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  1. #21
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    It's all wrong. I'm not sure that Medicare have actually thought this through. It's Medicare that's responsible, I checked.

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    This worries me to know as we are TTC #3 and my DD has allergies & required neocate. I will have to hope like crazy that #3 is fine

    For anyone whose bub is 12+ months & on neocate or elecare, bub should be able to move to rice milk there is one which is protein enriched, my paed recommended it to me for DD and she has thrived like crazy on it

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    Quote Originally Posted by Blue&Pink View Post
    This worries me to know as we are TTC #3 and my DD has allergies & required neocate. I will have to hope like crazy that #3 is fine

    For anyone whose bub is 12+ months & on neocate or elecare, bub should be able to move to rice milk there is one which is protein enriched, my paed recommended it to me for DD and she has thrived like crazy on it

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    Maybe a good idea to discuss with treating professionals now or when you fall. Would it be possible if you fall pregnant to make an appt when you hit second trimester?

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    Quote Originally Posted by Blue&Pink View Post
    This worries me to know as we are TTC #3 and my DD has allergies & required neocate. I will have to hope like crazy that #3 is fine

    For anyone whose bub is 12+ months & on neocate or elecare, bub should be able to move to rice milk there is one which is protein enriched, my paed recommended it to me for DD and she has thrived like crazy on it

    Sent from my GT-I9300 using BubHub

    Seriously be very very careful giving out advice about putting babies on rice milk just because they are over 1 year of age, If i followed that advice my daughter wouldnt survive.

    It may work for milk cases and children that can eat as well but ones that are holey and soley dependant on formula is would NOT be enough my daughter is J tube fed into her bowel and can not break down rice milk it also has not got any where near enough calories alone to sustain life

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    just spoke to our hospital pharmacy manager and he said this stuff doesnt apply to the kids that are under the hospital just the ones that see Gps and private peads not the really sick ones under the hospital

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    Quote Originally Posted by Ezzabee View Post
    Maybe a good idea to discuss with treating professionals now or when you fall. Would it be possible if you fall pregnant to make an appt when you hit second trimester?
    I'm going to ask my gyno when I see him next but still, I can imagine how stressful this situation is going to be for a LOT of people! I only just got my DD into a gastroenterologist after 2.5yrs! What would I have done if the paed hadn't been able to prescribe neocate/elecare during her first 12 months?!

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    Quote Originally Posted by Nowhere View Post
    Seriously be very very careful giving out advice about putting babies on rice milk just because they are over 1 year of age, If i followed that advice my daughter wouldnt survive.

    It may work for milk cases and children that can eat as well but ones that are holey and soley dependant on formula is would NOT be enough my daughter is J tube fed into her bowel and can not break down rice milk it also has not got any where near enough calories alone to sustain life
    Well I said *should* and clearly I would expect people to be sensible enough to at least seek advice prior to doing it - I was simply pointing out another option for those who (unlike yourself) could be able to move off neocate/elecare & avoid the difficulties this new rule will cause.

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    Hi all, for those in Syd I just rang the gastroenterology dept at Westmead. I may have catastophised slightly - they are booked out until August. There is one dr who is very popular (I think she said Dr Steadman) who has a waiting period of 6 months however can be accessed through his private rooms.

  11. #29
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    Quote Originally Posted by Blue&Pink View Post
    Well I said *should* and clearly I would expect people to be sensible enough to at least seek advice prior to doing it - I was simply pointing out another option for those who (unlike yourself) could be able to move off neocate/elecare & avoid the difficulties this new rule will cause.

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    yes but not every one is sensible or may not have access to a pead as easy and can read that and think oh i can try that and it cause problems, just gota be careful giving out advice like that when you dont know the severity of kids issues thats all im saying, cause there is a vast level of issues kids can have some milk some terrible

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    Quote Originally Posted by Ezzabee View Post
    Hi all, for those in Syd I just rang the gastroenterology dept at Westmead. I may have catastophised slightly - they are booked out until August. There is one dr who is very popular (I think she said Dr Steadman) who has a waiting period of 6 months however can be accessed through his private rooms.
    That's great that you don't have a long wait! I've been advised that since the waiting lists are so bad here in Qld with a dire shortage of specialists that some people are actually flying to Syd or Melbourne. I'm waiting to hear back from the private allergist I was referred to to see how long til I can get an appointment. They have mentioned the possibility of an initial telephone consult in conjunction with our paed to get repeats, so there's hope.

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