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  1. #1
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    Post Azoospermia advice

    Hi,
    I saw there was another thread on azoospermia, but it seems nobody is using it any more.
    I need some advice on what we should be doing. I live in a regional area with limited medial resources, in fact the nearest fertility specialist is a 7 hour drive or very expensive plane ticket.
    So far, my husband has completed two semen analysis tests, both coming back with zero. We met with the GP two days ago and he said our only option is donor sperm ( thank God for online forums or we would of taken this seriously). I had been doing a lot of research and asked to have FSH and testosterone tested and the doctor laughed and said he'd test FSH in women, but men don't have follicles! I am quite sure this would of been the right thing to do? Regardless, he has written a blood test referral for testosterone, LH and TSH. Also, another for an ultrasound of the testes.
    Do you think this is on the right track? Has anyone got any advice?
    My hubby is 28 if that info helps at all.
    Just as an extra vent, I wanted to share something which broke my heart. Two weeks ago, my hubby went to the appt where he received this info alone. He came home crying (had never seen before) and attempted to commit suicide. He has depression, but he is doing well now that we have talked. However, the thing that has me mad is that he told me yesterday that the doctor said to him at that first appointment "You don't have any trade in value for when you wife trades you in when she hears about this". It makes me so mad that I wonder whether to report the doc. When I said to him a couple of days ago that there was still hope he tapped the results on the computer screen and said "he's got nothing. You need a donor. It's not like you take tissue from his arm and magically make a baby".
    Sorry this post is so long.
    I will appreciate any advice or support. Or possibly even a friend who is going through this as well.

  2. #2
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    Default Azoospermia

    Sorry I have nothing to add but I would def report the dr-what an a-hole! Hugs to u n hubby xx

  3. #3
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    i'm really sorry you have found out this news it is such a hard blow. My partner has very low count (1 or 2 million) and it was devastating for him to find this out.

    You will find a lot of women here in the same boat, and i'm not versed in the all the in's and out's of what you can do, but there are procedures he can have done to try and extract the sperm (if he has a blockage) before you try donor sperm.

    You probably really do need to take the time and see a fertility specialist because GP's usually aren't up to date on what things you can do. Where is your closest big city? It would be worth doing the trip to see specialist.

    You'll find lots of support on here, and people who are going through the same thing.

  4. #4
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    Default Re: Azoospermia

    Wow, is all I can say!! Firstly your gp needs some education about male infertility... Of course you can do fsh and lh etc on a man, it's quite common in the work up for azospermia! Secondly, the comments he made are disgusting and so flippant, if he's giving you news like that he needs to have a little more consideration for the emotional impact that has and not treat it like a joke. I would be seeing someone else in future if you have any other options for gp. I probably would also be inclined to make a complaint, at least to the practice, but that's just me. I think you really will need to see a fertility specialist, and ideally someone who specialises in mfi. Just because there is no sperm in the ejaculate does not necessarily mean there is none in the testes... There are other blood tests, physical examination, clinical history, other factors (pH etc) of the semen analysis that will give an experienced clinician a better idea of the diagnosis and prognosis. I would also be asking for a karyotype, cf carrier and y chromosome microdeletion testing, although a specialist can do this for you (karyotyping is an out of pocket cost though but results can take nearly 6 weeks to come back.) Where abouts do you live? Where's your nearest specialist centre? An u/s is a good idea but it may be better to do it in a large city at a specialist centre as the results may be inaccurate if done by people who don't do it all the time. Don't lose hope, there is a lot more investigating that needs to be done before saying donor is your only option (it is still a possibility but u think it's too early to say). Hugs, what an awful time for you made worse by a terrible bedside manner!

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  5. #5
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    Thank you. Congratulations on your pregnancy. Did you go down the IVF route?
    Our nearest city is Sydney or Brisbane, but I have found a specialist who works for IVF Australia and specialises in this condition. He's in Sydney CDB.

    Quote Originally Posted by Clementine Grace View Post
    i'm really sorry you have found out this news it is such a hard blow. My partner has very low count (1 or 2 million) and it was devastating for him to find this out.

    You will find a lot of women here in the same boat, and i'm not versed in the all the in's and out's of what you can do, but there are procedures he can have done to try and extract the sperm (if he has a blockage) before you try donor sperm.

    You probably really do need to take the time and see a fertility specialist because GP's usually aren't up to date on what things you can do. Where is your closest big city? It would be worth doing the trip to see specialist.

    You'll find lots of support on here, and people who are going through the same thing.

  6. #6
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    Thanks you for your reply. Wow, your baby #2 is nearly here- congratulations- a Christmas baby.

