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  1. #851
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    Thanks so much Helen, I will be in touch.

    Thanks too Hope, I will have to read back more posts from you. 18 stim cycles, what a strong woman you must be. It toughens you up whether you like it or not hey. Has it been 18 stims spread out with your DS inbetween? Or 18 stims for no. 2? Either way, my hat is off to you.
    As for the media culture, I'm going to believe so anyway! I reckon even if it's not the same as genea a change will be good. Perhaps different embryos just fare better under differing conditions anyway, and at the last place they certainly didn't like it!
    As for our dear Rocky, I'm trying to learn the lesson from him that life is short and to grab it and live it. We can't go on in this turmoil much longer, so I think we'll give wazza maybe 2 tries. Then I think I can accept to try donor eggs. I didn't give birth to that cat but by god I loved him ferociously! His gift to us might be in moving forward and accepting whatever means we have to take to have our family. Whether it be donor, adoption, however, I'm ready to do it. He showed us how much love we have to give and what we are capable of just by being here and letting us love him. Our hearts melted when he came into our life, and beforehand we had unfortunately started to be hardened and perhaps a bit bitter, as is easy to do going through this. But Rocky showed us that is no way to live and I'm not going to keep stubbornly trying to force my body to do it my way. I'll take whatever love the universe has to give us in any form it comes, it's what my husband and I were made for - to nurture and love. I just don't feel like I need anything more for myself, fancy holidays or things...I just want a family to hold and love. I need that purpose that our dear little cat gave us.
    Sorry to go on, but I am promising myself to use the beautiful time we had with our little guy to drive us forward!
    Last edited by lissyloulou; 03-05-2013 at 13:47.

  2. #852
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    Lissyloulou I'm soooo sorry to hear about Rocky, we had two cats that we had rescued from the RSPCA too & the first one got out and was run over only 2 months after we got them, then about 2 years later our other one also lost his life on the road.....i found them both times...
    we were devastated so I know exactly how you are feeling! I swore after that as much as I love cats we couldn't get another as you just can't keep them indoors ...that's when we decided to get a puppy and now we have two...they have been our love & support throughout this whole journey and are just like our children, pets are just so there for you & some how know when you need them, after the many failed attempts we had when I would come home & cry my dogs would cuddle up to me as if they were trying to comfort me they are honest and pure and I just love them sooo much.
    time will heal but sending your lots of as I know it's not an easy time...

    Helen - go for the puppy you won't regret it ( just be prepared for chewed shoes and smaybe some holes in your lawn....

    Kiwi
    Me 35 DH 33

    Trying since 2009
    4 IVF cycles: 4 chemicals, 3 BFN
    Feb 2013 PGD + Dr M's protocol with Intralipids and finally my BFP Due Oct 2013

  3. The Following User Says Thank You to kiwi77 For This Useful Post:

    helenmac  (06-05-2013)

  4. #853
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    helenmac - so sorry to hear of your BFN, my heart goes out to you and your family. Thank you for your amazing optimism, support and wisdom. I wish you all the best going forward, you are an inspiration to us all.

    lissyloulou - thinking of you and your beloved Rocky

    Hi everyone else hope you are all well wherever you are in your TTC journey.

    Here's my update - sorry for the long 'me' post:

    Had my phone consult with Dr M a few weeks back, and sent off lots of blood to Chicago. DH almost fainted after 3 vials, meanwhile the pathology lab was out of 10ml tubes, so I had 24 vials of blood taken!!! No time for fainting here - had to help label the tubes for the poor lab guy, bag 'em and get them to the courier waiting outside in time for the overnight flight to Chicago.

    For ladies in Melbourne, I used www.mnx.com.au who specialise in urgent medical couriers internationally. Cost was about the same as First Couriers in Sydney - $650-ish from Melbourne to Chicago. They made it within 48 hours, I tracked everything online and could see when it was signed for and by whom when it arrived in Chicago.

    So - the results are in. NK cells are 2 x more aggressive than normal (both CD 19 and CD5). This confirms/validates results from Prof Sacks in Sydney who also tested me. Also my Th1 and Th2 cytokine test came back at 38 (normal range is 13-30). Finally our LAD test came back quite low, so ideally we would do LIT treatment but won't have time for this cycle, apparently you need 5-6 weeks for this to work (would be interested if anyone has done this, please let me know).

    So the recommendation is to do IViG, but Dr M said we can also do intrallipids given we are doing PGD and follow up with IViG when we get our BFP. Not sure which way to go on this - might be tempted to spend the money and do IViG upfront given we won't be able to do LIT and it is a stronger treatment vs intrallipids. Looks like I'll be in Sydney on the 25th May for my infusion.

    My EPU is scheduled for Friday 31 May. I start my Prednisolone tomorrow 20mg per day, 30mg post transfer and 35mg when we get our BFP
    Start 40 Clexane on Day 1, upping to 60 post transfer. Plus the usual Megafol 5mg and aspirin (for Protein C and MTHFR), double dose Caltrate for the prednisolone, ELEVIT and fish oil.

    So strangely enough it's good to get confirmation that we have immune issues and that some of those chemical pregnancies have an explanation (of course not all embies are normal, that's the sad truth). Hoping the above get us over the line and we are on our way to our hearts' desire.

    Lots of baby dust to you all.

