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  1. #1
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    Default Eczema & cows milk allergy

    Hi everyone, I was am wondering if anyone has or had their baby (under 6 mnths) diagnosed with cows milk allergy. My 3 mnth old saw an allergy pead (was 7wks at the time) because of his eczema and we've been put in Neocate formula. His eczema is still present but has good and bad days. At this stage it's only "suspected" CMA but I would really like to know for sure. Can they test his young? If he has zero protein in his diet wouldn't the eczema go away if it was due to CMA? He's been off normal formula for 5 wks now and has no other symptoms other then eczema. TYIA

  2. #2
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    Default Eczema & cows milk allergy

    Hi Abbilee,

    Saw your post and couldn't help but reply - we've just been through this with our daughter who is a week away from turning 6 mths.

    She had really bad eczema since she was about 3mths. We never thought anything of it as eczema is in the family.

    Only two weeks ago I decided to try her on formula as I felt my supply was dropping and she seemed unsettled. After 100ml of formula she had an anaphylactic reaction and was rushed to A & E - scary to say the least. Her eczema flared up (so badly!) she was hoarse and gurgling and passing out.

    I explained the whole experience to the doctor but he told me that it was likely her eczema flared up as she was distressed from swallowing the formula the wrong way. He also said babies aren't lactose intolerant so couldn't be the formula.

    After leaving A & E I began researching and found out about CMA. Everything made sense and I felt this was the cause of the reaction. I made an appointment with my GP and took him through the whole scenario. He suggested three days in a row I feed her formula in his rooms - 10ml first day, then 20, then 40. If she could take 40ml with no reaction, then she definitely doesn't have CMA.

    First day only 5mls in she was red and breaking out on her face - so confirmed it was CMA.

    We are now a couple of weeks away from an appointment at the RCH allergy clinic.

    To answer your questions, yes, could definitely be CMA - ask your doc about doing 'challenges' at the clinic like I did. If they refuse, try doing it how the paed has since instructed me to introduce all foods to her now - start with 1/8th teaspoon, then 1/4, then 1/2 etc day after day. Look for reactions on the skin, breathing changes, crying and voice changes. If you're not confident though, insist on the docs!

    Also, many kids with CMA will have other allergies and generally be more susceptible. I have cut dairy out of my diet and my baby still breaks out - we are yet to test wheat and egg and soy - so they could be the problem as well. They are also more likely to be susceptible to heat, environmental factors, perfumes etc so they may contribute to the eczema.

    If you like, I can give you my email address if you need any more help/questions. I have done a lot of research, been through many appointments and am happy to share what I've learnt.

    Ps sorry for the HUGE post!

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  4. #3
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    Quote Originally Posted by Jessbaby View Post
    Hi Abbilee,

    Saw your post and couldn't help but reply - we've just been through this with our daughter who is a week away from turning 6 mths.

    She had really bad eczema since she was about 3mths. We never thought anything of it as eczema is in the family.

    Only two weeks ago I decided to try her on formula as I felt my supply was dropping and she seemed unsettled. After 100ml of formula she had an anaphylactic reaction and was rushed to A & E - scary to say the least. Her eczema flared up (so badly!) she was hoarse and gurgling and passing out.

    I explained the whole experience to the doctor but he told me that it was likely her eczema flared up as she was distressed from swallowing the formula the wrong way. He also said babies aren't lactose intolerant so couldn't be the formula.

    After leaving A & E I began researching and found out about CMA. Everything made sense and I felt this was the cause of the reaction. I made an appointment with my GP and took him through the whole scenario. He suggested three days in a row I feed her formula in his rooms - 10ml first day, then 20, then 40. If she could take 40ml with no reaction, then she definitely doesn't have CMA.

    First day only 5mls in she was red and breaking out on her face - so confirmed it was CMA.

    We are now a couple of weeks away from an appointment at the RCH allergy clinic.

    To answer your questions, yes, could definitely be CMA - ask your doc about doing 'challenges' at the clinic like I did. If they refuse, try doing it how the paed has since instructed me to introduce all foods to her now - start with 1/8th teaspoon, then 1/4, then 1/2 etc day after day. Look for reactions on the skin, breathing changes, crying and voice changes. If you're not confident though, insist on the docs!

    Also, many kids with CMA will have other allergies and generally be more susceptible. I have cut dairy out of my diet and my baby still breaks out - we are yet to test wheat and egg and soy - so they could be the problem as well. They are also more likely to be susceptible to heat, environmental factors, perfumes etc so they may contribute to the eczema.

    If you like, I can give you my email address if you need any more help/questions. I have done a lot of research, been through many appointments and am happy to share what I've learnt.

