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    Default Is a positive blood test for celiac/coeliacs disease enough to confirm diagnosis

    AGA (antigliadin antibodies)-IgA meant to be less than 20 but was either 30 or 45, (I think this one was 30)

    tTG (anti-tissue transglutaminase)-IgA meant to be less than 20 I was 30 or 45 (cant remember which was which)
    Total serum IgA- i was within normal range for this one
    Do I have to have the biopsy? should i get the gene test?
    Going gluten free is so expensive esp if you take it seriously... if its not coeliacs then maybe I dont have to be so stringent.
    This is such a bummer

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    SpecialPatrolGroup's Avatar
    SpecialPatrolGroup is offline T-rex is cranky until she gets her coffee.
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    I thought they also did a gastroscopy (is that the right word?) to look at the vili in your intestine.


    ETA - also a gluten free diet for a month or so.
    Last edited by SpecialPatrolGroup; 19-10-2012 at 20:56.

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    i've started gluten free today! One dr told me to get the biopsy (via gastroscopy) and another told me not to bother as false positive is unlikely. Now i dont know what to do. Dont want an unnecessary procedure but dont want to go gluten free if I dont have to. Decreasing gluten is a much easier task than eliminating completely so I guess I would like to confirm coeliac Vs intolerance.... Oh i'm so confused. One dr says I have coeliacs the other says it needs biopsy to confirm but that i most likely have it BLAAAA

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    I don't know about levels my blood test was borderline (so the dr said) so i had to go for a colonoscopy/endoscopy to rule out coeliacs or lactose intolerance

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    Umm I may be wrong but if they want biopsies then I don't think you should start gluten free until after you've done it as it may skew the results. I know with bloods you shouldn't change your diet until after it's done or it will affect it.

    I did breath testing for Lactose, Fructose, Sorbitol and something else.

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    LifeInShadesOfGrey is offline Just a little bit silly :)
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    Default Is a positive blood test for celiac/coeliacs disease enough to confirm diagnosis

    I would have everything done they want you to do before dietary change.

    I have had pretty bad intestinal and bowel problems that have been going on for 8 years. It's not IBS, however my coeliacs and crohns bloods were negative. The doctor suggested limiting my gluten and dairy, as these are contributing to it all.

    However he has suggested I see a specialist and have a camera check out my bowel and my small intestines. When I get the courage ill do it.

    Sometimes it's better to get all the tests before making such a major change good luck with everything and I hope it's worth it for you.

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    Gothel's Avatar
    Gothel is offline Skip the drama, stay with Mama!
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    Default Re: Is a positive blood test for celiac/coeliacs disease enough to confirm diagnosis

    Quote Originally Posted by ICanDream View Post
    Umm I may be wrong but if they want biopsies then I don't think you should start gluten free until after you've done it as it may skew the results. I know with bloods you shouldn't change your diet until after it's done or it will affect it.

    I did breath testing for Lactose, Fructose, Sorbitol and something else.
    No I think you are right here, if you cut out gluten then the biopsy may not show any damage so coeliacs cannot be confirmed. Complete your tests before cutting out gluten.
    From discussions i have had with a couple of coeliac friends, at the end of the day, if tests show it's possible/likely that you have coeliacs, then the treatment is the same regardless of the official diagnosis. Time & elimination/challenges will prove what you can tolerate. But do your tests first.

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    You definitely need the endoscopy to confirm coeliac disease. My mother had a positive blood test and a negative biopsy so was perhaps maybe gluten intolerant but definitely not coeliac. The ONLY way to confirm a coeliac diagnosis is with the endoscopy/biopsy of your villi. And also, definitely DO NOT start a gluten free diet before having the endoscopy done as it will skew the results and you may end up with a false negative.

    I had this all done last year so pretty fresh in my mind - was diagnosed coeliac. Its hard at first but getting easier. Unfortunately it is a bit more expensive too

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    thank you for all your responses

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    When I was 9 I had the biopsy done to confirm coeliacs. 13 years later the doctors decided to do another biopsy testing for the same thing but this time it came back negative! I never lived strictly on a gluten free diet and I didn't get sick. After checking my original results the doctors at the hospital couldn't understand why I was told I was positive for coeliacs as the results were inconclusive. I was furious when I found out they stuffed up my original results!


 

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