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  1. #1
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    Default Coeliac disease. How were you diagnosed? what led you to visiting the doctor

    i've just had blood test results come back saying i am at high risk for coeliac disease (high levels of something i cant remember on a blood test)

    Dr spoke to a gastroenterologist who wants to biopsy my insides... I'm scared!

    So, can i avoid this or does it have to be done

    I will starve if i cant have gluten... I love the stuff!

    Feeling rather depressed about all this!

  2. #2
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    Hello!!! And welcome to the big bad and wonderful world of GF/Coeliac

    I was first diagnosed by a naturopath in 2011, I have always been into those sorts of things (second opinions & a different kind of healing IYKWIM). She said I had low Vit D, Iron, and high levels of metal in my body (i grew up on rain water) It was very overwhelming at first but she gave me inner health plus, some kind of herbal tablet to take during the morning, vit b and liquid vit d! (BTW i did take my blood results from the doctor to her!) just a full blood work up

    I followed gluten free for about 5 months hen my Aunty passed away and I found I couldn't do it anymore. (I'm very much an emotional eater) So since Xmas I haven't eaten GF.

    In April I went to the doctors for a blood test (I thought I had glandular fever or something (I have been SOOO tired) I sleep over 12 hours a day. I've been referred to a gastroneligist and I have my endoscopy on Friday I actually am thrilled! You cannot be 100% sure unless they take samples He told me he actually thinks I have IBS! BTW I am almost 13 weeks pregnant and I am still doing this! He said it was all safe etc.

    I will just add going GF/being a coeliac is SOOO easy now! The food is so much yummier!!! Even from when I started last year. And I love my italian food/bread!
    I find making my bread is much tastier (in a bread maker) I can add whatever seeds I want etc, then make it into rolls etc..
    Cakes etc is just switching flour
    there is so much out there!!
    Joining your coeliac society is so helpful!
    Lots of restaurants have GF options too and not just meat and veg

    Sorry if this is long LOL. but i can answer heaps if you would like more PM me.

    It can be overwhelming, the first two weeks is the hardest but after that you feel like a totally new person!!!

  3. #3
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    thanks. I've booked an appt with the dr for tomorrow. Really hoping they'll just say its not that and move on!

  4. #4
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    I had my endoscopy today and it was a breeze! It was just like being in the best sleep of your life LOL. i could of asked the doctor to give me more drugs as i havent been sleeping much lately. It doesn't hurt or anything, you go home feeling a bit tired and that is all

    Hope it all turns out for you

  5. #5
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    do you have to have the biopsy? Is the blood work enough for a diagnosis

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    I think now they will make a diagnosis on the blood test or they will use the blood test to determine whether or not you need the biopsy. I had a biopsy done once and when my other specialist recommended the blood test my gastroenterologist said don't bother, if the biopsy was clear the bloods would be too. I think they can use either.

  7. #7
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    i'm starting to think there may be a differing of opinions in the medical field. I've got different opinions from GP's and from you lovely ladies (half of you are saying what one dr said and the other half saying what the other dr said LOL - its so confusing) Think I might go to the specialist and ask them (and prob get a diff opinion again :-O


 

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