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  1. #191
    Allymumtobe's Avatar
    Allymumtobe is offline Winner 2012 - Most Optimistic Poster
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    Another sad update. Although all of buba's problems are surgically fixable they think because of his trisomy 18 that he will be too small and weak to save.

    I have been told I can have a Caesar is if want but that it isn't recommended as his prognosis is so bad it isn't worth the risks to me.

    However he isn't expected to survive a natural labour if he makes it to his EDD at all.

    We will no longer have scans every other day just the occasional appointment to check his heart is still beating

    I'm devastated I don't know what choices to make anymore.

    I'm currently waiting to see a doctor to set up his comfort care options (oxygen feeding tubes etc)

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    KaraB  (12-01-2014)

  3. #192
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    You are so strong I hope today brings some news xxxx

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    Allymumtobe  (27-02-2013)

  5. #193
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    I'm so sorry ally, what awful news. How many weeks are you now? When is your EDD? Please know that you are a mom and a very loving one. I know angus knows how much you love him. You are doing such an amazing job exploring all your options and making sure you give him the best chance possible. You are keeping him safe and warm and loved.

    I try to be grateful that we had Clem for even the short time we did, she and our experience has already made us better people and will continue to do so through her memory. I'm very grateful we got to hold her and give her kisses and see what she looked like (like her dad).

    Let me know if you ever want to talk, scream, cry, be quiet.

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    Allymumtobe  (27-02-2013)

  7. #194
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    I have no words that haven't already been said... But I send u all the angels to watch over u and ure little family at such a difficult time . Little Angus is a strong little guy.

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    Allymumtobe  (27-02-2013)

  9. #195
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    Oh Ally, I'm so sorry. My heart is breaking for you

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    Allymumtobe  (27-02-2013)

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    I'm so sorry Ally, I have no words just a heavy heart for you. Sending you much strength

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    Allymumtobe  (27-02-2013)

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    Ally I am really hoping you get your time with your little boy, you are so strong and brave, I admire you so much. Sending all the love I have for you and your family xxx

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    Allymumtobe  (27-02-2013)

  15. #198
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    Oh Ally!!
    I'm so sorry!!!!

    I ve just found this thread and read it all :'( heart broken for you

    Are you a member of an angel mum support group?
    I don't know why my DD was born at 39 weeks sleeping... The fact parents have to say goodbye to there precious babies guts me!

    I hope you get to meet him and look into his eyes! I will hope for your Miracle!!
    Xxx

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    Allymumtobe  (27-02-2013)

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    Ally, that is just so heartbreaking

    The doctors will be able to shed some light on the best course of action for you both. I can't imagine how difficult your journey has been so far.

    Thinking of you

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    Allymumtobe  (27-02-2013)

  19. #200
    Allymumtobe's Avatar
    Allymumtobe is offline Winner 2012 - Most Optimistic Poster
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    Thank you ladies. I'm currently 24+5 . EDD 14/06/13

    Totally lost

    Leaning Cesar I just want to hold him alive


 

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