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  1. #31
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    Dear Earthpower9 & Bella - welcome to the thread. I only found Dr Matthias thanks to a gorgeous woman I met at a Genea Support Group - so I feel it was meant to be as well. At least now I will know that I have really tried everything.
    Just in terms of telling your doctor: I elected to swap FS to Dr Geoffrey Reid at Genea as he was recommended as being so much more open to immune therapy than my own FS at Genea. I am so glad that I did this as my husband is much more comfortable having all of the doctors in the loop. That said, you don't need to tell Dr Sacks - the last thing that you need to have is a negative doctor frightening you when he hasn't been able to help.
    I did have to have an endometrial bioposy (at Hurstville Private). Dr M uses his own pathologist so gets the results that he wants. The blood goes to Chicago - they took 16 vials from me and 4 from my husband - as the clinic in the US is very advanced and can do the types of testing that you cannot get here. All good. I am 3 days into my 21 days of prednisolone prior to my stimulated cycle. Finally I feel like I am getting the treatment that I need rather than doctors just 'trying' something for unexplained miscarriage and implantation failure.
    Nat84u - you lucky girl not having to do IVF this time. Good on you! Unfortunately, I will be having the whole kit and caboodle - clexane, prednisolone, IViG (at some vast cost!) and a whole lot of hope. M
    Just hope that I get an embryo now that I have everything else all lined up.
    Please let me know how everyone gets on. Sending warm wishes to you all.

  2. #32
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    Well DH & I met with Dr Matthias today at his Miranda office and he is so nice! Explained things very clearly and we really felt like he listened to us. He ordered some bt's for both of us, another semen analysis for DH and is doing a hysteroscopy & endometrial biopsy on me next week! I think it was pure luck that I'll be at the right time in my cycle and he had a surgery opening.

    So glad I found out about him (thanks nat84u) and really hope he can get us some answers

  3. #33
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    Hi Festivalgirl, thanks for the advice. Mine upcoming cycle is relatively simple and it will be a drug-free FET, so I thought its not imperative Dr. Sacks needs to know...anyway, we will see.

    BTW, how much it costs for each IVIG? I saw in one post about $650, do you know you can claim this back from medicare? And how long it takes? Do you have to stay in hospital overnight? sorry for all the questions. Good luck with your cycle, keep us updated.

    Bella, glad your appointment went well. Sounds all ducks in a row now... I hope this is a turning point for you!

  4. #34
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    Hi Bella - that is great that he could fit you in so quickly. My period came a few days earlier than usual after the biopsy. If you are sending bloods to the US I cannot recommend First Couriers highly enough.
    Hi Earthpower - I am a bit of the novice on the IViG just yet. I can let you know as soon as I find out a bit more next month when I start my cycle. My girlfriend had this treatment and she tells me it was around $2000 for each treatment (she needed 3) for this pregnancy. One prior to the transfer and 2 following her positive pregnancy test. It is sold by the unit measure so the smaller you are the better. Nothing could be claimed from Medicare or private health insurance for this treatment. She said that she was in at the hospital for hours finishing around 11pm so her husband came and got her and took her home but that she could have stayed in overnight if she wished.
    I have read that the intralipids are more around the $650 mark. But Dr M has recommended the IViG for us so that is what we will be doing as I am already over 40 and don't have time or embryos to spare!
    We are also going to put in 2 this time if we manage to get 2!
    Warm wishes to you all.

  5. #35
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    helenmac is offline After 3 yrs of tcc I've got a BFP!
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    Hi Ladies,

    I've asked the mods to set up a 'Reproductive Immunology' subforum which is under the Fertility Assistance area.

    It's great to have our own area where our threads and posts don't get lost in the mix in the IVF area.

    Please come and join me in there! Thanks, Helen.
    Last edited by helenmac; 09-08-2012 at 08:19.

  6. #36
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    Thanks Helen for setting up our dedicated little forum, see u in there...

    Festivalgirl, thanks for the extra info, very helpful although scarily expensive!!! Anyway, i guess it will all be worth it in the end right?

    Ok everyone, see you in the 'Reproductive Immunology'.

  7. #37
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    First time using this. Rachael3, who at genea was your doctor?

  8. #38
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    Quote Originally Posted by Cct View Post
    First time using this. Rachael3, who at genea was your doctor?
    I will PM you my FS, but he was right I don't have high natural killer cells...wasn't my problem

    Can't find the link to PM you. Will send on my PC tomorrow.
    Last edited by Rachael3; 21-10-2013 at 19:16.

