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  1. #11
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    Default Baby refusing Neocate

    DD was only 6 weeks old whenwe had to switch. She also had bad reflux and was on losec.

  2. #12
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    my eldest went on prescription formula at 11 months, my youngest 6 months. I used to walk up and down the hallway, looking at pictures or the television to try and distract and slip the bottle in before they realised what I was doing. It was a struggle, but once they were on it and all the symptoms like hives, vomiting, pooing blood etc cleared up it was such a relief.

  3. #13
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    Default Baby refusing Neocate

    Can't offer much advise but I can sympathize

    Dd has allergies, eczema.. I won't go into it all but she needed a prescription formula...

    First we were put on EleCare... She drank about 10mls and had a huge reaction, turns out she had an allergy to corn..
    So neocate was our only other option due to the corn issues.

    I went straight in with the vanilla.. She screamed.. Oh it was just horrible!
    She needed it but didn't want it.
    I actually put brown sugar into her bottle for the first day of full neocate, I know it sounds bad but I use to give her brown sugar in water for her constipation issues (that's another story) so I just thought what the heck!!
    I was really at my whits end.
    She took it better, but her feeds were still down.
    After a few days of tears she got use to the taste.
    Her feeds were always lower with neocate, I just put "Feeding routines" aside and demand fed until solids were introduced.

    She now is able to have NAN HA and she loves that, most of her allergies are gone now (she is 22mo) but she still struggles with full cows milk.

    Sorry I can't really offer much advise
    I hope your little man takes to it well soon!


    ETA: dd went on prescription formula at 5mo.
    Before that was murder..
    Last edited by Liddybugs; 06-12-2012 at 20:08.

  4. #14
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    Thank you everyone for your support and kind words.
    We are making some very slow progress. Am a little bummed as I initially hoped to have him fully on the Neocate by Christmas not realising how hard this would be.
    My question is, the paed also wants him to start solids ASAP (to help stave off further allergies). We were initially going to hold off starting the solids until he had adjusted to the Neocate however, we have realised he is never going to take a full feed of this stuff and we are worried about him putting on even less weight than he is now.
    So we are thinking to start him on solids first, get him used to that, then work towards being fully on Neocate. Know that it maybe even more difficult (if that is possible) to get him onto the Neocate but I just can't stand the thought of him starving.
    If you have any thoughts or have been down a similar road please respond. I am starting to feel very anxious and dispondant about all of this!

  5. #15
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    hi there-im looking for some help and support. my 16 week old baby has feeding difficulty with bottle aversion. he started around 7 weeks with distress with the bottle-backarching turning head away and from side to side and squirming.sometimes from beginning of feed and thruout whole feed and sometimes towards end.we have been on losec for a month. he was hard to hold so i fed him in bouncer. he would keep sucking even with head away and arching so i kept the bottle up to him.we awere admitted to our local childrens hopsitallast week for assessment and they have put him on neocate as a trial but the feeding nurse told me that she thought his problem was behavioural. she gave me some advice re making feed better for him-holding him rather than feeding in bouncer as she thought he seemed "alone " in bouncer, when he arches she told me to remove bottle from his mouth and wait for his head to come back and mouth open and to talk more to him thruout feed to give him reassurance. so we came home after 24 hrs of neocate and he was taking small volumes but now he wont feed at all. he looks hungry i feed him 4-5 hrly and he takes a couple of sucks of the bottle then pulls off and cries, he will try again then do same and cry. i have found only way to feed him is to walk around and he seems distracted by things to look at and will suck. if i sit down again he back arches off again and cries. we were meant to have a speech therapy assessment when in hospital last week and one girl saw the end of a feed-we had pretty well finished and she just saw a demonstration of the backarching behaviour. and she also viewed a taping of a feed that the nurse took not taken close up. after discharge i was told that speech didnt think there needed to be any ongoing input and that a full assessment was done. which it wasnt but that was the response from the head of speech therapy after i requested a proper assessment after discharge. the treating team were directed by the feeding nurse who felt this was a behavioural issue and i feel ive been pigeonholed with this and that no further invesugations/tests will be done.thsi hopsital is the big kids one in out city. my gut tells me there is something wrong with my baby. i cant see that my behaviour has caused this. i may have pushed him a bit too much when younger to drink-but his cues were confusing as he still seemed to want to suck even with his weird behviour o the bottle. the feeding nurse said that he was disengaged with me with feeding and that represented a relationship breakdown between me and my baby. she suggested some infant mental health counselling may help establish why this was.this all seemed a bit way off.my family and i dont think i have any relationship issues with my baby, he is my second child. he has displayed distress with bottle and now aversion, i really think something is causing this but cant seem to get any help or support and i fear things are only going to get worse. could someone please help me.

