I am seeking some stories of hope and advice for some “out of the box” fertility treatments. I am a recently married 28.5 y/o and my DH 34. We have been TTC since Feb 2011 without even an inkling of success.
I have several surgeries, 10 in total, two were TOPs with my ex partner (please no judgement on this, you cannot make me feel any more guilt or hatred towards myself that I already feel). I was diagnosed with endometriosis and a unicornuate uterus in 2010 after emergency surgery that removed my right ovary. After this surgery I was told my chances for pregnancy where not impossible but would be difficult. So at this stage, I knew I had endometriosis, half a uterus, one ovary, one fallopian tube. However after surgery to assess my sub fertility in April I was also diagnosed with acute cervical stenosis and damage to my only fallopian tube. The hysteroscopy that I was scheduled was not conducted due to my “deformed cervix” and the surgeon was unable to get through. I was told that the only “reasonable option” is IVF in order to achieve pregnancy.
My DH has had S/A that have been normal and satisfactory so the burden and problem has fallen directly on my shoulders.
I have spent thousands of dollars on surgery, tests, ultrasounds and naturopathy treatment for my endometriosis to be told that none of it has helped and that I now face intervention more surgery and more tests with a high chance of getting the result that will not be able to carry a baby.
Further to all of this, a recent 3D ultrasound showed a massive endometreoma that measures 54x44x49mm. The news of this left me totally devastated and feeling even more hopeless. 2 days after the US I had another appointment for a second opinion as I am not one to settle on the word of one person. This specialist performed another US and showed that there was ovarian tissue present (a contradiction to what I was told during the 3D scan) and he told me that my bloods showed my AHA level although lower than usual was still good and bloods showed that my body was ovulating and doing it well. This specialist also recommended IVF treatment and referred me to a FS, a Prof and apparently top of his profession....
I saw this Prof on Thursday and I found him nothing but negative. He informed me that my situation was extremely difficult and he did not want me to proceed with IVF until I had more surgery to remove the endometrioma. He then proceeded to tell me that this surgery risks massive complications and a 1 in 5 chance of complete sterilisation and that once/ if this happened my only option was donor eggs. (He did not appreciate me telling him to f**k off at this point).
He then referred me on to ANOTHER specialist (let’s call him specialist number 4) because Prof FS is not a surgeon?! So I managed to get into see the surgeon yesterday (a fluke because otherwise I was waiting till the end of October). This Surgeon pretty much discounted or contradicted nearly every single point that the FS said and gave me 4 options:
1. Surgery that WILL damage and possibly kill my only ovary and may leave me with a colostomy bag and/or sterile;
2. Proceed with IVF that has a high likely hood of failure and wasting a great deal of money and during stimulation risk increasing the size on the endometrioma, further damaging my ovary;
3. Do nothing, try for Spont pregnancy and risk that the endometrioma grows and has a very low chance of success; or
4. Start a round of Zolodex for 3 months to attempt to shrink the size of the endometrioma which will put me into simulated menopause and could do nothing then go straight to IVF treatment.
Again I am not one to take any one opinion as truth and oath. I do not trust doctors or surgeons. I have only ever followed their directions and treatments with leaving me even more broken than I was in the first place. The last surgery I was supposed to lower my levels of pain... this has worked in to the adverse and has increased my pain levels. Apparently I am the 1 out of 5 people that this can happen to (hence my huge hesitation at having more surgery that has a 1 in 5 chance of leaving me sterile).
I have made another appointment with another FS who I will see next week to get another opinion and further advice regarding the use of Zoladex as I have not managed to find any info regarding the long term effects of this drug.
Has anyone used Zoladex to shrink and endometrioma with any success? And then gone straight on to IVF with success?
Has anyone tried a natural collection rather than an IVF collection due to endometrioma with any success?
I am here for some encouragement and to know that my situation is not the only one out there. I know my case is unique and challenging but I am sick of feeling hopeless and a demented freak. Also I want tips on what else to try. I’m looking for suggestions that are “out of the box” that I can research and find out if they will work for me.
Any help is greatly appreciated.