    Ps sorry for the HUGE post!
    Hi, I was just wondering how you went at the rch? How long did it take to get an appointment? My dd is 16wks old with suspected cma, her eczema is so inflamed and sore, she also has all the other symptoms. We have tried all the extensively hydrolized formulas, luckily she isnt anaphylactic but her face & body flared up shockingly on allerpro which is suppose to be for cma allergy so now gp has recommended neocate, we are on day 4 (have to buy it over the counter until we can get a script) & shes doing great except she doesnt seem to drink as much. Its so horrible just not knowing exactly what is going on in their little bodies :-(

  5. #4
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    Oh and meant to add a referral has been sent to rch as urgent so im hopeing they can rush her through.

  6. #5
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    Poor bub been through it all... Both my children had CMPI as well as allergies to soy, wheat and egg. We diagnosed them in conjuntion with a paed by cutting everything out of my diet while bfing then introducing it one at a time. my babies would poo blood, projectile vomit etc within a few hours so it was pretty obvious what they were allergic to. I tried cutting everything out of my diet but eventually my babies were put on pepti junior formula. I found a few squirts of dermaveen bath wash in bubs bath would help a great deal with soothing itchy eczema however it never really went away until they were almost 2. They also both had severe cradle cap and baby acne which I think was connected to their allergies but that's just my opinion. Good luck.

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    Hi Abbilee,

    Sorry to hear that you are going through this - CMA is really tough to deal with but once you get all the facts you'll feel better - I know I did! Feel free to ask any questions as you go along - I feel like I know so much more now than I did then!

    Firstly in regards to her eczema - are you BFing her at all? If so, cut all dairy out if your diet. I did this as I'm still BFing DD and while it took two weeks to get all of the dairy out of my system, her eczema has cleared up altogether.

    If you can't pin point what is triggering her eczema at the moment, ask your GP or paed for a strongish cortisone cream to get it under control. I also only used QV products and literally smothered her in cream all day every day! Whilst I don't believe you can fix it with creams etc, it will buy you time til you can sort out her allergies.

    We had an app at the RCH about three weeks after we saw the paed. The paed we saw actually worked there so we were effectively existing patients so got straight in. That said, she did rush us through as CMA, especially in babies, is a priority due to that being the most significant portion if their diet. Sounds like your paed is pushing for the appointment so you should get in pretty quickly.

    They are fantastic at RCH! DD was tested for dairy, soy, wheat and cats (on my request!) and returned severe reactions to dairy and cats, but none to soy and wheat which was great. She is now all sorted with her EpiPen, antihistamine meds if needed etc. I am slowly weaning her onto soy formula which she is taking well. However I believe they only give soy to over six month old babies. But definitely ask about soy if no allergy shows during testing at your app. Lots of CMA babies are allergic to soy too so see how you go...

    Your paed should have given you a script for a hypoallergenic formula - they didn't? It is going to break the bank buying it full price for the next however long - can you ring them ad ask them to send you one?

    Interesting that she is reacting to that formula - is it just around her mouth, redness etc? The RCH told me allergy babies tend to slightly react to most things around their mouth and on their cheeks because the sensitivity of their skin is so high. This may not be the case for you, but they told me not to worry about localised redness in that area. Of course if there was any swelling or it was severe, then it may not be the case. She said look for how far the redness spreads down her body to judge the reaction. You'll also see if it flares up her eczema.

    We tried Neocate and Elecare - there is also Pepti Junior (I think!). Could be worth trying a different one.

    It's very rare for babies to be allergic to these formulas - I hope your bubba isn't one of them!

    Hope that helps, as I said, happy to answer any questions and help where I can.

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    Ps sorry was on my phone when replying so couldn't reread your post! Great that neocate is working - she won't take as much at the start because apparently they all hate it but if you can keep her going on it, don't stop as most babies won't take it at all! Mine didn't! So that's great!

  9. #8
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    Quote Originally Posted by Jessbaby View Post
    Hi Abbilee,

    Sorry to hear that you are going through this - CMA is really tough to deal with but once you get all the facts you'll feel better - I know I did! Feel free to ask any questions as you go along - I feel like I know so much more now than I did then!

    Firstly in regards to her eczema - are you BFing her at all? If so, cut all dairy out if your diet. I did this as I'm still BFing DD and while it took two weeks to get all of the dairy out of my system, her eczema has cleared up altogether.

    If you can't pin point what is triggering her eczema at the moment, ask your GP or paed for a strongish cortisone cream to get it under control. I also only used QV products and literally smothered her in cream all day every day! Whilst I don't believe you can fix it with creams etc, it will buy you time til you can sort out her allergies.

    We had an app at the RCH about three weeks after we saw the paed. The paed we saw actually worked there so we were effectively existing patients so got straight in. That said, she did rush us through as CMA, especially in babies, is a priority due to that being the most significant portion if their diet. Sounds like your paed is pushing for the appointment so you should get in pretty quickly.

