+ Reply to Thread
Results 1 to 6 of 6
  1. #1
    Join Date
    Dec 2012
    Posts
    3
    Thanks
    0
    Thanked
    0
    Reviews
    0

    Default Into the world of the unknown..

    Hi, I am 21 years old, I have just found out I have endometriosis.. I have had the symptoms for 3 years (didn't know they was symptoms of endo until now). In November 2009 I started with the pain I left it as I thought it was to do with my cycle then from February 2010 I spent 12 weeks in and out of hospital to be told I had a kidney infection the pain still did not go away after treatment. In July 2011 I was rushed into hospital where they removed my appendix and told me that was the cause of my pain. After recovering from the operation I noticed the pain hadn't seemed to of changed in any way so I just presumed it was something to do with "operation after effects" in December 2011 I decided enough was enough so I made an appointment with my GP I had blood tests scans internal scans they informed me I have a haemorrhagic cyst in my left ovary in January 2012 I was yet again took into hospital where they was to remove the cyst, before operating they done a ultrasound scan and internal scan they told me that the operation would consist of a suction operation to remove cyst they done that... 4 months later the pain was very low I hardly had much pain just the odd niggly feeling and a bit of pain in bowel area.. I moved away from home to work after 3 weeks of being in my new job I found it a major struggle to continue on I reported myself to the medical GP on-board the ship where I was informed they cyst had come back.. without no scans just an internal I spoke to my parents about it via Skype and they also found it strange how the doctor had diagnosed me with only doing an internal, after 3 months of struggling I had to make a decision and leave my job and fly back to England I then made an appointment to see my GP back here who sent me for a scan 2 months after my return to find I had grown another cyst, I was then refereed to a Gyno which said I would need a laparoscopy I had the laparoscopy on Friday when I was told I have endometriosis.. I not sure if anyone else feels the same but I feel like someone has put a stop on my life, I feel low and lonely and like no one understands what im going through ive always believed in the fairytale ending.. perfect home,job, husband, children&marriage.. its like I cant see a future without children, since finding this out and reading up on the diagnosis I have even started getting jealous over friends with children.. I just don't understand why I am feeling like this.. I know its a lot to take in but I just don't want to start resenting my friends or family because they have children... Can anyone reply and just help me out a bit.. I feel I have no one to talk to about this that will understand.

    Thanks Sj

  2. #2
    Join Date
    Dec 2012
    Posts
    10
    Thanks
    1
    Thanked
    0
    Reviews
    0
    Hi SJ, let me first say that you are not alone and that I know exactly how you feel. I suffered from endo for about 4 years. It's horrible, the pain is excruciating around ovulation and period time and the constant bloating is terrible. I was told many times by different GP's that it was just a heavy period and to take some naprogesic and basically stop whinging.

    I have always wanted children, in fact my family has said numerous times that it's in my DNA to be a mother. I was born to be a mother and it's the only thing I know for sure that I would be good at. But I always wanted the perfect relationship, the perfect man to be the father of my children. Well I'm 37 now and although had relationships in the past I am now facing motherhood alone.

    I went to my local GP in September this year and insisted on a AMH test (this tests a hormone level to let you know your egg reserve) for my age a result of 9 or 10 would be perfect. Mine came back as 1.5

    I was deverstated. Then referred to IVF, an ultrasound picked up a 10cm cyst on my right ovary and endo.

    Laparoscopic surgery a week ago. The surgeon said I had stage 4 endo and it was basically everywhere.

    So at the moment I am recovering from the surgery, on a donor waiting list for sperm and hoping that I fall pregnant on my first go of IUI.

    SJ, I know it doesn't seem like it but you have a huge advantage. You are young, you are sorting out the endo issues early. You have time on your side. You have many years to fulfill your dreams. Be kind to yourself, be calm. Endo is treatable and will not end your dream of becoming a mother.

    I wish you all the luck in the world.

    Rachael x

  3. #3
    Join Date
    May 2012
    Posts
    4
    Thanks
    0
    Thanked
    0
    Reviews
    0
    Hi Sj,

    I can understand how you must be feeling. I am 22 and have suffered excruciating pain from the age of 12. I was only diagnosed with endometriosis in 2010. Many of us sufferers will tell you it is a long Nd difficult road where you do feel alone. Also, we all suffer differently so please don't compare yourself as this can make you feel worse.

