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  1. #191
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    Default Long Term IVF Warrior Women #2

    Zakmick how are you going with all those FS's to choose from what's your next plan of attack

    Sorry whinge alert..............so my mum calls me up to see how I'm going. Then tells me that a girl came in to work (who does IVF) and is pregnant she fell pregnant without IVF they were about to head over to Adelaide for another round and that she has spent nearly $50000 this year on IVF can you believe it. My reply was that is fantastic miracles do happen and yes mum I can believe it how much do you think we spend trying to have a baby. Why do you think we don't go anywhere except Brisbane and all our holidays are for IVF. I pretty sure mum would have told her (a complete stranger to me) that we do IVF and our whole story would have been told and the story would also be poor me (my mum) my child can't give me grand kids. My mum can be self absorbed all about her attitude.
    And I should make more of an effort to visit my brother and his family (which I do) even if I'm totally down have no energy full of meds that do crazy stuff to your head/body I just don't stay for extended periods. Am I wrong should I go there more, it's just easier with MIL she looks after DD while I go to all our appt and I am not comfortable driving to the city from the GC. I have said we are not here for holidays, I drive to the city every second day for scans BT. I can't win I'm just so over it what to do what to do?

    Sorry just had to get that of my chest
    Whinge over

  2. #192
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    Zakmick is offline Can't change the past, but we can learn from it to make us stronger and move forward!
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    Hey girls,
    Im so sorry I have been very busy, I wrote notes on each of our apts..

    Dandenong the Fertility Centre low cost IVF:
    Apt was with Dr Myran Ponnam-Palam he was great veryknowledgeable and if he didn’t know an answer to my questions he took notes and would research and then email me the answers. He suggested a cycle with Menopur(Luveris) this would help with egg quality, clexane and aspirin during 2ww; he was open to ideas but told me if he thought it wouldn’t be suitable for my case. They are affiliated with MIVF and thus transfers are completed at The Women’s and monitoring is done at Dandenong. They offer PGD through mivf. Majority of their transfers are 2 day ET, or 3 day ET after PGD is conducted. They believe that the embryo is better in the womb than the test tube, thus so many 2day ET. Another thing they said with low cost ivf they like to work with around 5 embryos, anything greater has an additional cost, and that usually there are no frosties unless you are willing to pay. They said it may be difficult to getl ow follicle numbers with me as my dosage is quite low already at 125 puregon.He suggested I go on DHEA, and that is not technically correct that women with PCOS don’t go on this, they just need to be monitored, he wasn’t convinced with melatonin, as mivf are currently doing research in this area.
    When I asked about surgery he said I would have to go on awaiting list at RWH with the reproductive team, and that could be a few mths wait. He wanted DH to have another semen analysis and he took bloods from me.
    He was quite complimentary of my old FS and said they have the best lab around blah blah blah, which makes me think they are either friends or that he looked up to old FS as a role model etc. Bulk bill is for all scans, BTS and specialist apts, you need to just pay for the meds, cycle etc

    Monash IVF Apt with Lynn Burmeister: Lynn controlled the meeting from the start. I didn’t have to ask many questions as she led in the direction I was happy with.
    She stated I needed to have exploratory surgery and discussed having a laparoscopy, curette and hysteroscopy. She discussed that I may have endo and that my tubes may be damaged/ inflamed that could be causing fluid to leak into the uterus. She said that she would clip my tubes if this was the case.
    Cycle she would keep me on puregon, antagonist cycle, with clexane and crinone would be used in fresh transfer and pessaries in FET. She mentioned that VIT D is a must for men, as well as menevit.
    DH would have a semen analysis and that we would use HA-ICSI, and for us to consider PGD SNP ARRAY testing. Although she did follow with saying this may not be needed as new clinic new techniques etc. She said if she saw the SA in 2005 she would have said it was borderline abnormal and would have discussed the results with us.
    I mentioned my concern with having the numbers for PGD (as they test at Day 5)and she said women do cycles and just bank the embryos and with the snap freezing technique at Monash, they are able to then thaw to do testing once there are 8 embryos. You only pay once for the PGD testing.
    She told DH to give up smoking, and wanted me to start metformin. She was very confident, and stated she believed it wouldn’t be hard to get me pregnant. She was also very strict in saying no TCM when stimming but acupuncture was fine.

    Monash IVF Apt with Nick Lolatgis: Nick is a Greek man, who is abrupt, and to the point. He was hard to get info out of as he wanted to do some testing first and get the results. I persisted though as we wanted answers as we needed to make a decision on which FS we were going to go with.
    I was upfront in saying we have 18mths for this to work and then we are stopping and moving on, so we want to go in all guns blazing.
    He went through my BT and said I have antibodies that would be found in my uterus that can affect implantation and continuation of pregnancy.
    He strongly believes I have NK cells (I do too) and would treat me with an intralpid (sp?) infusion through a drip two weeks before ETand then various times throughout 2ww and hopefully throughout the pregnancy.
    He read out a list of drugs at his arsenal, that included:
    Melatonin
    figrastrim
    saizen
    estradil
    clexane
    PET- pregnyl injections before ET and during 2ww
    aspirin, there just the ones I can remember..