    They are fantastic at RCH! DD was tested for dairy, soy, wheat and cats (on my request!) and returned severe reactions to dairy and cats, but none to soy and wheat which was great. She is now all sorted with her EpiPen, antihistamine meds if needed etc. I am slowly weaning her onto soy formula which she is taking well. However I believe they only give soy to over six month old babies. But definitely ask about soy if no allergy shows during testing at your app. Lots of CMA babies are allergic to soy too so see how you go...

    Your paed should have given you a script for a hypoallergenic formula - they didn't? It is going to break the bank buying it full price for the next however long - can you ring them ad ask them to send you one?

    Interesting that she is reacting to that formula - is it just around her mouth, redness etc? The RCH told me allergy babies tend to slightly react to most things around their mouth and on their cheeks because the sensitivity of their skin is so high. This may not be the case for you, but they told me not to worry about localised redness in that area. Of course if there was any swelling or it was severe, then it may not be the case. She said look for how far the redness spreads down her body to judge the reaction. You'll also see if it flares up her eczema.

    We tried Neocate and Elecare - there is also Pepti Junior (I think!). Could be worth trying a different one.

    It's very rare for babies to be allergic to these formulas - I hope your bubba isn't one of them!

    Hope that helps, as I said, happy to answer any questions and help where I can.
    Thank you so much for your reply.
    So at the moment we are on day 6 of using Advantan Fatty ointment and wet wraps, this was recommended to my gp by the rch as we had tried 1% cortisone cream & antibiotics all whilst still feeding karicare ha. Her eczema has calmed down so much! No I'm not bf, I did for 2weeks but she was constantly screaming in pain & not knowing at the time I put her on formula. At about 6weeks she had shocking cradle cap & baby acne (I also now think this is all related, her face was covered!)
    So far our process has been:
    Karicare gold 2wks-6wks: wind pain, squirming, projectile vomiting, foam mucousy poo
    Karicare HA 6wks onwards: pains settled down some, still explosive poo but not mucousy, still vomiting but not projectile, baby acne, cradle cap. At 8weeks eczema presented, stopped using all chemicals- now using aware washing powder, 100%cotton clothing & blankets, dermaveen baby products & alpha Kerr oil in the bath, dermeze a couple of times a day & first use of cortisone cream.
    Next step was if symptoms didn't subside then to try allerpro- this was 2 weeks ago. In regards to the reaction her eczema was already very inflamed but as I was giving her a bottle you could see her cheeks & neck flare up. Her cheeks went bright red with little dots everywhere & on her neck & body it looked like hives is the best way to describe it. This settled in about an hour, but the next bottle exactly the same thing happened. I didn't give it to her again after that. So went back to gp who said keep her on whatever formula she is most comfortable with & do cortisone twice a day plus gave antibiotics. So this went on for a week with no result, so last wed we went back, the referal was sent, advantan was prescribed & gp said yes she would most probably benefit from neocate however she cannot prescribe it which brings us to today. I decided to just buy the neocate as I was over seeing my little girl in pain & uncomfortable. The most annoying thing is I suspected cmpa from 6weeks, but the gp wanted the process of elimination before we headed down that rd. DP had an intolerance to dairy as a baby & went straight onto soy even now he doesnt drink milk & doesnt like creamy food. MIL cannot tolerate dairy at all!
    I spoke to Aptimal who also said there is a small % of babies who will not tolerate the extensively hydrolysed. Trust my girl to be one of those!
    We also have an app with a pead on the 7th may, they have changed who can now prescribe neocate. You must see a specialist (gastroenterologist allergist) who will give the first script, then I think my pead can give me repeats. So I'm hanging out to get our appointment at rch just so we can do the testing & work out what exactly is going on. I'm hopeing she isn't allergic to soy, as she is only 4months old gp doesn't want her on soy until at least 6months (if she isn't allergic) & we're not to start solids at all until the tests are done. Why do you think pepti jnr or soy are recommended before neocate?? From what I've read some ppl are saying its due to the cost to the government as this is covered by PBS on a script, is this formula ok for my bubs?
    Sorry for the long story, I'm so appreciative of your feedback :-)

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    MellyD I just PMed you

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    Hi my first son is allergic to CM protein. We were in the UK and found it really hard to get an allergy test until he was one. Many doctors just don't seem to want to believe that allergy causes eczema. I'm sure it was only because I reported that he had lip swelling from putting a rinsed milk bottle to his lips that they finally agreeded to test. He had the blood test which showed he was allergic to dairy and sensitive to garlic (as by that stage we were fairly certain there was something in the savoury food he was eating that made him react too). His eczema was gone within a month of us removing all dairy from his diet. He's 4 now and can tolerate dairy in baking but we've not been game to give him anything hardcore yet.


 

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