Helen you poor girl. What a long journey for you.
I have been trawling through Dr Braverman's site this afternoon - I am not sure if you have checked it out. Goodness I wish that I was in the US! It would be so much easier and less worry then.
From reading Dr Braverman - I was thinking of asking Dr M to add in an intralipid for me between IVIG infusions just as an extra precaution. I have high TNF alpha and CD56. Anything to quell that inflammation.