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    Default Has anyone kept their edwards syndrome baby?

    All the best with it all. Keeping you and the family in my thoughts.

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    Default Re: Has anyone kept their edwards syndrome baby?

    Ally, I want to wish your family all the best in this journey. That's such a hard decision that you had to make and you're already a stronger person than me, you're inspiring!

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    Default Has anyone kept their edwards syndrome baby?

    Thinking of you Ally xxx
    Thankyou to the pp - I just found the link to Mollie in New Zealand she is just gorgeous! I also love seeing Kayden's blog an 11 yo boy in the USA with trisomy 18 ( google Kayden trisomy 18) and also Lachlan who is 2 yo and lives in QLD ( google Lachlan's Australian Trisomy 18 Journey) xxxx

  4. #94
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    Allymumtobe is offline Winner 2012 - Most Optimistic Poster
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    Default Has anyone kept their edwards syndrome baby?

    Thisweekalonei have written Angus two letters that are on my blog. Begging him to stay put till at least 20 weeks.

    Wish wish wish his diagnosis was wrong

  5. #95
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    Default Has anyone kept their edwards syndrome baby?

    Ally, we cycled together a while ago. I just wanted to say how sorry I am that you & hubby & bub are going through this. IVF is enough for anyone to endure, let alone the heart breaking situation you guys are in. Please know that you're all in my thoughts & prayers & that I'm sending much love, strength & peace your way xx

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    Love to you, and your beautiful baby Angus.

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    Default Has anyone kept their edwards syndrome baby?

    Hi Ally,

    I just wanted to wish you all the very best for the coming weeks, months and beyond. I'm so sorry for the situation you are facing, one that no parent should ever have to! You are incredibly strong and brave and I am glad you have chosen what is right for your family. I will keep you in my thoughts.

    We are neighbors (I'm in Mernda) so if you ever feel like a shopping trip or coffee to distract you, or need any help with anything, just let me know

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  10. #98
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    Default Has anyone kept their edwards syndrome baby?

    Quote Originally Posted by rlpreston View Post
    Hi Ally,

    I just wanted to wish you all the very best for the coming weeks, months and beyond. I'm so sorry for the situation you are facing, one that no parent should ever have to! You are incredibly strong and brave and I am glad you have chosen what is right for your family. I will keep you in my thoughts.

    We are neighbors (I'm in Mernda) so if you ever feel like a shopping trip or coffee to distract you, or need any help with anything, just let me know
    Thank you that's really sweet!!! Nice to have someone nearby!

  11. #99
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    Default Has anyone kept their edwards syndrome baby?

    Just a little Angus update for anyone still following, saw the perinatal palliative care unit yesterday they were lovely. Angus' head is measuring almost on date at 19+2 but his body and legs are around 17+6 this is normal for his syndrome so she wasn't too concerned. We have a full morph scan on Tuesday. But so far so good. I am a little concerned that he has gone from a week behind to two in body but I guess there's nothing I can do. Just have to relax in the fact his little heart is beating and he's ok

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    LifeInShadesOfGrey is offline Just a little bit silly :)
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    Default Has anyone kept their edwards syndrome baby?

    Hi Ally, glad everything is going well. I wish you all the best with everything in the future xx

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