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  1. #91
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    Quote Originally Posted by LunaRose View Post
    hi everyone , we have been working with an azoospermia diagnosis for a few years now .. I know all too well how devastating it can be .. We were able to extract sperm last year and about to start our first cycle of ivf . So much to get my head around especially since I can conceive naturally , I really struggled for a long time to accept that I never would be able to with my partner due to his condition . Would love to talk with anyone in similar situation .. I have felt very alone dealing with this , for a long time it's comforting to realise I am Infact not alone . Sending much love to you all x
    Thanks for sharing Lunarose, did DH have MTESE done too? Did they give him any medication. Your story reads stop on to mine as I show poly tarot overies on the u/s but don't hVe the syndrome. I am also around the same age you. For now my DH's is azoospermia is non obstructive due to unknown reasons. We only did the MTESA 3 days ago but they found no sperm. Waiting for the lab to find out the main cause.

    Can I ask why you had to wait so long to do ivf? HAve they frozen the sperm?


    Me 33 DH 34 azoospermia
    Cycle 1: oct 2014

    Melbourne ivf

  2. #92
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    @LunaRose: sorry to hear u have to join us here. It is good that they find sperms on your dh and able to freeze them. Because the number they might find is so small when they do the mTESE, they always encourage to do ivf concurrently. I think someone would love to hear positive story on the other azoospermia thread. Find us there.

    It is very difficult. I thought I have come to term with it given the long 2 yrs. I am now struggling on and off. We will neon top of the donor list soon. And I really hope that we find a match and everything goes smoothly from there. I can't deal with another fail cycle. I am about to call it quit. So brave for those who went through many cycles!

  3. #93
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    hi @Femmefatal Not too sure what MTESE means.. Our azoospermia was diagnosed about 4 years ago and the first couple of years we were back and forth to urologists. To begin with they thought maybe there was a blockage, so my boyfriend had several operations, firstly to investigate then to try and unblock and blockages.

    It was then a year of trying to get our heads around the whole thing.. My boyfriend , in hindsight, really struggled- perhaps more than me. There was a few years where he was in total denial and our relationship was very rocky.. We don't have a lot of money and I come from a dysfunctional family so I don't have financial or much constructive emotional support. After the urologist informed us there was nothing more he could do we were really left scratching our heads… We saw a male fertility expert in Perth who, on examination of my bf diagnoses him with total absence of the vans def. Because of our lack of funds we waited on the public health system to (hopefully) have his sperm extracted - after waiting over a year we managed to save the money ourselves as we couldn't handle the public system and waiting any longer. He had sperm extraction done last November and they found sperm, it is apparently immature and not in the millions but enough to do ICSI IVF.
    We then went into the public funded ivf system and waited almost a year to move up the list. I would call every few weeks to find out how much we progressed in the list. Finally we got the call that we were to begin the IVF process.. as in: The first doctors appointments etc. when we got a letter in the mail informing us that the public program had been cancelled.
    A letter in the mail… I was gutted.
    This year, we took the plunge and decided we would go into a private clinic (Concept fert. in Perth) and start the process. We are due to start at the end of this month, using my bf's frozen sperm.
    I am so sorry, from the bottom of my heart, that they found no sperm in your partner… I know, all too well, the toll this process takes on a woman. I have been through hell and back , trying to wrap my head around not only the facts, the medical jargon, the risks, the reality… My heart goes out to you.. I hope you have some success in the future. Much love and I hope I answered all your questions.. Would love to talk more about anything really re: this challenging situation we find ourselves in. Sending much love xxx
    @bbhope
    I so feel for you too! Sending you love also.. I hope you can find it within yourself to not give up… It gives me much comfort to finally meet some girls who are in a similar situation as myself.

    I have been totally left behind in my circle of friends.. I've watched everyone around me have kids, have more kids. I've known people who have struggled with infertility to now have kids and I'm still here.. childless, so badly wanting a child of our own.

    I remember before we got the azoo. diagnosis I was convinced every single month I was pregnant. I would feel a twinge in my belly or some weird feeling and be so convinced that YES I was pregnant. This went on for years… When I realised there was actually a problem I assumed it was on my end and went to doctors and naturopaths etc, had all my hormones tested only to be told I'm perfectly normal.. It maddens me that my doctor never suggested my bf have his sperm count done. I live in a small rural town and it is really frustrating dealing with doctors who don't really have any idea about azoo.

    Anyway I feel like I've just babbled on and on here.. I started the journey of wanting to be a mum when I was 23, I am now almost 32 and I have been so heartbreakingly alone in dealing with azoo. and the whole myriad of emotions that go along with it. I always wished I had someone to talk to . If any of you ladies want to talk to me or swap advice, coping mechanisms etc. I would be eternally grateful!

    I am due to start my first IVF cycle around the 27th/28th Oct, as soon as my period begins we will start IVF and I am petrified. I lay awake everynight alone (because my bf works away) so scared. I'm scared about the needles and the hormones. I am an extremely heath conscious person and I cringe at having to take a panadol so the idea of injecting myself with synthetic hormones.. well yeah. I'm scared about developing OHSS… You know my nurse at Concept said "Oh its only 1-2% risk, you're slightly higher because you have pcos looking ovaries " SO THEN WHY are there sooooo many horror stories all over the internet about OHSS. There just a few of my worries , and on top of this I will have to travel away from my home for treatment- we live about 3 hours south of Perth where the clinic is and my bf works away and I always suffer from anxiety.. So it's the perfect storm really.