    It's great that you are reaching out. It's a very important step. As well, always remember that a second opinion can never hurt and may be beneficial.

    I can understand about the fairytale as that is where I was a couple of years ago. I can tell you that I am married now and have a 4 month old baby. It was an uphill battle all the way. It took me seeing 7 different specialists to have my boy with half of them saying I would never have children. Don't just settle for a doctor and always voice how you are feeling.
    There are some great endometriosis websites and organizations out there. Look on Facebook we are all very supportive. Find books that will help you understand more and what may work for others may not work for you.


    Keep your chin up. You may have this disease but you are stronger than you realize.

    Regards,
    Leish xx

  4. #4
    Join Date
    Dec 2012
    Posts
    3
    Thanks
    0
    Thanked
    0
    Reviews
    0
    Hey Ladies, First off sorry for the late reply ive been so busy and not had time to look on here.. Thank you so much for your words, they are both extremely encouraging i thought that there was no point in taking things further as i thought this was the end of the line. you have both given me renewed hope, I have never done anything like this before within any thing ive suffered or needed advice with so it was a massive step for me to take and to receive such kind messages means a lot to me! I am so happy for you Leish that you have your little family its lovely to hear the good side to this roller-coaster world! Rachael i hope that everything works out perfect for you you will be in y thoughts You ladies have really helped me out! I will be at my doctors first thing tomorrow with advice from both of you,I cannot thank you both enough!

    Good luck to you both in the future
    Also have a wonderful Christmas and New Year may all you wish for come true
    Sj xx

  5. #5
    Join Date
    Dec 2012
    Posts
    3
    Thanks
    0
    Thanked
    0
    Reviews
    0
    Hey Ladies! I Just thought i should inform you i have been feeling very tired and had excruciating pain in boobs for the last 2 weeks, me and my partner decided to take a test we got a BFP!! i am 4 weeks and 2 days today! we are both very excited but taking it day by day as we are so early on.. i would just like to thank you both once again for your positive words they have helped me a lot!!
    Thankyou
    Sj xx

  6. #6
    Join Date
    May 2012
    Posts
    4
    Thanks
    0
    Thanked
    0
    Reviews
    0
    Omg congratulations! So excited for you. I hope everything goes well for you

    Leish xx


 

Similar Threads

  1. Child unknown issues
    By SimplyMum in forum General Child Health Issues
    Replies: 3
    Last Post: 10-05-2012, 15:43
  2. Unusual/unknown handy hints!
    By Mulva in forum General Parenting Tips, Advice & Chat
    Replies: 139
    Last Post: 13-04-2012, 14:16

Tags for this Thread

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
free weekly newsletters | sign up now!
who are these people who write great posts? meet our hubbub authors!
Learn how you can contribute to the hubbub!

reviews
learn how you can become a reviewer!

competitions

forum - chatting now
christmas gift guidesee all Red Stocking
Mother and Baby Shop
Save $$$ during our Christmas Sale Mother and Baby Shop
Great prices on Schoenhut kids pianos, toys, baby clothing as well as big brands like Pigeon, NUK, Cherub Baby and many more. Sale starts on 1 November 2016 and ends on the 27 December 2016. Hurry! Place your order today!
sales & new stuffsee all
Pea Pods
Buy 2 Award Winning Pea Pods Reusable One Size Nappies for only $38 (in your choice of colours) and receive a FREE roll of Bamboo Liners. Don't miss out, we don't usually have discounts on the nappies, so grab this special offer!
Special Offer! Save $12
featured supporter
The MAMA Centre
Pregnancy, birth & beyond care with your very own midwife. Home & hospital birth support, VBACs, antenatal & postnatal care by medicare eligible midwives & holistic health practitioners. Massage, chiro, naturopathy, yoga, counselling & beauty therapy
gotcha
X

Pregnant for the first-time?

Not sure where to start? We can help!

Our Insider Programs for pregnancy first-timers will lead you step-by-step through the 14 Pregnancy Must Dos!