  6. #16
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    Default Same issue- wondering how you did

    I am going through the exact same thing right now. Did you ever get your baby to take the Neocate? We are struggling and I have a lot of guilt about stopping breast-feeding but it is so hard to keep Soy and dairy out of my diet. Also she doesn't want to nurse she just wants breastmilk in a bottle.

  7. #17
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    Quote Originally Posted by blossumbaby View Post
    hi there-im looking for some help and support. my 16 week old baby has feeding difficulty with bottle aversion. he started around 7 weeks with distress with the bottle-backarching turning head away and from side to side and squirming.sometimes from beginning of feed and thruout whole feed and sometimes towards end.we have been on losec for a month. he was hard to hold so i fed him in bouncer. he would keep sucking even with head away and arching so i kept the bottle up to him.we awere admitted to our local childrens hopsitallast week for assessment and they have put him on neocate as a trial but the feeding nurse told me that she thought his problem was behavioural. she gave me some advice re making feed better for him-holding him rather than feeding in bouncer as she thought he seemed "alone " in bouncer, when he arches she told me to remove bottle from his mouth and wait for his head to come back and mouth open and to talk more to him thruout feed to give him reassurance. so we came home after 24 hrs of neocate and he was taking small volumes but now he wont feed at all. he looks hungry i feed him 4-5 hrly and he takes a couple of sucks of the bottle then pulls off and cries, he will try again then do same and cry. i have found only way to feed him is to walk around and he seems distracted by things to look at and will suck. if i sit down again he back arches off again and cries. we were meant to have a speech therapy assessment when in hospital last week and one girl saw the end of a feed-we had pretty well finished and she just saw a demonstration of the backarching behaviour. and she also viewed a taping of a feed that the nurse took not taken close up. after discharge i was told that speech didnt think there needed to be any ongoing input and that a full assessment was done. which it wasnt but that was the response from the head of speech therapy after i requested a proper assessment after discharge. the treating team were directed by the feeding nurse who felt this was a behavioural issue and i feel ive been pigeonholed with this and that no further invesugations/tests will be done.thsi hopsital is the big kids one in out city. my gut tells me there is something wrong with my baby. i cant see that my behaviour has caused this. i may have pushed him a bit too much when younger to drink-but his cues were confusing as he still seemed to want to suck even with his weird behviour o the bottle. the feeding nurse said that he was disengaged with me with feeding and that represented a relationship breakdown between me and my baby. she suggested some infant mental health counselling may help establish why this was.this all seemed a bit way off.my family and i dont think i have any relationship issues with my baby, he is my second child. he has displayed distress with bottle and now aversion, i really think something is causing this but cant seem to get any help or support and i fear things are only going to get worse. could someone please help me.
    Have you heard of Ryan's Rule?
    I'm not sure if it's qld only, but i found this -

    "Ryan’s Rule is a rule for all patients, families and carers. It is a rule that can be used to get help for a patient in hospital when you are concerned that they are getting worse, not doing as well as expected or not improving.

    Ryan’s Rule is for making sure your concerns are addressed and your loved one gets the medical attention that they need"

    You deserve and have the right to have your concerns addressed properly. If they're not, make a complaint. Ask about Ryan's Rule. If you invoke it I've heard they are not allowed to refuse
    Attached Images


 

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