    My hubby called the surgery and was told by the receptionist that his hormones all came back fine- they wouldn't give the exact measurements over the phone though! He has his ultrasound today so I guess he may as well do it, and then when we go to a specialist they may do it again. Sydney and Brisbane are both options, but we think we will go to Sydney- Jeffrey Persson seems like he'd be great for us.
    I hope the hormones really are fine, as this would mean he doesn't have testicular failure. I am just going to look into the y chromosome microdeletion which you mentioned. I'm not sure if this is related to Klinefelter's syndrome? I don't think he has that though, as men with that apparently always have very small testis.
    I hope you don't mind me asking, but how do you know so much about this?

    I hope your last couple of weeks are going well.


    Quote Originally Posted by veggiemama View Post
    Wow, is all I can say!! Firstly your gp needs some education about male infertility... Of course you can do fsh and lh etc on a man, it's quite common in the work up for azospermia! Secondly, the comments he made are disgusting and so flippant, if he's giving you news like that he needs to have a little more consideration for the emotional impact that has and not treat it like a joke. I would be seeing someone else in future if you have any other options for gp. I probably would also be inclined to make a complaint, at least to the practice, but that's just me. I think you really will need to see a fertility specialist, and ideally someone who specialises in mfi. Just because there is no sperm in the ejaculate does not necessarily mean there is none in the testes... There are other blood tests, physical examination, clinical history, other factors (pH etc) of the semen analysis that will give an experienced clinician a better idea of the diagnosis and prognosis. I would also be asking for a karyotype, cf carrier and y chromosome microdeletion testing, although a specialist can do this for you (karyotyping is an out of pocket cost though but results can take nearly 6 weeks to come back.) Where abouts do you live? Where's your nearest specialist centre? An u/s is a good idea but it may be better to do it in a large city at a specialist centre as the results may be inaccurate if done by people who don't do it all the time. Don't lose hope, there is a lot more investigating that needs to be done before saying donor is your only option (it is still a possibility but u think it's too early to say). Hugs, what an awful time for you made worse by a terrible bedside manner!

    Sent from my GT-I9000 using BubHub

  7. #7
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    Oh dear, microdeletions are not promising.

  8. #8
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    I don't know if anyone will look at this, but after some excitement yesterday after being told my azoospermic husband's bloods were all fine, we got a call today to say they actually were not.
    I am not very good at being patient and I don't know if I am silly have hope.

  9. #9
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    Crap, I just wrote a big post went to hit send and I lost it all!! Argh... sorry, basically I was writing to say so sorry you had bad news today, but also it sounds like the GP has no clue about MFI so take it with a grain of salt until you can see a FS. Have you tried to make an appt yet? I think the sooner you get in with someone who knows what they are on about the better! How did your DHs ultrasound go today? I'm an IVF nurse and while MFI is not my speciality, I work with some really lovely consultants who do specialise in it and they are really passionate about it. They often do teaching sessions etc for the nurses and I have assisted with quite a few testicular biopsies over the years. I don't know the FS that you mentioned, but I just googled him and someone with that kind of experience is exactly what you need. I also think it would be worth seeking out some supportive counselling from the clinic to help you work through some of the emotions and decisions involved in the whole process. I have a friend who did need donor sperm and she was able to use her husband's brother, so they now have 3 beautiful children who are genetically related to her husband. If that is the road you need to go down then there's a lot of discussion and thought that needs to go into it, but wait until you get an idea of the full picture from the FS. Fingers crossed you get some answers soon and I'm so sorry you're having such a tough time at the moment - having an unhelpful GP cannot be helping.

  10. The Following User Says Thank You to veggiemama For This Useful Post:

    OptimisticAussie  (09-12-2012)

  11. #10
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    Hi OptomisticAussie, we have been down a similar road to you and it sucks. Hang in there though, tackling each small step at a time helps
    My husband knew he had a zero count before we got married but he didn't know why. It broke up his first marriage because his ex couldn't cope with the idea of fertility treatments of any kind. I remember the day he told me about it when we were still dating and he was terrified that I would leave him.
    When we went to see his GP for a referral, the response we got was: "Well, I COULD give you a referral to a specialist, but to be honest you should probably just accept it" Umm....WHAT????
    Hubby's hormones and everything were fine, but there is some kind of cell that works with other cells to make sperm that he doesn't have, it's a condition he was born with. We went through all the same testing as you, including the ultrasounds and bloodwork, an attempt at TESA and a full open biopsy to try and find something. For us the answer was no, but earlier this year we welcomed an amazing set of twin boys conceived using a donor.
    How is your husband doing now? Depression is a sneaky word-I-won't-use, and careless words from heartless GPs don't help. Hope he is recovering well.


 

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