, I hope these further tests can put you at ease. I agree with MrsStewart on getting a second opinion. In my case I was told it could possibly be endo but probably not. So I put up with the symptoms. I had to actually ask for a referral from the doctor as i knew something wasn't right. Anyway during the lap they found it was stage 3. It had travelled to my bowel also. And it had blocked my tubes, causing us to go through ivf (which we are in the process of currently.)
    I hope your case isn't so severe and you get peace of mind. You're not alone in this and don't ever be made to feel wrong for finding out more. Some doctors' advice doesn't alway work for all cases. Good luck.

  9. #9
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    Default Treatment

    Thank you for your post. I have gone and got a second opinion who told me to get tested straight away and not to wait. This was music to my ears and possibly what I wanted to hear due to me feeling relieved that I would be referred. I have seen a gynecologist and have been put in for a laparoscopy and hysteroscopy for Wednesday. I am trying to mentally prepare for this at the moment and feel perhaps ill need to take more than one day off work.

    Thank you for your advice, I am scared about the procedure but at the same time if it is endo, then it's the best outcome to have it done. If its not endo then I can put my mind at rest. It's nice having people comment as even though I am still not sure if I have it, it really plays on my mind and I guess you could say its impacting my health by not knowing. I also have other odd symptoms when I had an exam and an internal ultrasound in terms of pain and tenderness to the left which appeared ' redder than normal?' I don't have an infection and have been tested for everything under the sun so I can only imagine that shows there may be something that comes up. In other words, I will feel surprised if everything is 'normal' so to speak because my symptoms aren't normal.

    Once again, thank you everyone for commenting, it's really reassuring and I feel supported knowing that others and many more people will be in this same place that I am in. I really do hope for a good outcome. Not long now until I find out.

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  11. #10
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    I glad they are finally doing the lap, I had been suffering severe pain since 13yrs old, was seeing a gyne at a public hosp, who constantly said it was all in my head, it was just period cramps etc etc, 7 yrs ago I finally jumped up and down demanding a lap, I then went on the public waiting list for over a year, the results came back as endo but they didn't remove it, and to have another operation which would be over another yr, I couldn't wait any longer, I went out got private health although I knew I wouldn't be covered, I got a private gyne, she got the poor reports from the hosp, or should I say lack of, went in for urgery the following week, and it turned out to be the severest case of endo she had ever seen, she removed it all, since then ive had another 2 laps (three of my laps also consisted of cystoscopies, hysteroscopies and D&C's), I also suffer PCOS so im on strong pain relief reg (well leading up to my pregnancy) I was told by my gp in nov last year I was infertile (also due to high prolactin levels) but amazingly conceived and now 12wks preg. only you know whats happening in your body, I just wish I jumped up and down and demanded surgery a lot earlier


 

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