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  1. #1
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    Default Just been diagnosed with endometriosis..help!

    Hi ladies, after 5 rounds of fertility treatment and two miscarriages I have finally been diagnosed with endometriosis. I had the laparoscopy on Friday and was told I had a fair amount of it in my pelvis which they removed. I see my fs for more info on Thursday....
    What I want to know is what are my chances of conceiving via IVF now that the endo has been removed?
    Could this have been the cause for my early miscarriages?
    I always get a good number of embryos and have a couple make it to blast stage. So I don't think the endometriosis affected me in that area.
    I just really want an answer to my miscarriages...
    Is there anything that can now treat the endo? What sort of protocol will I be on??

    Sorry for the million and one questions. I think I am still in shock. I just hope I still have a chance of being a mum



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  2. #2
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    Hi dandelion,

    I heard so much about endo during my 2nd year of ttc. After our first failed IVF incl. chem FET, I decided to get a lap just to be sure I didn't have it and it was the cause of our failed pregnancies. I had no symptoms whatsoever.

    Did the lap and they found endo in 3 places, including ovaries. We tried naturally for about 3 months before changing clinics and trying again. So far we had another failed IVF and currently in the 2ww. Even though i'm not preggers yet, i'm glad I checked and they removed the endo. The new clinic would have told me to check anyway so glad we did it before we started. Hate for it to be the cause after spending so much on IVF.
    Last edited by Rachael3; 08-07-2012 at 17:25.

  3. #3
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    Hi dande!

    I am a fellow endo lady. Its genetic for me.... But good news is that all the other women in my family have concieved (naturally and with assistance). Some of them have severe endo.

    FS told me that post lap is when you should be most fertile. The removal of the endo means that your pelvis has less inflammation. I was told my pelvis should now not be 'hostile'

    They will have been able to see if you have any scarring on your uterus or blocked tubes. Have they told you (I knew straight away when I woke up so dont stress if they havent mentioned it)?

    We are also being treated for MFI so its hard for me to know if its the endo that means our cycles havent worked.

    What I can say is 7 months post lap and regular accupuncture and AF is much better now! Previously had severe pain, irregular cycles, clotting etc.

    I recommend looking into accupuncture if you are not doing and some of the diets that are recommended. Its all the 'inflammatory ' foods to avoid. Caffine alcohol and sugar.... Boo!

    Fx hun x



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    Subbing as I had stage 4 endo removed by lap 5 days ago so am also interested in the responses .

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    Bugger Dande! Glad you are getting some answers though! I am looking at getting a lap done, I am going into cycle number 9 now and am getting a bit fed up! I think I have endo (im no doctor obviously) but fs is reluctant to do a lap (he's not great with further investigation).
    Anyway, I know heaps of girls with endo that have concieved with IVF!
    I know it's so hard hun, but hang in there!
    Lots of love to you x

  6. #6
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    Hi dancingbutterfly, we are also dealing with MFI, however we have chosen to overcome that problem by turning to donor sperm.
    Until I had this laparoscopy done we thought that it was our only issue.
    I will check out the endo diet, thank you!
    I am unsure of all the finer details of my surgery, I think I will find out more on Thursday when I see my FS. All I was told was that there was a fair amount in my pelvis but all went well and it was removed....

    It is odd, I have never had a single symptom of endo other than heavyish periods.
    I do get acupuncutre so hopefully once I tell her about my endo she will be able to start treating that too.

    Wishing you lots of luck and baby dust


    Jetaime - Hi!! Im so sorry to hear you are still cycling. You must be getting exhausted, I know I am.
    If you can, I would really push to have laparoscopy done. A lot of women who have pcos can also have endo, and it doesnt hurt to get checked out. My new FS does them routinely after the first IVF cycle if it doesnt work out.
    I am so annoyed that when I asked my old FS to do it she didnt. Instead she did a blood test and said I was fine!
    It could have saved me SO MUCH money and the heartache of another miscarriage if she had just done what I asked and trusted that I know my own body better than her.
    At least I know now though and my new FS is amazing.
    I am also getting tested for natural killer cells, it has to be done on cd21 I think.
    Apparently some women have an increase of these cells and they attack the embryo as though it shouldnt be there, resulting in chem preg/early miscarriage.
    You have done so many cycles, I really think your FS should be starting to look into why this isnt working for you, especially because you are so young like me! I am so upset that this endo wasnt detected sooner and that no one listened to me. I would hate for you to have to go through the same.

    Keep in touch, thinking of you, and sending lots of baby dust


 

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