    Anyway I do love to help people and would love to connect with anyone that also wanted to swap stories, advice, needs a friend..

    Sending much love to you all x


    Quote Originally Posted by Femmefatal View Post
    Thanks for sharing Lunarose, did DH have MTESE done too? Did they give him any medication. Your story reads stop on to mine as I show poly tarot overies on the u/s but don't hVe the syndrome. I am also around the same age you. For now my DH's is azoospermia is non obstructive due to unknown reasons. We only did the MTESA 3 days ago but they found no sperm. Waiting for the lab to find out the main cause.

    Can I ask why you had to wait so long to do ivf? HAve they frozen the sperm?


    Me 33 DH 34 azoospermia
    Cycle 1: oct 2014

    Melbourne ivf

  4. #94
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    @LunaRose: Another perth lady! DH also wasted time with the urologist. And I am so surprised that an urologist couldn't even find out about the missing van deferen in the first place!! An expert knows it by physical exam the part. You guys are lucky that it is an obstructive azoo because it is the best kind of azoo. Of course, it also sucks to have to do IVF! And to get butchered so many times for nothing. In the case of missing van deferen, the easiest way is to do needle aspiration to get sperms. Only local anaesthesia.

    Mtese is for non obstructive azoospermia men. It is an invasive procedure. If you read the other azoo thread which is more active recently, mTESE involves opening up the part and "slice and dice" to find sperms. No one in Perth does this procedure. The closest is TESE. We went to syd for it.

    Btw, did they do cystic fibrosis blood test for your boyfriend? People who have missing van deferen usually have cystic fibrosis. Not to scare you, if he is a carrier, u must test it as well. I don't remember the reason but they say two carriers should not produce offspring. Also if using his sperms and he is a carrier, there is a small chance passing to offspring as well. I know one Perth lady didn't know her husband is a carrier until they found out on new born daughter. He is also missing van deferen. Their daughter has the mild form which is the same as the father. But she mentioned that her daughter shouldn't marry someone with CF.

    Who r u seeing at concept? PM
    me if u prefer not saying it online.

    I will talk to syd FS and then will be able to look at few donors. Hope we find someone we like and move on with it. Not easy but I believe once I get preg, I would not look back the pain and tears.

  5. #95
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    hello @bbhope, yes all clear for CF (phew!) He isn't a carrier and I don't carry the gene either. We did that test pre- sperm extraction.

    My partner did have the sperm extraction procedure done in Perth at Concept Fert. last November and he was under a general anesth. so I'm not too sure about the correct terminology.. But yes we were able to get some sperm.. It is immature and not in the millions but we can do ICSI.

    Will PM you the details of who we saw at Concept.. The lady that did my partner's sperm extraction is apparently a male infert. expert but we are now seeing a male FS. (still at Concept)

    Sending much love and good vibes your way xxx

  6. #96
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    @femmefetal: no one does mTESE in Perth. Thinking of you. Let it all out if you could. Cry...scream whatever. It is such a cruel reality. I have never thought of getting married and have kids. DH is the same. Then, we met each other and thought everything would fall into place. There are plenty of irresponsible people who have kids so life is just unfair.

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  8. #97
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    @LunaRose: thinking of you. Are you starting now? Because the extracted sperms are so precious, I hope you are going for the 5 days transfer protocol rather than the 3 days non-complication standard (cheaper) protocol that concept develops a while back.

  9. #98
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    hi @bbhope, yes I've started injections.. On day 3. Feeling ok, a little bloating and very full feeling in belly and slight hungover feeling and I can't believe how thirsty I am! I am seriously drinking about 3 litres a day, maybe more.. If I don't keep drinking I feel a headache start to creep in. I have a couple more days at work before we head to Perth for first ultrasound so I hope I feel ok as I have a fairly active job.

    Thank you so much for info. re: transfer. Seeings how this is our first cycle and being a total newbie to this whole journey your suggestion is hugely appreciated. I will def. discuss with our specialist.

    Everyone keeps telling me to be positive.. and I am but I don't want to get my hopes up too high incase it dosen't work. I've prepared myself as best I can incase it dosen't.. but we will cross that bridge when we get there.

    Much love to all of you xx

  10. #99
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    Yes, synarel makes you feel thirsty. I assume this is what you are using as well?

    I know your FS. He has been doing day 3 transfer to another perth lady that i know. My clinic in Sydney is quite strict about using day 5 only and they wont' even freeze any embie that doesn't develop to day 5! Although if there is only 1 fertilized, my FS will do day 3. Basically, there is nothing else to choose and one might well put it back.

    There is a good reason for them to use day 5 embie. Scientifically, they believe if the embies don't grow to day 5, they can't result in a pregnancy anyway. Also, it is a natural selection effect. A lot of processes happen between day 4 and 5. They can also evaluate better if the cycle failed. However, some FS do day 3 to avoid disappointment of not getting a transfer (less $ for them, of course).

    But if you guys can keep some sperms and not use it all this time around, which i highly recommended, a day 3 protocol might not be too bad.

    All the best.

  11. #100
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    Default Azoospermia

    Hi everyone. I've posted on a couple of threads so sorry if you have read my post more than once I'm just desperate.
    I hope someone can offer advice.
    I'm 28 and I live in Perth. My wife an I have been trying to conceive. I have been diagnosed with azoospermia after 2 negative semen analysis. I had a testicular biopsy which showed no sperm. I had 2 brain tumours as a child and had to have chemotherapy, radiation and surgery. Has anyone else had similar history and successfully fathered a child?
    Thanks so much.
    Johnathan


 

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