    He would do a down reg cycle with the pill and Synarel and then puregon/ gonal f. Both DH and I would go on antibiotics too.
    He wants to do exploratory surgery to check the ‘oven’ out as he said and do a biopsy for NK cells and to check the health of my lining on day21-28, hard to choose date due to unsure where my body is at with coming off a stim etc…
    He wants DH to a semen analysis and depending on the result he may suggest HA-ICSI..
    I have to check my glucose (fasting) and another of other tests, as well as my AMH. He said I have had majority of all the required BT’s that he would have done.
    He discussed PGD testing but believes we shouldn’t have to go down this path yet, as he feels he should be able to find the answer, and it’s not like I have not fallen pregnant. He did say if we had 4 m/c with Monash IVF he would strongly encourage this, but doesn’t believe it is necessary yet. He said Monash IVF have the best lab in Victoria as they pinched the head scientist from Sydney.
    It’s been a hard decision between Lynn and Nick but we feel we need things to be severely shaken and it’s time for radical and outside the box, so we are going to go with Nick.

    He has told me for egg quality I need to be on the following one month before injections commence:
    Coenzyme Q10 600 mg per day
    Omega Fish Oil 1 gram per day
    Vitamin D 1000iu per day
    Melatonin 4 mg per day through a compound pharmacy

    A bit nervous as I ended up in hospital the last down reg cycle I did with migraines, but that was when I was having them weekly, they are more controlled now. So it’s an exciting time ahead!!

    Tuesday I had a laproscopy, Hysterscopy, d & C and hydrotubation, Im a little sore today due to referred pain from the CO2 they put in, but I'll cope. FS said that i have a clean beautiful uterus and cervix but my tubes are blocked. He tried to push the dye through for the hydrotubation and they spasmed. He said IVF is my only option for pregnancy, thank christ otherwise I would have been seriously ****ed off at old clinic and FS. We see FS on Dec 3rd for my pathology results and main thing is to see if I have NK cells. DH is having more tests done too, so hopefully the only way is up now.

  3. #193
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    Zakmick is offline Can't change the past, but we can learn from it to make us stronger and move forward!
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    A personal post now: The thread has been quiet and I hope its because you are all very busy!!!

    April78 I really hope this is your time, your MIL sounds wonderfully supportive x

    loveabug: the synarel use to give me nasty headaches, Im not looking forward to going back this. Im sorry your mum isnt more supportive x

    Our baby dream: how are you going?

    Aloe Vera: How are you?

    Abubby: how is everything going?

    Maryz: how are those numbers going??

    Lillystar: how things going for you?

    Believe in baby: how are you? how was the last BT?

    Lannie: whats the latest with you?

    Haydos Congratulations and thankyou for coming and visiting us xx
    Last edited by Zakmick; 01-11-2012 at 01:07.

  4. #194
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    Default Long Term IVF Warrior Women #2

    Zakmick so good to finally hear from you. You certainly had a lot to think about. I too would have chosen Lyn or nick going by your descriptions. Thank goodness you have found a FS that will do a lot more for you and try their very best to get you your little miracle. Fantastic news with the OVEN looking great for the little embie to snuggle up in with all that testing for you and DH is great news sounds like you are on the right track

  5. #195
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    Hi ladies,
    I hope you don't mind me dropping by, it's good to read where you are all up to and how you are going.

    Haydos congratulations on the birth of your baby girl. You are inspiring and show us all that it can happen.

    Zakmick wow you certainly did your research way to go! Good luck for your appt on the 3rd hopefully it will show NKC and you can be treated. Knowledge is power.

    Loveabug I hear you re: family. I think the only people who understand infertility are those going through it. I got to the stage where I wouldn't go to any family dinners because it hurt me so much. It took a long time for family to understand where I was mentally. I think there needs to be more widespread education about the effects of infertility and IVF as people really don't get it.

    April - Good luck with this cycle

    Hope everyone is going well.
    xx
    SS

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    April78xxxx  (06-11-2012)

  7. #196
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    Default Long Term IVF Warrior Women #2

    Hi summer thanks for dropping by

    Well I'm feeling pretty BLAH! Right now I'm really hoping EPU will come early but like everything will have to wait for Monday no doubt.
    Some exciting scary news just put my house on the market today. It's our first house we bought and we love it! But it's time to move it on. We love our neighbours too, great location primary, high school and uni plus sporting fields mmmmm maybe I should move back lol

  8. #197
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    Default Long Term IVF Warrior Women #2

    So still feeling BLAH! So I think I might make tomorrow an IKEA day.
    How is every one else spending the weekend? I also have a 21st to go to and exciting trigger at 11pm tomorrow as well. 1 sniff and 2 injections to go yay!

  9. #198
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    Default Long Term IVF Warrior Women #2

    How was everyone's weekend?

    Ikea was fun except I had to take DH and he grumbles the whole way round which wasnt my plan but thank god he was their my cube shelving was pretty heavy lol

    EPU today I hate that you can't moisturise my legs look like chicken leg skin and sooooo itchy my whole skin is itchy. And I didn't drink enough water last night/yesterday I feel like a got a slight hangover lol

    Anyway hope everyone is traveling well xxxxx

  10. #199
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    Default Long Term IVF Warrior Women #2

    Hi ladies, I got so lost I can't find if this is the thread I wrote on??

  11. #200
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    Hi Everyone,

    Firstly apoligies I have been MIA of late.

    April78 – How did your POAS goon the weekend? I hope its a sticky one for you.

    Loveabug – I wish we had a ikea around our place. Think the closest one is about a 12 hour drive. How did your EPU go today? hope your recovering well at home this evening.

    Haydos1979 – Congratulations on baby Charlotte. What a real inspiration you are to us all.

    Zakmick – What a lot you have to think about. Its amazing how 3 different FS have different opinions.

    Believe in baby – Yes you have been on this thread How have your BT been going?

    AFM – Plodding along about 9 weeks now and have still had spotting on and off. But the bubba seems to be going strong.


    I hope everyone is going ok

    Take care xo


 

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