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  1. #31
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    Allymumtobe, truly, my heart is breaking for you. I can feel your pain and it just isn't fair. I pray that you are given the strength you need to make this decision and I pray that you feel peace with the outcome.

    Nothing I say can console you, I do know that, but please know that you are in my prayers ...

  2. #32
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    Big hugs to you and your partner. Its a difficult situation to be in. I had a baby with chromosomal abnormalities. We had very high NT results (1 in 2, 1 in 3, 1in 18). Turned out baby had none of these but he did have something. He passed at 17 weeks gestation. I would highly recommend seeing a genetic counsellor before any decision. An OB we saw was very pro abortion and really didn't provide enough information. The genetic counsellor was awesome.


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    Default Has anyone kept their edwards syndrome baby?

    Allymumtobe, I'm so terribly sorry you are in this heartbreaking situation
    My heart goes out to you and your family

    I have never personally been in this situation.
    15 years ago my sister was pregnant, she was only 16 at the time.
    She had a scan at 17weeks and was told her baby had a rare defect where only a 1/4 of his brain was developed.
    She knew something could be wrong as at her 12 weeks scan they were worried, being young she was rather confused and didn't understand it all that much.
    They told her she could go full term but the baby wouldn't survive or she could end the pregnancy, I remember she wanted to go full term, but she did have a lot of pressure to terminate.
    She was induced at 22 weeks and gave birth to a boy, who died only moments after being born.

    She talks openly about it all, she now has 4 children and she always says she wishes she could have gone full term, she said she felt pressured by the OBs, she only received counseling for it all 3 years ago after she felt guilt over not being sure if she did make the right decision.
    She now finally feels peace over the decision she made.

    I agree with others to seek counseling.
    You have just been given some horrible news to process, so many factors would make this a traumatic experience
    I think support groups would also be of some help to seek others stories to help make a decision.
    It can only be your decision.
    I'm thinking of you.

  5. #34
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    Allymumtobe is offline Winner 2012 - Most Optimistic Poster
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    Default Has anyone kept their edwards syndrome baby?

    Say a genetic counsellor to go through our options I'm relieved to know they are happy to continue anyway we like but it is full trisomy 18 so life expectancy is none.

    We will know be looked after by the specialist obs and monitored and see pediatrician if we go that far but we have already said if he is born alive we only want to make him comfortable so food fluid oxygen and pain control.

    So I still have no idea where we are heading.

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    Default Re: Has anyone kept their edwards syndrome baby?

    Just wanted to say im so sorry

    Sent from my GT-I9100T using BubHub

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    You are in my thoughts. No one should have to be in such a position , what a hard thing to go through. All my love to you and your partner and your little baby xxxxxx

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    Default Has anyone kept their edwards syndrome baby?

    I hope you get some clarity in your direction. I'm sorry again x

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    I'm so very sorry you are going through this. Whatever decision you make is the right decision FOR YOU and DH. Don't let anyone else pressure you either way.

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    Default Has anyone kept their edwards syndrome baby?

    thinking of you xx

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    Default Has anyone kept their edwards syndrome baby?

    Thinking of you I'm sorry you are going through this hugs x


 

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