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  1. #21
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    Default Coeliac disease support thread

    Quote Originally Posted by Gothel View Post
    Would anyone mind if I subscribe too? I totally understand if you want to hear from coeliacs only, but I'd love to read along and get some gf ideas for my wheat intolerant kids. I really struggle with variety & ideas, and AFM always on the lookout for inspiration (and didn't want to just silently subscribe )


    **Nothing spells as goof as typo splats**
    Of course you are welcome. It is so nice to see so many people join this thread. I am so glad to have all the information and support from everyone with so much experience with this.

  2. #22
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    Default Coeliac disease support thread

    Hi! I'd love to join. My DS, who is 2, was diagnosed with coeliacs in July. While it was initially hard, I'm surprised how quickly you adapt to the new lifestyle. The best thing we did after diagnoses was to go to a dietician, and of course, join the coeliac society. There are so many food options out there now for coeliacs it's great!!

  3. #23
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    Default Coeliac disease support thread

    Quote Originally Posted by elle84 View Post
    Hi! I'd love to join. My DS, who is 2, was diagnosed with coeliacs in July. While it was initially hard, I'm surprised how quickly you adapt to the new lifestyle. The best thing we did after diagnoses was to go to a dietician, and of course, join the coeliac society. There are so many food options out there now for coeliacs it's great!!
    Welcome!
    I agree that both a dietician and the coeliac society are a great start. We have already seen a dietician - we got 5 subsidized visits through medicare with a chronic disease management plan with the gp - answer are going again tomorrow.
    I am also glad I joined the coeliac society - the information pack is great - in particular the book about managing a child with coeliac disease.
    So glad to hear that there are lots of food options out there - I must say I have spent a bit of money the last few days stocking up on foods that DD can eat.

    If anyone has any suggestions for good gf products please let us know. I know I am a novice at all of this but I did buy the Live Free Gluten Free chicken seasoning and it was yummy. I made chicken nuggets last night and they were delicious.

    http://www.absolutelyglutenfree.com....049000055.html

  4. #24
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    Default Coeliac disease support thread

    Quote Originally Posted by KMGG View Post
    Hello, I am a Coeliac and by default my daughter too. She likes to share food too much and on my plate.

    The best wraps I have come across are very yummy and bendy! Old Time Gluten Free Wraps, I buy them from Safeway and the Vic Market if u r in Melbourne.

    For bread if you are in Melbourne the best ever is Black Ruby, they have a cafe in Nth Carlton and also sell their bread through various gluten free shops. I have not found a bread to rival it. The only other bread I like to make from a pack is the Simply wize crusty bread and I just buy that from the supermarket.

    Eating out is not as fun for a toddler as most kiddie meals are not gluten free. I generally order the adult GF option and order a side of something else and share that.
    Those wraps sound great. I'll keep an eye out for those.

    That's a good idea to solve the kids meal dilemma. I'll buy a gf adults meal and a small meal (even a kids meal if need be) and eat the kids/small meal and share the gf meal with DD. I already look at a lot of menus online before we go out but now I will check for gf options.

    I though that asian would be easy initially due to the rice but I realise now that the sauces aren't gluten free necessarily. Does anyone go out for Chinese/Asian food and what do you choose?

  5. #25
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    Default Re: Coeliac disease support thread

    Quote Originally Posted by monnie24 View Post
    Well I found the GF oats by planet organic. at my local food land. Most research I have done is upto personal choice on oats and once your stomach is healed then try them. I feel fine eating them compared too say when I eat normal toast etc.

    Also freedom foods do the wheat free, mostly Coles/woolies.

    In America (order online) bobs mill I think or red mills sorry cant remember but lots of health food shops sell them have the oats too a lady recommended them to me at a health food shop.
    They must have been imported as gluten free as definitely ruled as not GF here in Australia. I am all for people trying themselves etc but I am one of those unfortunate (?fortunate?) people who don't get any symptoms if I accidentally cross contaminate so I don't know if I am actually doing damage to myself etc. If you can self test at home all the better for you

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    Default Re: Coeliac disease support thread

    Quote Originally Posted by CookingMonster View Post
    Those wraps sound great. I'll keep an eye out for those.

    That's a good idea to solve the kids meal dilemma. I'll buy a gf adults meal and a small meal (even a kids meal if need be) and eat the kids/small meal and share the gf meal with DD. I already look at a lot of menus online before we go out but now I will check for gf options.

    I though that asian would be easy initially due to the rice but I realise now that the sauces aren't gluten free necessarily. Does anyone go out for Chinese/Asian food and what do you choose?
    I found a great gf Chinese restaurant in canberra but unfortunately I live in Brisbane. I just went to wagamamas tonight and it was pretty delish (japanese) and some thai places can be very helpful but in have found unfortunately 95% of Chinese is no good language barriers and the likes

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    Default Coeliac disease support thread

    The best wraps I've found are in the Mexican section at Safeway/woolies they are smaller but taste pretty good. They are the "select" brand also really cheap compared!

  8. #28
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    Zakmick is offline Can't change the past, but we can learn from it to make us stronger and move forward!
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    Default Coeliac disease support thread

    Subbing - I'm gluten intolerant, so have been following a coeliac diet for 4 yrs. Chronic migraines is how my body reacts to gluten as well as severe bloating, constant colds and lack of energy.

    I like try to adapt mainstream meals to be gluten free, looking forward to sharing my knowledge so far as well as learning new things.

    I'm a member of the coeliac society too! Organisation is the key I think in sticking to this lifestyle choice.
    Last edited by Zakmick; 15-09-2012 at 01:16.

  9. #29
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    Default Coeliac disease support thread

    Just letting you all know that the mods have made this a sticky thread for us so it will be easy to find.

  10. #30
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    Default Coeliac disease support thread

    Organization - I think that's what I'm struggling with the most. Gone are the days when we can just go out and grab some lunch at the last minute. Usually my DD would eat a sausage roll but now I have to be more organised and bring things with me. I guess this will become second nature.

    I have a couple of questions that I'm hoping someone will be able to help me with.

    Is sushi gluten free? If it is this will solve my problem above.

    For those with kids that were diagnosed young, how long on a gluten free diet did it take to notice a difference? My DD is always sick - last week with a viral chest infection, this week with fevers and diarrhoea. She never seems to be well. Also her speech is delayed. Just wondering when I can expect to see some change? As you can imagine I'm hanging out for this.


 

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