In 2008 my 15 month old was diagnosed at the Royal Children's Hospital, Brisbane, with Bronchiectasis. I was devastated and desperate to make contact with other parents who's children had the same problem, however I came up with nothing. I searched many parenting forums but was unable to find anyone with any experience with childhood bronchiectasis.
Yesterday, after almost 4 years, we had a CT scan to see how our boy has responded to the treatments that Dr Wainwright in the paed respiratory department had set out for us and the findings were nothing short of extraordinary! The lung damage was all but 100% gone and his lugs presented as healthy as any other child. It was more than we could ever have hoped for! We are so grateful to the hospital and Dr Wainwright in particular.
I just wanted to post this in case there were any other mums out there worrying about what this diagnosis means and whether there is any good news on the subject. I would be happy to share any information that might make someone else's journey less terrifying than mine.