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    helenmac  (06-05-2013)

  6. #854
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    Hope, I also had a long 6 month wait to see wazza, but it was worth it! I was called with a cancellation ( you can ask to be put on list) but was in the middle of a cycle with previous fs so didn't take it. We booked in October last year for April this year and kept it as a last resort. We thought 3 cycles with previous fs would have us over the line, after many previous cycles, but we wound up having terrible results. Thank god we hung onto the appointment with wazza that we hoped we would never need. We actually had booked with wazza about 2 years ago and foolishly were swayed at the last minute to cancel and see someone else. How I rue the day!! But it wasn't to be and we are here now and that's what counts. Had a scan with him this morn and he was a cracker. My eyes are hanging out of my head red raw with tears about losing our dear little boy Rocky, and he is just the most warm and generous man. He had me keeled over laughing about various rooties he wanted us to have, and some choice stories about videos they have in the 'sample' room. First laugh we have had in days. DH loves him. I love him. We feel whatever happens we have wound up at the right fs for us. You can just tell he does this for the love of it.

    Thankyou kiwi!! Such beautiful words from you. You are a woman that knows my own heart. I know we will have animals in our life again when the time is right. If we get lucky enough soon we will wait til the baby/babies arrive and share the joy of kittens or puppies with them. Will see what happens, but my god our little guy has taught us so much. Oh the love we felt and still feel. We were so lucky to have him!

    Lite, all the best with your upcoming cycle! and thankyou for your kind words. I have not heard of LIT treatment. I wonder why some of us are recommended certain doses of prednislone and/or IVIG rather than intralipid. As I have very high nk cells in uterus & blood, I'm not sure why I am only on 25mg? Perhaps as aside from mthfr and slightly high anti dna antibodies, nk cells is my only issue. But I trust Dr M & wazza. I will be due to go up to 30mg if we get a positive. I was only on 10mg with previous fs, so happy to at least be a lot higher than that. Perhaps if I have to go to another cycle, and I say to both doctors that this is the last shot with my eggs they might up it even more. Fingers crossed for now. I am also on 60mg clexane, as I have the most severe mthfr mutation - homozygous c677t (which means 2 copies, one on each dna strand)
    Last edited by lissyloulou; 04-05-2013 at 12:27.

  7. #855
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    Lissyloulou - All our 18 cycles have been done in an attempt to have a sibling for our DS. Our DS was conceived naturally following my first miscarriage. It was only after trying unsuccessfully for a long time that we saw a FS who diagnosed Stage IV endometriosis. I didn't even know that I had it so it was a huge shock. I don't have any Fallopian tubes due to an ectopic and suspected ectopic (that wasn't) so IVF is the only way we can fall pregnant now. Naively, we believed our FS when he was certain we would do well with IVF and whilst we have had a couple of pregnancies, none have been sustained. We kept going because we were continually told that there was nothing wrong with our embryos and we were just unlucky. Our FS was very open to try different drugs so that's what we did each cycle (DHEA, luverus, lucrin, prednisone, growth hormone, FET instead of fresh) but still the outcome was the same. I was then tested for NK cells and once confirmed, I made my way to see DR S, who in my opinion was completely rude, told me you might look young but your eggs are not, your eggs are crap, you either need to get a donor or give up. He said all this without even looking at any of my paperwork, such as AMA, embryo quality etc. When I showed him this he simply said, you may have an AMH of 17.6 and that is unusually high for someone who can't fall pregnant and your embryos may look good but your being fooled, after this many cycles the only conclusion that can be made is that your eggs are crap!! Needless to say I left his rooms feeling at a complete loss. I then made an appointment with a clinical immunologist in Brisbane who completely dismissed the NK theory and told me any Doctor who attempts to treat people with high NK cells is like a mad scientist. He was adamant that all NK cells are helpful. This process does certainly toughen you up, however I lost my way after this and decided no more IVF until I can find somebody who is going to take my concerns seriously. The majority of my cycles were back to back and hugely draining, emotionally, financially and physically. We haven't done a cycle now in over 12 months. My plan is to do 3 with Dr M''s protocol and then we will reassess. We are certainly getting to the end of the road with this and the only reason we are doing more IVF at all is because I found this thread that the lovely Helen set up and that led me to Dr M. Sounds like Wazza is a cracker! It is great that your DH likes him, it is good when they are comfortable with the FS as well. Thanks for telling me about the cancellation list, I will have to ask to get put on it

    Litefantastic - So glad you have finally found some answers. I truly hope that DR M will be able to get your immune protocol right so that you can get your BFP

    Good luck to everyone who is cycling at present

  8. #856
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    Hi ladies could u please give me some advice?
    At how many weeks have you started to wean off prednisolone, pessaries and clexane?
    I realise drs have diff opinions and the blood tests to test the surface markers are important ... But I'd like to know what ppl have actually done??
    Thank you ...


    Me 32 / DH 36
    #12 March FET PGD, Bondi Protocol + Intralipid BFP

  9. #857
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    Hi Romy,

    I started weaning progesterone week 10 so I that I was off it completely by week 13, schedule given by fertility clinic.

    Started weaning prednisolone 5mg a week from week 14 down from 35mg until I get to 10mg, schedule given by Dr M. Not sure what happens when I get to 10mg?

    Clexane I will stay on until just before birth due to family history of blood clots and ore- eclampsia.

    Hope this helps :-)

  10. #858
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    19 eggs wahoo!!! 5 were immature, which leaves 14. 10 to normal ivf, 4 for icsi. Scientist said interesting stuff about ivf vs icsi. Will update further later. Feeling hopeful!

  11. #859
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    Wow lissyloulou!!!! Awesome egg haul!!!! Lets hope this is your little family ready for transfer and the freezer!!!!! Hope your feeling well and can't wait to hear of your little embies and their progress!!! What protocol do you now start (or more so continue on from today???)

  12. #860
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    What a great result Lissyloulou, so happy for you. Hope your feeling ok and getting lots of rest. Fingers crossed for some great results . Would love to hear what the scientists had to say about icsi vs ivf when your up to it.


 

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