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    Ulysses is offline In the eyes of a child you will see...the world as it should be.
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    Default Parents of children with Autism - need your advice

    My daughter (2 years and 3 months old) had her CAT assessment today.


    My question to anyone who has been through the diagnosis process is….can they diagnose Autism after this assessment. I know you can never actually prove someone has Autism (through blood or MRI tests) but rather a person or child displays the symptoms of the disorder. The test (Bayley test) did not seem very thorough or carefully done. My understanding is that there are other tests available to provide a more accurate diagnosis. There was no psychologist as part of the test, only a paediatrician, OT and Speech therapist. Upon questioning, the paediatrician told me that diet had no impact on behaviour and not to change or test any changes in her diet????I found this a bit strange considering the latest research especially concerning preservatives.

    Can anyone tell me what they know about diagnosis and if there are certain paths I should take now to become more comfortable that this diagnosis is accurate?
    Last edited by Ulysses; 09-09-2012 at 20:21.

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    Default Parents of children with Autism - need your advice

    For my son to get formal autism diagnosis, we needed Psych report, speech report, occupational therapist report and we also have one from Aspect (Autism NSW).
    I believe a team of specialist such as you've described are able to make a formal diagnosis though. Where are they saying she is on the spectrum? I know I was expecting mild but the psych has ruled severe with the amount of issues my son has. I hadn't noticed something's about him that the psych picked up straight away as obvious quirks. I had just thought they were normal being a first time mum.

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    thanks for sharing your story itwasntme.

    She didnt tell me where she thought she was on the spectrum, but rather just said she thought she was Autistic. The report she gave me says she has the classical signs.

    I just felt that she was bit quick to jump to Autism. I have a speech therapist i am using privately and she tells me that she does not think she is Autistic, but rather her hearing issues have been the problem. I know it sounds as though i just don't want to hear she is Autistic, but I just felt that it was a very basic way to diagnose the condition.

    I guess I am just in a bit of shock at the moment as i really did not expect that diagnosis at all. She (the paediatrician) said to me that once upon a time a diagnosis of Autism would mean putting her in a Asylum??? Something that I probably wouldnt say to a parent who is hearing a diagnosis for the first time. It was a very upsetting meeting.

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    I hope you don't mind me chiming in because I don't have a child on the spectrum...

    First of all, I'm sorry that the paed was so insensitive. That's awful.

    Secondly, the vast majority of doctors (from all different specialities) know almost nothing amount nutrition/diet. I personally think you are onto a good thing if you take preservatives etc out of your daughters diet, I mean it can't hurt her right?

    My DD2 used to show a lot of signs of SPD (no diagnosis), but has improved out of sight through dietry changes.

    for you sweetie.

    ETA: I'm fairly sure it was the diet that helped her too, because if she deviates from it too much for whatever reason a lot of her old behaviours resurface. Although she is getting less sensitive to this the longer we do it.

    Let me know if you want to know what we've done.

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    Ulysses  (03-09-2012)

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    Far out ! You don't say that to a parent who you have just told their child is autistic! My son was diagnosed at three, it took 1 hr max for pediatrician to say he was mild to moderate. We paid privately. We got funding and everything sorted within a week though and are now doing RDI therapy which is gentle and fantastic approach. But I do feel the diagnosis was hurried and the pediatrician had zero kid skills , he asked my son to draw and said he was immature at drawing. He is just not interested though. He seemed to push for problems and looked worried the whole time . He suggested we do 15 hrs plus of therapy a week that was the minimum of all different therapies like speech / OT and if possible 40 hrs of ABA a week.
    My gut said hang on, yes he does have many delays and many quirks and yes he is autistic but I didn't want to put pressure on my son so we did nothing. We researched and found RDI therapy and my son is thriving , talking , not always responding but is involved with us most of the time. He has humour and is a little gem! His tantrums are going and that's his age I think . It's 7 months since diagnosis and I believe if I took him back to same pediatrician he would be shocked. They grow alot over the months , if your gut feels it could be the ears why not see how she goes over the next year and get her assessed again . Your already doing speech therapy so your doing something. Don't let this stress you out too much , take the funding and use if for your speech therapy . Many kids do get a different diagnosis later on . my son is mild high functioning I believe , he does not need an aide at preschool like I was told he would.
    Hugs , it hard to hear but take the help and she is only little there is plenty of time for her to grow in her development and you found out early . The outlook can be very positive and your mother instinct could well be right.

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    Ulysses  (03-09-2012)

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    Do you know what I would do, if this is the diag the paed wants to give her, but you feel that it may be off or whatever, then take her to the state Autism association for a diagnosis. That is all they do, all day, every day. Paed's quite often aren't confident with ASD etc. It does cost money though - in NSW, it was $945 with $320 back from medicare.

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    Ulysses  (03-09-2012)

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    Quote Originally Posted by OurLittleBlessing View Post
    I hope you don't mind me chiming in because I don't have a child on the spectrum...

    First of all, I'm sorry that the paed was so insensitive. That's awful.

    Secondly, the vast majority of doctors (from all different specialities) know almost nothing amount nutrition/diet. I personally think you are onto a good thing if you take preservatives etc out of your daughters diet, I mean it can't hurt her right?

    My DD2 used to show a lot of signs of SPD (no diagnosis), but has improved out of sight through dietry changes.

    for you sweetie.

    ETA: I'm fairly sure it was the diet that helped her too, because if she deviates from it too much for whatever reason a lot of her old behaviours resurface. Although she is getting less sensitive to this the longer we do it.

    Let me know if you want to know what we've done.
    thanks for this.

    I would be very interested to know what dietary changes you have made, if you dont mind sharing.

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    A lot of people with autistic children swear by gluten free and Dairy free. My kids are already gluten free, so I can't tell if there is a difference or not. Can't hurt though - it isn't as bad as it seems. I find Dairy free way hard than GF.

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    Default Parents of children with Autism - need your advice

    The paed needs a slap across the head for saying that to you. Our whole diagnosis journey was a year. I am lucky to have a good paediatrician who wanted to try everything else and give DS time before doing the CARs assessment for ASD. DS was not yet 2 when we started the process and now is almost three. We had to do two hearing assessments and MCHAT assessments plus countless hours of speech and occupational therapy to get where we are now. One positive about the diagnosis is Faschia funding so you can access speech therapy and aides to help your little one.

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    Ulysses  (03-09-2012)

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    babynomad, thanks for you info and story. I will definitely take your advice and try not to let it worry me too much. i will have her diagnosed again properly - after some time has passed and as you say i will use the money to help get her up to speed where i can.

    Beebs, thanks for that advice - I will definitely take it - i will do the assessment with the Autism group you mention, no way would i do it again through the public system after my experience today.

    I really appreciate everyones input - i am starting to feel less upset about it all. Thank you


 

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