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  1. #81
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    Quote Originally Posted by Allymumtobe View Post
    I do have a blog but I don't think I allowed to link it on here?
    Ally can you please PM me a link to your blog ... I think this might be an exception to the not linking to our own blog - but please let me confirm that - I don't want to upset anyone by saying link and then have to remove it.

  2. #82
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    Default Has anyone kept their edwards syndrome baby?

    Yeah I don't want to get booted off the hub for linking

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    Default Has anyone kept their edwards syndrome baby?

    I think you're allowed to put the link in your profile just not post it in a thread... I would love to read your blog too! Angus is so lucky to have such amazing parents x

  4. #84
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    Default Has anyone kept their edwards syndrome baby?

    Alright ill grab the laptop and link the block in there

  5. #85
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    alright, my signiture now has a link to our whole story you can read all about our ivf journey to Angus and follow everything that happens from now on

  6. #86
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    Quote Originally Posted by Allymumtobe View Post
    alright, my signiture now has a link to our whole story you can read all about our ivf journey to Angus and follow everything that happens from now on
    Ally I'm going to remove it from your signature for the moment - I need to confirm that this will be an exception to the rule before it can go in your signature. I'll move the link to your profile for the moment so we can still follow your journey.

  7. The Following User Says Thank You to Mod-RaryGirl For This Useful Post:

    Mod-biscotti  (09-01-2013)

  8. #87
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    Default Has anyone kept their edwards syndrome baby?

    Alright no worries, sorry

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    Ally, I know a lovely lady in NZ who was in your situation 8 years ago, was a real shock to us all when she found out as she didn't find out till a few weeks after birth from memory. She was born early and weighing very little, and from memory when she was born she had feeding issues and it was discovered not long after birth that her wee girl had a few other problems associated with Tri 18, heart defects etc. She was told her wee girl wouldn't live past a year old, and that was if she even gets that far. Her wee girl had surgery on her heart, and was fed through tubes from birth practically, and needed lots of hosp trips for quite a few things. She reached 12mths old, and everyone was so estatic, she hadn't reached many of her mile stones at that stage if any at all, but she was a happy wee girl, anyways, to cut a long story short, this wee girl is one of the miracles you may hear of in your search for answers etc, she is now a happy 8 year old, she still has alot of issues, and every day her parents and family have with her is a blessing. She is still not expected to live for much longer, but this little girl has beat the odds. This family is in NZ, if you google Mollie and Trisomy18 you should find a blog type thing you can read

    I wish you all the best with the rest of this pregnancy, birth and beyond, Kia Kaha

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    calpheepip4  (10-01-2013)

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    Default Has anyone kept their edwards syndrome baby?

    I follow a blog of a woman who carried and birthed a baby who has T13, but was incompatible.

    Her blog is http://peterandcandice.blogspot.com....chive.html?m=0

    Jan 2011 is when they found out.

    She was born and passed away in May 2011. It was a bittersweet experience from what she shares, but from what I've read, absolutely worth it.
    Last edited by Mod-biscotti; 09-01-2013 at 19:05. Reason: Fixing link :)

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    Ally, just wanted to say that I wish you all the best with your decision. It sounds as if there are lots of people here who can offer support and information, and you are not alone.


 

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