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  1. #1
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    Default ASD parents chat and support

    Hi I'm Sam and I have a 4 year old with ASD. I try to not let it rule my life and I'm really trying to stay positive and share the great things he does and celebrate all the things he is doing . I also sometimes get down and sick of it and how life with an autistic child can be a test of patience ! Sometimes I just need to talk to someone who gets it. Family don't !

    I have chatted with a few people on here but I thought lets start a fresh support group online for all of us who have recently got a diagnosis or have had this in their family for a long time .
    Anyway, I'm here to chat, swap ideas, celebrate with you and be someone to listen on the bad days. Im also really interested in those of you who are doing different diets or anything that's helping your child.

    I have two other kids. , so far neuro typical , my son has had autism since birth I don't remember him ever bejng engaged and switched on , but he has come on in leaps and bounds recently and we are actually having conversations . I love him to bits , he has something about him that is hard to put into words but he is an extraordinary kid.

    Anyhow . That's all folks! Hope to chat !
    Last edited by babynomad; 08-01-2013 at 08:30.

  2. #2
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    This is a great idea. I have a 4yo as well who has just recently been diagnosed. I really feel that I'm not properly 'engaged' with the diagnosis and every thing it means yet as well as feeling pretty sad and angry. I think a lot of my close family are in denial.
    J is a great kid in so many ways but gee at the end of a hard day it can be hard to see it

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    Totally understand . You can get so over it , loose your patience , feel angry at the world and mad at your kid for having a meltdown over something so insignificant to us. I went through a stage after DS got his diagnosis of being super stressed , I felt like the worst mum as I was just loosing my rag but now a year later I accept it. I love my son , autism is a bit like an invisible friend who pops up most days but visits for shorter times .

    I had been having a really positive week last week , my son was awesome , his talking is coming on , he looks me in the eye, he laughs and is silly . We all felt so positive . Then in Sunday we went to a playground . A girl of about 6 was there and DS is super friendly, and followed her around . She and her brother began teasing DS saying he speaks funny and to leave them alone . He didn't get it. The little girl was shouting ' go away I'm getting really fed up with you '
    Anyway we left . The little girl was just a little girl but our heart sank for our son . He just wanted to play and it made me come back down to earth with a thump. Out of all my worries him having friends is a big one. I hate to think of him with none. I'm sure you feel the same. What do you do with your son for friendships ? I did go to the play connect playgroup for a while but after a while it was only us there for weeks on end ......

    Anyway , lovely to meet you !

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    Hi everyone,

    I'm a mum to a 6 yr old HFA boy and a so far NT 3 yr old girl. We received our diagnosis in August 2012 so are pretty new to the whole
    ASD thing too. So far we have started some speech therapy, have been seeing a psychologist for anxiety and behaviour modification and are about to start seeing an OT for sensory regulation issues.

    I feel quite overwhelmed by it all most days and still quite often burst into tears when the realisation hits me. I worry about his future and all sorts of things. My DS also struggles socially but is coming along SLOWLY in this regard. He is mainly very shy at first and can be extremely clingy with me but when he does finally manage to form some friendships, he's OK.


    The main thing I notice is his inability to tolerate other kids at times because he doesn't understand them. If he doesn't particularly like someone he will say so quite loudly and abruptly, he can be bossy and inflexible, when he's overloaded he becomes verbally and physically aggressive (ie; shouting and hitting - his sister and I cop this the most!) and he also mimics bad behaviour from other kids. I think he does this because he doesn't understand that its innappropriate behaviour and thinks he is relating to kids by behaving like them.

    I also worry about him not having friends or being set up by other kids who might push his buttons and lead him to meltdown. He is starting school this year and I’m frightened of how he will cope. We also went to playconnect play group for a few sessions but had to stop because he had issues socialising with the other kids and it became too stressful for everyone

    I love him dearly and life certainly isn’t boring with an ASD child! I cherish all the good days and celebrate them. Its amazing how the small things can really make your day when you have a special child. For instance; I was thrilled one day when he got home from kinder and said he made a new friend and couldn’t wait to go back the next day and make more friends. Parents of NT kids would just take things like that for granted.

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    Now my NT 2 year old is attending day care 1 day a week with my son I get to hear all the fun comparisons when I pick them up at the end of the day. "G is so friendly, G really listens when you talk to her, G is so interactive. Not Like J. J doesn't do that at.all." I just want to scream at them - 'Yes, I know! J is autistic, remember? They are made differently. You might as well be upset that G can't pee standing up.' ffs

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  7. #6
    heeeeerekittykitty's Avatar
    heeeeerekittykitty is offline My babies, my cats ....ahhhh , bliss !!!
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    Default ASD parents chat and support

    Oh baby nomad what an awesome idea .

    My son is 3 in 8 days and was recently officially diagnosed with autism .

    He is non verbal . He has severe sensory issues in relation to food and eats only 4 foods . Many other issues consistent with ASD .

    He also is a super gentle placid loving boy , very affectionate to me and he's dad and really likes being around people at times .

    I am struggling with this so very bad :-( not with my son he's my life I live for him and my daughter , struggling with my emotions , my fears for he's future , my heart stopping fear that he will never speak . The fears just never end and consume my mind 24/7.

    Life with a child with autism can be very hard but I also know it could being much worse and there's not a single day that passes that I don't count my blessings that my son is just alive and healthy and with me on this earth everyday . It doesn't always take away the pain and stress I feel over him having autism but I try hard to remember it could be so very much worse and harder .

    I have a daughter who's 2 in April . She seems nuero typical at this stage but I am concerned she has only a handful of words . I guess time will tell :-( she is however so very different to how my son ever was , I now see how clear it was that he had autism .

    I really look forward to getting to know you all . Love kitty xoxo

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    Quote Originally Posted by heeeeerekittykitty View Post
    she is however so very different to how my son ever was , I now see how clear it was that he had autism .
    I completely relate to this. I think if J had been my second child I would have known a lot earlier.

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    Hi there owl, ilovebrody and herekittykitty ! Thanks for joining this thread , I hope as we get to know each others story we won't feel so alone.
    Finn is my first child and I have another son and a daughter. The main thing I notice is an intense alive switched on look in my ds2 and dd. when I look at them there is a connection and always has been. Finns eyes are very different , beautiful but there isn't that light in them . They are dreamy and glassy and he is half here and half somewhere else. Another different for me was that he was like a lead weight when I picked him up.... Like a baby seal. He never used his legs or arms to hold on until around 2.

    He takes things very literally . At the moment I made the mistake of saying " when it's dark it's sleepy time when it's sun time we put on our daytime clothes"

    So now he is demanding weetbix at 5.30 an stays awake until 9 pm!! Every single day! We are so tierd !!!

    Anyway . Have a lovely weekend ladies. Xxx

  11. #9
    hakuna matata's Avatar
    hakuna matata is offline The artist formerly know as babyhopeful
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    I don't have an ASD child but am a teacher of one. I just wanted to say what an amazing job you are all doing! It is the hardest thing in the world, but ever so rewarding! Well done mummas!

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    Default Re: ASD parents chat and support

    Hi! Mum of a 5 year old son with Aspergers, due to start school this month.


 

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