  9. #39
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    Ok thank you. I'm not sure how to use the pm on here sorry.

  10. #40
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    Unhappy Newbie - 4 failed IVF/ICSIs - poor egg/sperm quality and possible immune issues

    Hi everyone, what a relief it is to find some help and find some other people who get the frustrations and emotional rollercoaster this is and how unhelpful your own REs can actually be if your problems are "non-standard". Without forums like this I wouldn't have anymore hope and would just despair that it will never happen.

    Here's my longwinded story story - it's a complex IVF one as my husband had a vasectomy and we are now based overseas in a country that due to language and different medical policies, infertility treatment is tough and we've been forced to do it overseas at great cost and logistical stress to plan.
    ____________________________

    I am 37 years old with low ovarian reserve (AMH 1.2 ng/ml). My husband is 52 and has 3 kids in their 20s. He had a vasectomy 20 years ago which we had reversed last month but it has not worked so far as there is no semen present in his ejaculate and the surgeon was only able to reconnect the left testes. Last year I was living in NYC so did 2 IVF cycles there but now we are based in China so I have moved our IVF to Sydney for easier access from China and cost issues.

    So all up in the last year, we have had 4 failed IVF/ICSI cycles. I did the first 2 cycles in NYC where I was on 450 Gonal and 150 Menopur. The first cycle was an egg freeze of 15 mature eggs as we didn’t have my husband’s TESE sperm yet. DH then nderwent a TESE biopsy and his TESE sperm was frozen for ICSI use. Out of this cycle we thawed and fertilized in June and got 8 embryos which were looking great on day 3 but then all but 1 had arrested by day 6. That blastocyst was transferred on day 6 but it did not implant.

    My other NYC cycle was using the same meds. On that cycle we decided to do PGD. We got 15 eggs, 14 mature but only 4 embryos fertilized. 3 embryos looked great on day 3 and survived till day 5 for freezing and PGD but all 3 tested aneuploidy so nothing to transfer. On both of these IVF cycles I was also put on Medrol and Cipro.

    My last 2 cycles were recently in Sydney where I was on 250Gonal F and using DHs frozen TESE sperm which was shipped from NYC for ICSI. IVF3 got 14 eggs and 6 fertilized and 5 looking grade 1 on day 3 and then by day 6 only 1 had developed to an immature blastocyst. It was transferred but then 2 days before my pregnancy test I got my period. It was a very painful heavy clotting type bleeding. No antibiotics or steroids used.

    My last cycle was IVF4 in Sydney using the same protocol. We wanted to use DHs fresh ejaculate post-reversal but no sperm found so we defaulted to his frozen TESE sperm. This time only 9 mature eggs and only 3 fertilized. On day 3, 2 embryos were 8 and 9 cell and they were transferred. The third embryo developed to blastocyst on day 6 and has been frozen. After the embryo transfer I had very sharp pains in my abdomen and then 3 days before pregnancy test had very heavy painful clotting bleeding period.

    The local china gynae I see for my IVF day 1 bloods ordered some more tests to see if there were any other issues other than just poor embryo quality affecting implantation – tests attached – and found that I have antisperm antibodies and negative blocking antibodies. She thought it was worth investigating more whether I might have immune issues preventing embryos from implanting.

    We understand that due to my egg issues and DH's sperm issues, this is impacting our IVF success. But we would also like to know whether there is anything different we can do next cycle like a new protocol or using fresh TESE sperm to fertilize or immunotherapy or anything else that might help give us a biological baby.

    I sent my antisperm antibody and negative blocking antibody test to my RE in Sydney and he just discounted doing further testing for immune issues saying that with us it's just due to poor egg/sperm quality. We are frustrated at the stock standard response from both NYC and Sydney REs that it's just your eggs and DH sperm. We get that it might be but even if we were lucky to get one good embryo - it could get wasted if I have immune issues.

    After reading your forum I have called Dr Matthias and am trying to get a phone consult with him urgently. I am on birth control pills waiting to do my FET but i don't want to do it until we get this immune issue investigated first.

    Sorry for the big download. Now I am trying to figure out timing and cost for the immune testing and therapy and how that fits with an IVF cycle or FET cycle. There is a Dr in Hong KOng who does the blood tests but not the biopsy and i'm confused as to whether to go to him as it's closer to home or wait for Dr Matthias. I want to avoid getting 2 lots of the same tests done by different doctors.

    Help...................


 

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