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  1. #1
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    Default Some questions about Sensory Processing Disorder

    Hi there

    I was just wondering if anyone has a child diagnosed with Sensory Processing Disorder? I have some questions, we've just started looking into all the avenues as we are concerned about quite a lot of different things with our youngest and we'd like to help him out as much as we can.

    What Age was your child diagnosed?
    What was your first port of call? Pead? OT? Other?
    How did you know you weren't over reacting? Did you follow your mummy gut?

    My son is 2.5 and has displayed signs pretty much as long as I can remember, main ones seem to be extreme sensitivity to certain things (water being one of them, a single drop of water on his head can lead to an absolute meltdown where he gets so upset he cannot handle it, washing his hair means over an hour of sobbing on my lap afterwards), inability to adapt and cope with a change of routine (causing the same type of meltdowns) and issues with food and people.

    This is only a broad view, there are just way too many of his 'quirks' to adequately describe but in general he ticks so many of the SPD boxes its not funny. We have a referral to a Paed but cannot get an appt until March and I just want to feel like I am being pro-active and wondering if there is anything I should be doing or looking into in the meantime.

    Thanks in advance, sorry for the big jumble, its been a very stressful few months for us and with another bub due in June im starting to really worry about the affect it will have on DS2.

  2. #2
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    Default Some questions about Sensory Processing Disorder

    Hi
    my 5 year old DD has sensory processing disorder so I'm happy to give you our experience.

    She was diagnosed at 4 years old by an Occupational Therapist.

    We always new she was hugely over sensitive to things, as well as being overly cautious with physical activities. At first we put it down to anxiety, and actually took her to a child counsellor for help with some oversensitivities. It would help, for a time, then we'd be back to square one. Everyday things like getting dressed, buying new shoes etc were a nightmare but we put it down to terrible twos, threenager attitude, feral fours etc. when she started prep (FYOS) her school ran OT screening on all of the kids, and picked up that she was sensitive to tactile stimuli, and suggested we go to an OT for further assessment.

    She did OT for most of last year and she is a different child now!

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    peanutmonkey  (08-01-2013)

  4. #3
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    My DS has a few sensory issues, of which he has grown out of many at 4, but we had him assessed by a paed, who didnt really seem too concerned about his quirks, but suggested taking him to an OT - which didnt exist anymore. So I've been doing sensory type activites with him at home, and he has really flourished this past year. Stuff like blowing bubbles, bubble painting, finger painting, sand play, going to the beach. That said, i STILL cannot wash his hair without a melt down. Tonight, after he ran in and out of the shower about 50 times, completely flooding the bathroom, I had to grab him and hold him under the water, then he ran around the house hysterically.

    ANYWAY, I would suggest a paed assessment, then they will probably recommend taking him to an OT, but you can google for some activities to do with him in the meantime, and possible research OT's and contact them, as I dont think you need a referal for a private one. He also hates crowds and noisy places, espcially when tired.

    Not sure if this was helpful at all, but good luck xx

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    peanutmonkey  (08-01-2013)

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    Default Some questions about Sensory Processing Disorder

    That's right, you don't need a referral for a private OT. pHI comes in handy though!

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    peanutmonkey  (08-01-2013)

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    Default Some questions about Sensory Processing Disorder

    Oh wow.

    Nothing helpful to add OP but reading about your DS and a quick google search has just opened my eyes to the fact that I'm pretty sure my DS has SPD.

    We have been struggling with his behaviour and his 'meltdowns' for a while, but mostly this past year and I just don't know what to do anymore. When he's happy he is the sweetest, most loving little boy. It's awful to see him so out of control. Definitely going to look into this further!

    Sorry to hijack your thread! Good luck to you and your little one

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    peanutmonkey  (08-01-2013)

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    Default Re: Some questions about Sensory Processing Disorder

    Thank you so much for your replies, it makes me feel like I'm not alone trying to get someone to listen to mw that my son is having a really hard time and he isn't just being naughty as so many people like to try to tell me.

    For my son there is a clear difference between his meltdowns which you can clearly see him struggling with the world around him and tantrums when he is just being a normal 2 year old, unfortunately people don't see the difference unless they are around him as often as I am!

    I will definitely look into some activities I can do with him that might help him, thanks for that suggestion and will also start sourcing an OT...

    I'm really just over feeling alone when I try to explain to people that I think he is a little different, I know my son better than anyone and he struggles so much, I just want to be able to help him cope better... I'm willing to do whatever I have to do that.

    Sent from my GT-I9305T using BubHub

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    Default Re: Some questions about Sensory Processing Disorder

    Quote Originally Posted by jade24 View Post
    Oh wow.

    Nothing helpful to add OP but reading about your DS and a quick google search has just opened my eyes to the fact that I'm pretty sure my DS has SPD.

    We have been struggling with his behaviour and his 'meltdowns' for a while, but mostly this past year and I just don't know what to do anymore. When he's happy he is the sweetest, most loving little boy. It's awful to see him so out of control. Definitely going to look into this further!

    Sorry to hijack your thread! Good luck to you and your little one
    No need to apologise, I'm glad the thread may have helped you and your son, I really hope it does!

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    Default Re: Some questions about Sensory Processing Disorder

    Just bumping this for the day crowd

    Sent from my GT-I9305T using BubHub

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    Default Some questions about Sensory Processing Disorder

    definitely just go get started with OT. you don't need a referral for it, and the sooner you start (or start getting tips) the better.

    my 3yo daughter has Rett Syndrome, and with it comes a range of things including sensory issues. hated being on uneven surfaces, hates having her hair combed, hated being held, hated the water etc. we've been going to OT for just over a year (once a week, sometimes with a few weeks break) and the difference is amazing. much happier girl!! that said, she'll always have her issues but there is basically much less total meltdowns because her body & her mind have learnt to cope with the stress & anxiety.

    we have almost used up our faschia funding (because Rett is classified as an Autism Spectrum Disorder) but I feel it's well worth it.

    we have chosen play based therapy for her because she's so little (started when she's 2) and would not be able to sit down at a table etc.

    my 5yo son also has issues with water & other little things but I do think it's just a personality thing, not a disorder.

    for water issues, maybe get a water table and some sponges or some fun water toys and slowly encourage water play. water the garden, pour water into things etc. get some jelli baff stuff for the tub.
    for texture issues, we used to put shaving cream or whipped cream out on a table and encouraged her to put her hands through it. or lots of squishing with playdough. or a box full of cotton balls. or rice. or newspaper they can tear.

    there's a book called Early Intervention Games you can find on amazon that has a stack of ideas too

    xx

  14. #10
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    Default Some questions about Sensory Processing Disorder

    oh I'm also expecting #3 in June! welcome to the mad house I say, lol.

    I do see how my daughters syndrome effects how my son relates to things & people but they are only little and it will be a lifetime of encouragement and love no matter what is going on xx


 

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