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  1. #1
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    Default What's your typical cycle like with endometriosis

    HI


    I was wondering what is typical cycle for you. I have a sneaky feeling that i might have endometreosis but will not be able to find put till August (earliest appointment with the FS)



    So from the first day of your period right up till the last day of your cycle. Pain/pain management/moods anything that you think is because of your endo really



    Thanks in advance

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    I think everyone is different, both myself and my sister have endo and she was in worse pain than me during her periods (to the point of passing out). My pain seemed to come more before and after the period because I also had a big endometrioma on my left ovary.

    She had a laparoscopy and had a chocolate cyst removed and some adhesions, and then fell pregnant about 12months later with out really trying. I think since she has given birth her endo is gone also.

    2 months ago I had a laparoscopy and then they went on to do a laparotomy to remove my cyst. No other symptoms really just the normal pms, bit cranky, sore boobs, bit of cramping. I have pretty long cycles on average 35 days and my partner and I are now ttc. Dr said our chances will be a lot better now the cyst is gone so we'll see in the next few months

    What sort of symptoms are you experiencing?

  3. #3
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    Thanks so much for your reply!

    Well Before TTC I would never have thought I could have endometrisos, but from what I have read it's more then just horrible pain(that's hat I thought it was al about) but some people only have mild pain.

    I get increasing cramps after ovulation, my whole belly area starts to bloat up, constant changes in toilet habits, so diarrhea/constipation, period is medium to heavy but always need maxi pads and tampons, I get very bigs clots.
    The pain is medium to bad but I used to get worse as a teenager, but horrible poo and gas pain when I have my period. I do have a few symptoms but I won't know for sure till I get a lap done. Only a few weeks ago I thought I had pcos but that was ruled out, but I guess it's the next step to investigate.

    With the laprascopy is it common for the doctor to do all the work like removing the endo and cysts/mases or do another lap at a later date? the first one just investigating?


    Thanks again for your reply

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    I just had a lap yesterday actually. My fertility specialist did an operative lap. So basically he looked to find endo and if it was there then he would removed it at the same time. I do have endo, stage 4, and he got most of it cut out .

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    Oh yeah I had troubles going to the loo too, it was painful doing a #2 (felt like something was pushing against my bowels) plus sex was painful as well so thats when I went and got an u/s and they discovered the cyst and the possibility that I might have endo (plus my sis having it and possibly my mum too-she had big clots like you and her flow was quite heavy and she freq fainted also). You are right they won't know for sure until they do the lap procedure and go in and have a look..

    They will do everything in one go so you will have to sign a consent form once everything is explained to you, there was a chance that if they had to they would remove my ovary (they didn't though ) plus the chance that they might do the laparotomy if they couldn't remove the cyst with laparoscopic surgery.

    The dr will explain everything to you and give you the different scenerios. I was very nervous about the whole thing because I've never had any surgery done before but all turned out well and no complications and I'm glad I had it done I am pretty much pain free, my last period i still had a little bit of cramping but nothing bad enough to take pain killers for.

    Good luck with it and they find out what it is

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    I have always had a 28day cycle. Every now and then I have a 24day cycle. It was more the length of my periods. When I was diagnosed I was having 10-12 day periods that were extremely heavy for 8 of those - going through 3+ packs of pads a month. I had a couple blackouts from blood loss.

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    Default What's your typical cycle like with endometriosis

    I have endo and Polycystic. NEVER had a normal cycle (and that's been since the age of 14)! Had 2 lapros, curette, miscarriages, etc. as someone said I think it's different for everyone. My Polycystic (as far as the hormone imbalance) isn't severe but my symptoms as far as bleeding (I can do it every week or once every 3 months) and I also have pain to the point of blacking out, vomiting, etc. but everyone is different! Best thing to do is find a good gyny.. Took me years but finally found one who goes above and beyond really does put your mind at ease!!!

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    My cycles are normally 26 days, ovulate day 8. AF last for exactly 3 days with spotting on the 4 day. It excessively heavy, and soooo painful!! I go my first AF when I was 10 years and its always been heavy and painful but probably has progressively gotten worse. However I just tried to ignore it cos GP's kept telling me it was normal!! I can't help but wonder if bein so young has influenced the endo????? And clearly I'd have used a lot of eggs by the time I was really to have babies! I should have been trying to conceive when I was 20! That would have been my prime! 😒

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    I had stage 2 endo. I had an exploratory lap done this time last year and they found some and removed it in the same op. My periods were very regular but my cycle was of varying length. I had some pain when going for a poo during my period so I think thats why they decided to investigate. It really wasn't a huge problem though so I was surprised they found anything. I've also got PCO but none of the symptoms.
    I was trying to conceive for 2 years before my lap and did get pregnant 6 months after through IVF.........but I'm not sure how much of that was down to clearing the endo, I think we just got the right egg in the end. We're not sure.

    Hope that helps, sounds like everyone has a different story!

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    My cycle is between 28-34 days and I have normal periods. I get pain at ovulation with horrible bloating. It's incredibly uncomfortable! I had a lap in April 2010 after about 8 months TTC and fell pregnant shortly after (m/c, then a few months later fell again with DD). They found some endo and removed it in the same surgery. I had my second lap about 2 weeks ago as the pain came back, but no visible endo this time.

    good luck with your FS appointment.


 

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