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  1. #1
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    Default Your experience with silent reflux - please help

    We think our 2 week old bub might have silent reflux. He has only sleep past 1 hour twice since coming home from hospital. He is breast fed and only feeds for 5-10 mins then violently pulls on the nipple, arches his head back really strongly and flails his arms around. He is also screaming most of the time if not asleep or awake. He snores and grunts a lot and also seems to be constantly swallowing air. When you try and console him upright on your shoulder he kicks and flings his arms, arches his head back and basically climbs up over you in pain. He is gaining weight though as he tries to feed so often. He has only vomited a few times. He also coughs and splutters a lot after a fed plus get the hiccups 4 times a day.

    It is beginning to do my head in as he seems in pain all the time, plus lack of sleep for me and bub is getting worse and worse.

    I am going to call the paed this week and beg for an appt. I hope I don't get fobbed off and told to come back later, I don't think we will survive much more.

    Pls tell me your experience with silent reflux, symptoms and how it was diagnosed/treated. Also, if someone has a paed they recommend in Brisbane pls send me message.

    Desperately hoping for a light at the end of the tunnel, I hate seeing him in pain and I am sick of crying all the time for him.

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    Default Your experience with silent reflux - please help

    Hi qwerty,

    So sorry to hear your poor little bub is so uncomfortable, my son was diagnosed with silent reflux at 4 weeks by our GP who is also a child health specialist. He was doing all of the things your bub is and fed really frequently to try and soothe the pain which in turn made it worse. We bought an insert for his cot called a cot cosy and were able to prop it up with pillows so he was laying on an angle (head at the higher end) this really helped with his sleep until we the medication we were prescribed started to really work this took about a week if not a little more as it needs to build up in their system. I would recommend seeing a GP if you can't get in to see your pead we were prescribed Losec by ours and it was honestly a life saver I can't tell you how many days I was in tears because bub was so sore and I didn't know what to do for him it was truly horrible. I really hope you get some answers soon.

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    Default Your experience with silent reflux - please help

    DD had this. A quick fix until you can get Losec prescribed is 1ml of Mylanta in a syringe before and after every feed. Don't exceed 20ml per day (info from CHN). The Mylanta works straight away where I found the Losec took about 2-3 weeks to fully kick in. The Mylanta is good for short term use like this. It did give DD a sore bottom from the poos but was worth it to see her sleeping and not in pain.

    If you get Losec prescribed it usually comes in a tablet. Speak to your Dr cause if you have a compounding chemist in your area they can make it into a solution and add a flavour so it isn't so hard to give to bub. Mind you they don't seem to mind after having Mylanta, it's pretty gross!

    I put big text books under one end of the cot to prop it and also try to keep bub in a slightly upright position when feeding so head is above tummy level.

    Good luck, I'm sure if you try the Mylanta even just at one feed you will know pretty quick if it is reflux. I was blown away at how fast it worked!

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    My DS had really bad silent reflux. It was a terrible time for the family. he screamed every waking moment, arched his back. Would scream constantly for bottles (I found it this was cooling his sore throat and tummy) then 5 mins in would scream in pain from it flowing back up.

    He was put on Zoton, which only helped a little. We found solids was what really made the difference. I always had strong views on not doing early introduction of solids. I was told by the paed at 12 weeks to give him solids and thought hell no. At 4.5 months we caved and it helped within half an hour. He was also a very hungry baby and was ready early for solids.

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    Default Re: Your experience with silent reflux - please help

    My soon has silent reflux. My advice would be to have faith in yourself...trust that you know that there is something wrong and do not take 'no' for an answer. I found myself feeling as though I was perceived as a nervous, excessively worried first time Mum and often left medical appointments with nothing more than a pay on the back.

    I agree with previous poster. Don't wait for a paed appointment...make an appointment with a GP...do it today because life does not have to be like this...for you or your baby. If your GP is sceptical then ask him/her to watch your baby feed...and in the meantime...try the Mylanta suggested by the previous poster.


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    Default Re: Your experience with silent reflux - please help

    My soon has silent reflux. My advice would be to have faith in yourself...trust that you know that there is something wrong and do not take 'no' for an answer. I found myself feeling as though I was perceived as a nervous, excessively worried first time Mum and often left medical appointments with nothing more than a pay on the back.

    I agree with previous poster. Don't wait for a paed appointment...make an appointment with a GP...do it today because life does not have to be like this...for you or your baby. If your GP is sceptical then ask him/her to watch your baby feed...and in the meantime...try the Mylanta suggested by the previous poster.


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    Default Re: Your experience with silent reflux - please help

    Thanks for the responses. Makes me cry knowing someone understands.

    Paed gave me a quick phone consult yesterday and is posting out a script that I need to get at a compound chemist (losec?). I have also made an appt to see a child health gp this afternoon.

    It seems to be getting worse, like his throat is more and more sore. Hoping to get it fixed soon as he is in pain nearly all the time. Was flinging himself around violently and screaming last night, so horrible to witness.

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    Default Re: Your experience with silent reflux - please help

    We did try a little mylanta last night and it did help. Husband's whole family had bad reflux so I was always aware of it.

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    Default Your experience with silent reflux - please help

    Hi Qwerty,

    It's awful watching them in such pain!

    DD (now 9 months) was unsettled since birth and I was always told by my visiting midwife and the local health nurse that she just had wind and I was told to try infants friend, brauers naturopathic drops, infacol, gripe water etc etc for her wind and that she was just a high need baby (who wanted to be held a lot and was in the fourth trimester trying to find her way in the world blah blah blah!)

    But it was at 8 weeks that the screaming started!!! It was the first night my husband actually got to go out for a few drinks after work and I had to call him home early as nothing I did would help her screaming!

    I won't go into too many specifics, but it took until 16 weeks old until she was finally put on Nexium (same as Losec) by a paediatrician and she was a different baby!

    By that stage I'd already given up breastfeeding as it was unbearable for me, perhaps I would have kept on going if I'd had any clue what was causing her unsettledness and fussiness at the breast.

    DD started to be so much more settled once on the Nexium, she was unwrapped, in her own cot with room to move and get comfortable and also on an angle. And the screaming had stopped though she still snack feeds as its uncomfortable for her.

    It's fantastic that they took you seriously and have prescribed something to help with the pain.

    Are you BF? Have you tried cutting out dairy from your diet to see if that makes a difference? She may have a cows milk protein intollerance.

    Good luck at the GP. Let us know how you go with the meds.

  10. #10
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    My 7 week-old had had terrible issues with pain and I agree, it is completely and utterly heartbreaking. He is getting better, but only slowly. We have been giving him Infacol (a half-dose) before feeds since one-week old. (This was ok-ed by GP). I feed him so he is in an upright position, and burp mid-feed. We also keep him upright for a minimum of 20 minutes after a feed.

    We took him to an osteopath, and saw a distinct improvement after just two sessions. Also, I have cut out large amounts of milk (devastating!), chocolate, chilli and garlic from my diet.

    Also, can I suggest googling Block Feeding - it made a huge difference to my son when I tried it. Also, if you have a lot of milk or fast letdown, you could try to express off the initial flow first, which can slow down the rest.

    Hang in there - lots of us have been there. Follow your gut (we self-diagnosed initially as no one would listen to us), and keep searching for answers. Good luck!
    Last edited by harvs; 29-11-2012 at 12:38.


 

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