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  1. #41
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    Oh wow, that gives me a bit of hope! Thank u! I'm going to print that and take it to the paed!

  2. #42
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    I'm a bit confused - my DD would fall into the "severe intolerance" category as she presented with Failure to Thrive as well as reflux/colic. What does that mean for us? Isn't a paed a specialist?
    Last edited by Cue; 20-07-2012 at 21:49.

  3. #43
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    It is a bit confusing.. And yes, that's what I thought too!

  4. #44
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    Default Neocate, Elecare and the PBS - CLARIFICATION

    Hi all,

    I agree this is a serious problem - but just to clarify.

    Paeds and GPs still can prescribe Neocate and other amino-acid based formulas (like Elecare) in consultation with either a paed gastro, a paed allergist or an immunologist. That can take the form of a phone call or email between the GP or paed and the specialist and they then have to have an appointment to see the specialist. And they have made allowances for waiting lists to see specialists too.

    I don't think they've taken into account the prevalence of cows milk protein intolerance (2% of the infant population under 1 yr) and soy intolerance (approx 1%). They have made the destinction between CMPI and reflux (although they often occur in the same kids they are different things).

    I also don't think they've taken into account the very small numbers of paed gastros, paed allergists and immunologists in the country. In Perth the waiting list is now up to 2 yrs to see a paed gastro out of PMH.

    So its definitely worth complaining.

    We've published and article on it here...

    And I've uploaded our letter to the PBAC and our responses here as well. Print off the response from the PBAC and take it to your GP or paed appt so they know what they're allowed to do.

    Hope this helps.

    Jo Matthews
    President
    Reflux Infants Support Association Inc
    www.reflux.org.au

    PS if the attachments aren't usable through this forum, email me at risa@reflux.org.au and I'll email them through.

    20120516 PBAC response pg 1.jpg20120516 PBAC response re amino-acid formulas.jpg20120417 Hill re amino acid based forumla pg 1.jpg20120417 Hill re amino acid based formula pg2.jpg

  5. The Following User Says Thank You to JoMatthews For This Useful Post:

    Nowhere  (26-07-2012)

  6. #45
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    Thanks so much for your help! I will view the attachments on my comouter later as im on my phone.

  7. #46
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    I just got back from our Paed appointment, he hadn't heard about the change. He decided to try to get the script approved anyway, when they asked if it was in consultation with a gastro/immunologist/allergist he just said yes and gave his own name. They approved it and we have a script

  8. The Following 2 Users Say Thank You to Cue For This Useful Post:

    Bunny Lover  (24-07-2012),Nowhere  (23-07-2012)

  9. #47
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    That's great news!

  10. #48
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    Hi guys - I'm sorry to crash your thread but a QLD newspaper is doing a story on these changes and how they affect parents. they are looking for a QLD parent to talk to about the issue. If you'd like to chat with the journo her name is Jackie and her details are sinnertonj @ qnp.newsltd.com.au (without the spaces) or 07 3666 6346.

  11. #49
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    Bummer! I'm in NSW.

  12. #50
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    I just managed to wean DS off neocate advance last week... So glad I did now with all this happening!


 

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